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newbie--again

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Dawn-C Find out more about Dawn-C
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  • #1

    newbie--again

    Hi,

    A couple of years ago I found this wonderful website when my mom got dx with HOCM. She had a myectomy Aug 2002 at CCF (one of the original CMC). Other than her HUGE phobia of anything medical, she's doing great. She goes to her check ups and gets her testing done with only big anxiety attacks. She's on Lopressor and doing fine.

    Why am I back? My 15 y/o daughter just told me she's short of breath, dizzy and chest pain--even at rest but mostly when she's moving around. This has been for a couple of months but lately it's been getting more frequent so she thought she'd tell me. Needless to say, I'm freaked out!

    We all had Echo's in 2002 and they were fine. I'll be calling the doc in the am. But until then I needed to brush up on my HCM and just to reach out to those who know what it's like to live in a family with HCM.

    Thanks again and again for this site!
    Dawn
    daughter of mom with HOCM (CMC 8/2001)
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  • #2
    Re: newbie--again

    Hope everything goes well.
    If she needs someone to talk to, my AOL screen name is SuperNelly87...sometimes its just easier to talk to someone closer in age, know it has been for me... (im 17, diagnosed when i was 16)

    Needless to say, being a teenager with HCM is hard, and sucks sometimes...but for the most part everythings fine and my friends totally understand and will stop and rest with me when i get out of breath and stuff, and its been really hard at times...but overall i can't complain

    She hasn't been diagnosed yet from what i hear, so keep us updated. if she wants to talk to me, definatly give her my screen name (and my email adress is [email protected] if she wants that)

    much love!
    ~janelle*
    \"The heart swells at the magnificance\"

    1 timothy 4:12: Do not let others look down on you because you are young, but set an example for believers in speech, in life, in love, in faith, and in purity.

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    • #3
      Re: newbie--again

      Welcome back, Dawn. I'll hope that your daughter is fine. Let us know how it goes.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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