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bennett Find out more about bennett
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  • mtlieb
    replied
    Re: i have a question

    Hi All,

    I didn't mean to imply that this particular thread had gone way off-topic... or at least it hadn't until now. LOL. Small diversions are quite normal i think, and i hope no offense was taken by my previous post. It's really not my place to say anyway... it is Lisa's of course. I just have a really big mouth.

    However, let's get back to Bennett's original question shall we?

    Does anyone get tightness in the neck when ya walk it feels like ur head is going to exploade i am also wondering if anybody else gets lots of wind traped if it makes them sick aswell is theere anything different that might help give me advice.

    Jim

    Leave a comment:


  • Debbie
    replied
    Re: i have a question

    Thanks Pam and Burt,

    Once again, Nigel, no offense intended. Ooops, I mean Bennett.

    Sometimes, it is easy to forget who you're talking to. Being of little brain already, it only takes adding a few beta blockers to the mix, and then my brain is even smaller.

    Seriously. I even scheduled coffee with my sister last Sunday, and then forgot to show up.

    Anyway, everyone have a great night.

    Debbie

    P.S.
    After posting this, I went back to read it, and discovered that there was a second page. See? I hadn't even finished reading all the posts. The subject was over. Anyway decided to leave the whole thing so you can all see how truly small my brain is! Ok, I will shut up now.

    Leave a comment:


  • Burton Borrok
    replied
    Re: i have a question

    Hey – another side issue,
    But before I begin, I just want to say there is no substitute for good old common sense and what we call, ‘Home Remedies’ which were learned from years and years and years of experience.

    OK, I guess for most of you the two subjects never cross, but there is a treatment for epilepsy where they implant a devise under the skin with a wire wrapped around the vagal nerve as it passes through the neck. A fifteen second pulse every other minute (or some other effective program) is designed to break up an epileptic attack before it begins. It can also be triggered by a hand held magnet if the person gets an aura – or some notice that an attack is eminent. Usually the only way you know it’s working is that there is a secession or diminution of seizure activity – and the pulse also effects the vocal chords, giving a slightly hoarse effect.

    There are more things in heaven and Earth, Horatio, / Than are dreamt of in your philosophy [science].

    Sorry for the divergence,
    Burt

    Leave a comment:


  • mtlieb
    replied
    Re: i have a question

    Bennett,

    I used to get quite a bit of tightness and pain in my neck prior to my myectomy, especially on the left side. My docs told me that it was due to my obstruction (HOCM). In fact, i saw one specialist who performed one of the most thorough physical examinations i have ever had. He placed his hands on either side of my neck, and was able to tell the amount of obstruction i had, without even having performed an echo yet. I have no doubt in my mind now that this neck pain was directly associated with HCM, and i have a whole lot of respect for physicians who look at the total body, and don't just rely on test results.

    As far as the thread goes, you'll find occasionally that comments get interjected here and there that are not intended for the original poster. It's unavoidable at times. However... i have seen threads hijacked by others that go so far off-topic that the original question gets largely ignored. We need to do a better job sometimes of staying on topic.

    Thanks for bringing that issue to everyone's attention. I don't have any problem at all with you or anyone else saying 'Hey, remember me? I was the one with the question here!'

    Take care,

    Jim

    Leave a comment:


  • Pam Alexson
    replied
    Re: i have a question

    I believe the ice cube thing is in regards to the vasal vagal nerve stimulation. The vagal nerve which runs across the diaphragm and is triggered by different mechanisms. The vagal nerve can cause a change in heart rate and as some of us are very sensitive to changes it has been known to influence onsets of A- Fib. Other arrythmias therefore are reactive as well or should I say have the potential to trigger.

    The vagal nerve is always a concern when some individuals have persistant vomiting or they have bouts of continuous hiccupping ( sp?). When a woman is in labor lying on the left side could drop the BP&P for same reason( diaphragm gets pushed up triggering the vasal vagal response). Many people pass out when they get up too fast , the diaphragm again gets pushed and boom , BP drops , person passes out.

