If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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i want to no if anyone else as this

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bennett Find out more about bennett
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  • i want to no if anyone else as this

    does anyone get a bloated stomach b/c my stomach seems to get big like its going to expload or something and my face seems to swell up is this b/c i am filled with water do i need to worry about this
    im 20 years old with hcm and just been told i need a heart transplant

  • #2
    Re: i want to no if anyone else as this

    Hi Bennett,
    If you are in need of a heart transplant you could very well be filled with water. It’s a common phenomenon.
    - Do you get Short Of Breath (SOB)?
    - Is your weight less on days you feel better? (Do you check your weight every morning?)
    - If you get SOB do you also get chest pains (Angina)?
    - Are you taking a diuretic?
    - Have you had an Echocardiogram, and if so, do you know the measurements?
    - Have members in your blood family suffered cardiac death before they got through their fifties?
    - What drugs are you on?

    There are lots of variables, and each of us is different and will respond to medications in different ways. By all means check out the information at the beginning of this site, and you might also check the site for Brits – although you are more then welcome here.
    http://www.cardiomyopathy.org/html/w...d_hcm_text.htm

    I think you will find us a congenial group who help and support each other with comments, understanding, and answers to questions. We even have a number of heart transplant members in the process from a completed operation to those being processed toward going ‘on the list.’ On the one hand it’s scary as ****, but on the other hand it is the ticket to a full lifespan. So far it is the only cure for ‘HCM’ that has been developed and is available.

    Good luck with your problems, and if we can help in any way, please post again. As I said before, you are welcome here.
    Burt

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