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Ups and Downs


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Nigel Find out more about Nigel
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  • #31
    Re: Ups and Downs

    Look out Nigel I may just put you to work with Tim if you keep coming up with these neat ideas!

    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #32
      Re: Ups and Downs

      Today’s Down

      I’m not sure if any of you have ever had a problem eating pizza… But tonight I hit the deck after having three slices of good ol’ mushroom and meatball pizza. I’ve been told to eat smaller meals, but sometimes I forget what “small” really means. For over an hour my heart was beating so strong and weird...

      It was going like Lub Lub… Lub…. Lub Lub.. Anyway, I’ll be sure to call my doctor tomorrow and see if I overdosed on pizza. I’m already starting to find that learning the limitations of this condition are going to prove challenging.

      Today’s Up:

      The amount of support you’ve all shown me has truly been a life saver and inspiration. I’ve always been interested in computers, but after all my anguish and grief; I think a carrier in medicine would better suit me. There are so many doctors that lack compassion and understanding. I would like to change that.


      P.S. Lisa I need something to do! If you didn't already know (I’m not sure if I told you on the phone) I use to run an online technology publication while in high school.

      You can visit the site at www.fastsilicon.com
      I cannot fear death, because when dead, death does not exist. Love is the reason for being, it can never be taken away nor lost, so hold on I will, and in death I will not part, but rejoice for the time I’ve had with you.


      • #33
        Re: Ups and Downs

        Hi Nigel and everyone

        Nigel, your pictures are really great! You are a handsome young man and your cat is so cute.
        I have a toy poodle that I just adore.

        Yes, if I over eat I will feel that way too. I think it is fairly common with HCM.

        I can eat one piece of pizza comfortably, 2 is the limit. If I have 3 pieces, I over do it and I get the lub lub,...lub....lub lub thing too.
        But oh Lord, I love pizza!

        I think it is very good that you are interested in computers.
        I like to post happy birthday greetings from other sites.

        49 yrs. old
        Diagnosed at 31.
        Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
        First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
        Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
        Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
        My brother passed away suddenly at 34 yrs old from HCM.
        2 teenage children, ages 17 and 15.