    There are many more but to get back to it , the ice cube or iced drink theory is on the money and users should use caution.

    Pam

    Leave a comment:


  • Reenie
    replied
    Re: i have a question

    About the ice cube, I dont' know the whys of it all, but I know that when I used to have trouble with SVT the doctors would ask me if cold drinks affected me. They never did, but apparently they do some people. Sarah here at the HCMA says she always drinks room temp drinks.

    Reenie

    Leave a comment:


  • Pam Alexson
    replied
    Re: i have a question

    Nigel,
    Yes that post was a little confusing , Bennets comment that is . It took good ole Burt to figure it out for us. I believe Bennet was just commenting that it was his thread. Burt pointed out that many times what starts out as one topic and someones thread becomes something different and off to another topic. We here on the board tend to digress easily and often get derailed in our focus. Seems we always get back to the focus sooner or later and make everything perfectly clear. I like to think of it as we are painting many pictures and setting the scenes. It is funny how this happens a lot. So to answer your question , No you did not do anything wrong we all just jumped over to another idea for awhile.

    New members just have to get used to our style. We also do not tend to stand on too much formality.

    Does this explain ?

    Take care . Pam

    Leave a comment:


  • Nigel
    replied
    Re: i have a question

    I'm lost, all I heard was my name. Did I do something wrong? If I need, I'm sorry.

    But anyway, that feeling really is horrible. I think you should try moving a little slower Bennett, that helps me. Also when I'm really short of breathe and my head feels funny, I always suck on an ice cude. It works, I don't know why....

    Hope you're feeling better

    Leave a comment:


  • Debbie
    replied
    Re: i have a question

    Sorry Bennett,

    My mistake.

    Debbie

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  • bennett
    replied
    Re: i have a question

    thats good to no bert .and thanks

    Leave a comment:


  • Burton Borrok
    replied
    Re: i have a question

    Sorry about that Bennett,
    I kind of thought you had your answer in the postings before we ran off with Nigel. I think you’ll find a thread will often wander from one crisis to another. No disrespect intended, it’s just that we often feel the need to voice our opinions on postings subsequent to the initial one.

    If you have further questions or comments, by all means speak up. We are rather casual as to what happens, but we do not want to leave you, or anybody, hanging with unanswered questions.
    Burt

    Leave a comment:


  • bennett
    replied
    Re: i have a question

    Originally posted by Debbie
    Nigel,

    I do get the tightness in my neck quite often. When that happens, my arms and legs feel heavy, and I feel short of breath.

    I think this is all just part of HCM...?

    Debbie
    errr hello this isnt nigels forum

    Leave a comment:


  • Debbie
    replied
    Re: i have a question

    Nigel,

    I do get the tightness in my neck quite often. When that happens, my arms and legs feel heavy, and I feel short of breath.

    I think this is all just part of HCM...?

    Debbie

    Leave a comment:


  • Burton Borrok
    replied
    Re: i have a question

    .Hi Nigel,
    HCM will show up on an EKG for many people as a heart attack - but ‘it ain't necessarily so’. (A song your parents or grandparents might remember.)

    Until you have a complete work-up by HCM savvy Cardio's and staff, keep your heart attack conclusions open to interpretation.

    See, something to smile about.
    Burt

    Leave a comment:


  • Nigel
    replied
    Re: i have a question

    Yes, I've felt that very same feeling before. It was sometime last year and all of a sudden my head felt very heavy, almost as if I was having a stroke or my blood pressure was extremely high. After the episode, my pulse took off to about 180 bpm and I went to the ER only to find that nothing had happened to my brain. An EKG was done that showed an "old heart attack" but I've always had weired EKG's.

    It's just one of those weird symptoms... To this day I don't know what happened.

    Leave a comment:

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