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  • Conjestive Heart Failure

    [Conjestive Heart Failure]

    Author: Patricia Grall (---.dwave.org)

    Date: 06-18-02 17:38

    Hello. I am woundereing if any one else has CHF (conjestive heart failure) secondary to their IHSS/HCM? Also, does anyone else have nonobstructive HCM with a dystolic difunction? This is when the left ventricle of the heart does not have enough space left to fill properly rather than systolic problems that are to do with the blood having trouble leaving the left ventricle. (I Think.) The bottom of my septum is much larger than the top. My ejection fraction was 85% and my septum was 33 mm. That's my problem. My symptoms appear to be different than most of what I am reading. I am diagnosised with severe CHF. My medsare different too.

    Verapamil XR 240, Atenolol 100mg, Lasix 200 mg, K+ 100 mg. I have angina with exertion and SOB most of the time. I also have angina at rest sometimes. I am not sure what brings it on. My pulse was very strong and I could feel that beat all over my body at times. I also have a fair amount of phlem on bad days. I drink only 3/4 of fluid a day. I am 50 pounds overwieght. Otherwise I am very healthy and walk slowly 40 minutes each day, with frequent rest stops..

    Is any one else at all similar to me? I had the alcholo ablation done one month ago and am 40 % better, but all the symptoms remain now except for the nightime resting angina and the strong pulse. Will my CHF get better? This is almost more of a problem now than the Angina.

    Is it normal after a controlled MI to have some mind confusion for awhile?. I keep forgeting little things, more than before the procedure.

    I also wonder if any doctor insists that you have GERD, rather than nightime angina? One of my doctors did and wants me to go for an endoscopy. I have no other symptoms and do not feel I need to do this. I know it is Anginia in my own mind, but than wonder if I am nuts.

    Thanks for any help on any of the above issues. I reaaly appreciate it.

    Patricia Grall

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    [Re: Conjestive Heart Failure]

    Author: Dora (---.proxy.aol.com)

    Date: 06-18-02 18:37

    Hi Patricia,

    You sound a lot like myself except I don't have the dystolic difunction. I have a lot of problems with SOB. Have to walk slowly or I get tightness in my chest and sob, and forget about steps. I can only go up like 4 or 5 before I have to stop and rest. I also have a lot of trouble with fluid. I have never been told I had CHF. My worse problem is swelling of my feet. As for the meds. yours are almost identical to mine except they are a different kind. I am taking Cardiozem, Toprol XT, Laxis, and I was taking K-dur, but I am now also taking Spironoloaxtone, a half hour before the Laxis, which doesn't make you loss potasiumm so I no longer have to take the K-dur. I was taking Verapamil when I was first diognoiced, but I got so constipated I had to go on Cardiozem. Verapamil is actially considered a better med for HCM. I also was taking Atentolol, don't remember why the doctor switched me to Toprol XL.

    As for the GERD. I was diognoise with a Hydel Hernia and have to take Nexium for that. I get a lot of pain in my chest, sometimes it goes all the way through to my back. It hurts so bad I can't hardly breath. I have to be careful how much I eat at a time. With my hernia my food don't digest as fast and it all sits right on top of my stomach and puts preasure on my heart.

    I think a lot of us get the strong heart beat that we can feel very strongly. I found from reading these postings that if you lay on your right side that helps subside it.

    Well there you have it, hope it helps you!

    Dora J

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    [Re: Conjestive Heart Failure]

    Author: Patricia Grall (---.dwave.org)

    Date: 06-19-02 17:51

    Thanks alot Dora. It does help to hear from others. I appreciate it.

    Patricia Grall

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    [Re: Conjestive Heart Failure]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 06-19-02 23:30

    Dear Patricia

    Some people do develop CHF with their HCM. Are you seeing an HCM specialist? I just want to make sure you are getting the best care possible as dealing with both can be very hard for you and the doctors.

    take care

    Sarah

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    [Re: Conjestive Heart Failure]

    Author: Matt (---.disney.com)

    Date: 06-20-02 00:30

    Patricia,

    I have CHF which is caused by my HCM. I had a myectomy 20 years ago and about ten years ago, I went into chronic A-Fib due to the enlargement of my atrium chambers. So it is more like cause/effect in my case.

    However, and I don't wish to scare, but this just happened to my dad. He had HCM and He had a stroke 3 years ago due to A-Fib. But after his heart beat was returned to normal, he was still experiencing CHF symptoms, mainly edema in the ankles and a swelling/tightness in his abdomen and being very tired and not being able to eat much. Two weeks ago he went into the hospital for the pain in his abdomen, had a colonoscopy and biopsy which ultimately found that he had stage 4 colon cancer which spread to his liver. He just passed away today and I'm still in shock.

