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Stem cell research


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mikemari Find out more about mikemari
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  • Stem cell research

    Hi... I am new to this website. I was diagnosed with HCM (IHSS) about 40 yrs. ago.

    Has anyone heard about and successful stem cell treatment for HCM?

    I have been told that I am in the "burned out" HCM stage......which doesnt sound too good to me. I have trouble with stairs and hills but I am still not a candidate for a heart transplant. I have read about treatments for rebuilding heart muscle with adult stem cells and I am looking to participate in such research.



  • #2
    Re: Stem cell research

    You ask a good question. I do thing there will be a role for stem cell in the treatment of burnt out HCM down the line - but this is going to be many years from now.
    I will be attending the American Heart conference (I am leaving in a few hours) and noticed a talk on stem cell in DCM in rats that I want to hear more about. If you want to call the office the week of the 15th I can tell you what I have learned.

    Best wishes,
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3
      Re: Stem cell research




      • #4
        Re: Stem cell research

        Wouldn't that be wonderful if stem cell research/technology can help SO many people...not only with HCM, but Alzheimers, spinal cord injuries and so on and so on. I am a strong advocate for stem cell research.
        \"It is not length of life, but depth of life.\"

        Ralph Waldo Emerson


        • #5
          Re: Stem cell research

          Hello everybody, although I don't visit the site much, I'd like to say that I'm all in favour of stem cell research as well. I know that many people look at it from a religious point of view which I respect, but can't bring myself to agree with. I think science's here to help people and I'm living proof of that having survived three mitral valve replacemnts so far. I just wanted to say that.

          Débora from Brazil
          View my heart history too.


          • #6
            that would be great if stem cells could be used to help us with hcm I recently was blessed with a baby girl and we opted to store stem cells from the umbilical cord, they cryogenically freeze them.This way atleast if some treatment becomes available 20 yrs.from now well have compatible cells .I m thinking also from the perspective of my children if they have hcm or anything else.I dont thinkmost religious people have a problem with stem cells and stem cell research. I think the problem is the use of aborted fetuses.the use of the adult stem cell does not bother any christians that I know. take care mike ob
            One day at a time.