If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • New to this!

    [New to this!]

    Author: Jojo (---.avenel01.nj.comcast.net)

    Date: 06-12-02 19:53

    I just discovered this site recently. Glad to find that I'm not alone! Has anyone know if the fluid retention symptom is like having phlem most of the time?

    Thank you,

    Jojo

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    [Re: New to this!]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 06-12-02 21:35

    Dear Jojo

    Welcome.

    Phlem and fluid are different. When someone is retaining fluid (for whatever reason, but with HCM usually due to cardiac insufficiency), their ankles will swell and they will develop a dry cough and perhaps swelling in other joints as well or even all over if severe enough.

    Too much phlem is something else entirely.

    Sarah

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    [Re: New to this!]

    Author: Schrece Davillier (---.proxy.aol.com)

    Date: 06-27-02 16:26

    I'm glad fluid was brought up. I didn,t know a person with HCM can retain fluids. Before my sister pass away she was retaining fluids. My sister when to the doctor for 3 years and they never found out what was wrong with her. Until she pass away 3 months later we found out it was HCM. Her face even broke out.(could that had something to do with it?) I'm still trying to find out if it was something I could have done to help my sister. We often talk and I would ask her (have the doctors found anything) (No, she would say) . We even talk about changing doctors and she did. (but it didn,t help) The doctors even had her taking steroids. Do you think the steroids made her retain the fluids .

    Anyway thanks for all the information that is put on this web.

    Best regards to everyone,

    Schrece

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    [Re: New to this!]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 07-01-02 18:28

    Schrece,

    I would have someone look into her medical records to see if she received the care she should have. Not because you want to file a law suit but to give you some peace of mind to know if anything coiuld have been caught. It takes away a great deal of the "I wonder if's".

    Lisa
    NOTE: This is a post from the previous forum message board.

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