    So I guess this is a warning that CHF can be caused by problems other than HCM. The doctor's could never figure out why he was gaining so much water weight when his heart was in rhythm.

    I miss this great man and wish we found out earlier about the cancer.

    Matt

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    [Re: Conjestive Heart Failure]

    Author: karen (---.dyn.optonline.net)

    Date: 06-20-02 06:39

    Matt,

    I'm sorry to hear about your dad. This story sounds familiar. Did you and your sister go to the meeting in Morristown? I believe I may have sat across from you at lunch. I had a discussion (in the ladies room of all places!) with a woman, your sister?, who shared almost the same story, except at that time her dad was still alive. She was leaving the meeting and going straight to Florida. I've thought about her a couple times since, wondering how things are.

    My thoughts and prayers are with you. Please give your sister a hug for me. Thanks for posting this message.

    Karen

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    [Re: Conjestive Heart Failure]

    Author: Patricia Grall (---.dwave.org)

    Date: 06-20-02 08:59

    I too am sorry about your father. That can really be tough. I am calling the office today to talk make sure I am with the best doctors I can be with. Thanks to all whom responded.

    Patricia Grall

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    [Re: Conjestive Heart Failure]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 06-20-02 11:24

    Dear Matt

    I'm so very, truly sorry about the loss of your dad. I lost my dad very suddenly two years ago, so I know exactly how you feel. Please feel free to e-mail me.

    The first year is the hardest, but it does get better even though it doesn't seem like it. You may be wondering how the rest of the world keeps moving when yours had stopped. That feeling goes away in a few weeks after the shock has worn off.

    I wish you and your family all my sympathy.

    Sarah

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    [Re: Conjestive Heart Failure]

    Author: Lisa Salberg (208.47.172.---)

    Date: 06-20-02 12:35

    Matt,

    I am so sorry to hear of the loss of your father. The issues of what created his heart failure is, well, so unimportant at the moment, I hope no one minds I do not cover that topic.

    I know the next few weeks will be hard on you and your family, please remember to take good care of yourself. Stress can be such a strain on your heart and there are few things as stressful as a loved ones death.

    Please remember the good times you had with your dad and smile about them, just like we smiled at the meeting for Carolyn and all she gave the world.

    My heart is with you and please know you can call on the HCMA is you need anything.

    Warmest regards,

    Lisa Salberg

    HCMA

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Conjestive Heart Failure]

    Author: Matt (---.disney.com)

    Date: 06-21-02 00:31

    Patricia,

    I hope I didn't take anything away from the importance of your question. I just wanted to note that CHF symptons could be caused by something other than HCM.

    Lisa,

    On a side note, my family and I are asking all our friends and families and dad's ex-workers back in NY who wish to contribute to my his memorial fund to send it to the HCMA. You couldn't help him but I'm feeling pretty confident you'll help me.

    Thank you all and best of luck to you Patricia.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Conjestive Heart Failure]

    Author: Lisa Salberg (208.47.172.---)

    Date: 06-21-02 09:46

    Matt,

    Thank you for thinking of the HCMA, please know that we will keep a strict accounting of funds collected in your fathers name. Once funds have been recieved we will notify you of the amount and give your family the opportunity to help guide how those funds are used.

    My thoughts are with your family today.

    Best wishes,

    Lisa Salberg

    HCMA

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Conjestive Heart Failure]

    Author: Babs (---.tnt4.florence.sc.da.uu.net)

    Date: 06-29-02 06:52

    Can't say that I am in the same boat as you but I had the alcohol ablation done on April 29th and am much better. I do have as I call it indigestion/heartburn and for some reason now seen to forget things. It's a joke with friends that I left my mind in the O.R or better yet didn't get enough oxygen during the procedure. I don't think it is anything to worry about. As for the Angina, I haven't been told anything yet but the symptoms are not there.The tightness in my chest is gone and I take a pill for the GERD. Relief! My procedure was done by Dr.W.Spencer and I am thankful I was diagnosed and treated so promptly.

    Babs

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    [Re: Conjestive Heart Failure]

    Author: susan (---.179-182.vldsgacbds.dial.optilinkcomm.net)

    Date: 06-29-02 10:55

    patricia,

    i have had the ablation, dr. william spencer the third did mine, i still have alot of the symptoms. some peoples go away and some don't, i was one of the first 15 patients to have it done with dr spencer so this has been almost 5 years ago.

    yes chf is something i worry about, i have a lot of water retention. i have even had my period stopped because i hold so much water during those 7 days the doctors are afraid i will go into chf. i can't say that i am sad about not having a period anymore.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Conjestive Heart Failure]

    Author: Patricia Grall (---.dw.net)

    Date: 07-07-02 11:03

    Dear Barb. May I give you a call or E-mail you ? Thanks for responding. Pat Grall
    NOTE: This is a post from the previous forum message board.

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