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10 year old son with HCM

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  • 10 year old son with HCM

    [10 year old son with HCM]

    Author: Cheryl Farris (---.dsl.hstntx.swbell.net)

    Date: 06-20-02 22:32

    I was just reading one of the post that pertained to HCM and migranes. Before my son was formally diagnosed, he had been having headaches for approximately 1 year. We had been back and forth to the family doctor but to no avail. We tried some different migrane meds. and it would help for a little bit and then the headache would come back. His dad has a very strong family history of HCM, so we decided that enough was enough and we were in search of a Pedi. Cardiologist in the Houston area that specialized in HCM. It was a struggle with the Insurance Co. but because there were no specialists in our town, we did get to see Dr. Jeffrey Towbin at Texas Children's Hospital. After my son had all of the tests done, Echo, Stress Test, EKG, he was diagnosed with Mild HCM. The doctor started him on a low dose of Atenolol because of his heart beating so hard. He has had no complications from the medicine and I am so happy to say that since he started the Atenolol back in April he has had only 2 headaches, where as before he had headaches 3 - 4 times a week. The doctors really don't know if there is connection between the two, but I don't hesitate at all to say that I think there is.

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    [Re: 10 year old son with HCM]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 06-21-02 00:10

    Dear Cheryl

    Many people find that their migraines have abated with beta-blocker medication and there seem to be a lot us HCM'ers with migraines. I don't think anyone has done any real research on this yet, but I expect there will be some someday.

    I've very glad to hear that your son is doing better.

    take care

    Sarah

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    [Re: 10 year old son with HCM]

    Author: mia (203.167.97.---)

    Date: 06-21-02 06:59

    cheryl,

    i am a medical student and to my knowledge, beta-blockers are used as prophylaxis for migraines. i am happy to hear that it works for your son. good luck.

    mia

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    [Re: 10 year old son with HCM]

    Author: Suzanne (---.stic.net)

    Date: 07-08-02 23:52

    I thought Dr. J. Towbin is a specialist of HCM. Do you know of a more specialized pediatric cardiologist? Our 6 year old has HCM.

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    [Re: 10 year old son with HCM]

    Author: Cheryl Farris (---.dsl.hstntx.swbell.net)

    Date: 07-13-02 23:04

    Suzanne,

    Dr. Towbin is the only Pediatric Cardiologist that I know of in the Houston area. He came very highly recommended. He and his office staff were very up to date on HCM and were very thorough on treating my son. I would recommend him highly.

    I have corresponded with others that spoke highly of other Drs. but I can't recall their name. Sorry it took me a while to get to this, but we have been on vacation and just got back in today.

    I hope this info. helps. My son goes back to Dr. Towbin in October.

    Cheryl
    NOTE: This is a post from the previous forum message board.
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