I am contemplating a trip to Mayo, have some questions.
What will they do? I have a pacer doing DDD pacing, will they test with the pacer turned on and off or just leave it on? (I am not satisfied with pacing.) My big fear is that I will be told there is nothing else to do or I'm not bad enough to do anything. Besides pacing I take toprol 50mg and verapamil 240 mg. my ep says I would not get enough benifit from a myectomy. I get sob and angina walking 100-150 yds and don't even tryu stairs anymore, inclines are hard and my hobby (dog training) suffers because I can't keep up with other people. My gradient is 15 at rest 65 provoked. my doc says this is too low and a myectomy will only get me down to 40. The pacing did wipe out my mitral regurg, it went from a 2+ down to a trace.
Also, has anyone heard of problems from long term pacing?
I am getting so I hate this disease and how it affects me and my family. Was diaagnosed 30 years ago at age 20. Last 10
years have been rough.
Thanks for listening and for replys.
Art
What will they do? I have a pacer doing DDD pacing, will they test with the pacer turned on and off or just leave it on? (I am not satisfied with pacing.) My big fear is that I will be told there is nothing else to do or I'm not bad enough to do anything. Besides pacing I take toprol 50mg and verapamil 240 mg. my ep says I would not get enough benifit from a myectomy. I get sob and angina walking 100-150 yds and don't even tryu stairs anymore, inclines are hard and my hobby (dog training) suffers because I can't keep up with other people. My gradient is 15 at rest 65 provoked. my doc says this is too low and a myectomy will only get me down to 40. The pacing did wipe out my mitral regurg, it went from a 2+ down to a trace.
Also, has anyone heard of problems from long term pacing?
I am getting so I hate this disease and how it affects me and my family. Was diaagnosed 30 years ago at age 20. Last 10
years have been rough.
Thanks for listening and for replys.
Art
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