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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • One step closer

    Ok just to give everyone an update i go tomorrow for my stress echo and then get a referral from my cardio doc for the transplant team her in Norfolk, now it is getting rather scary keep your fingers crossed for me

    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

  • #2
    Re: One step closer

    Hi Shirley,

    I'm keeping my fingers crossed and praying for you.

    Is a stress echo like a stress test? I have never had any of those done before.

    I am thinking of you and hoping and wishing the best for you.

    Eileen
    49 yrs. old
    Diagnosed at 31.
    Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
    First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
    Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
    Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
    My brother passed away suddenly at 34 yrs old from HCM.
    2 teenage children, ages 17 and 15.

    Comment


    • #3
      Re: One step closer

      Shirley -
      You will be in my thoughts! Take care of yourself!
      Big hugs!
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Re: One step closer

        Eileen

        A stress echo is where you walk on a tread mill and then they lay you down and do an echo while your heart is still stressed

        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

        Comment


        • #5
          Re: One step closer

          Shirley,
          Stressed – shmessed. You get a new heart and you’ll be a young girl again.

          I just hope Ken is up to the task.

          More to the point, I hope you have an easy and short wait, an uncomplicated procedure, a quick and uneventful recovery and wind up with a heart – or heart and lungs - with some Pi** and vinegar left in them.

          I also wish you a memorable second honeymoon – plan ahead, dear heart, plan ahead.
          Burt

          Comment


          • #6
            Re: One step closer

            Shirley, Best wishes, isn't it great to know you have so many friends here pulling for you! Linda

            Comment


            • #7
              Re: One step closer

              Shirley,

              Good luck tomorrow! I'll be thinking good thoughts.

              Rene'

              Comment


              • #8
                Re: One step closer

                Shirley,

                You will be in my thoughts and prayers....take care

                Cynthia
                \"It is not length of life, but depth of life.\"

                Ralph Waldo Emerson

                Comment


                • #9
                  Re: One step closer

                  Prayers are offered on your behalf.
                  Peace,
                  Leon
                  God Squad co-moderator
                  Nothing is as gentle as strength and nothing is as strong as gentleness

                  Comment


                  • #10
                    Re: One step closer

                    I hope all goes well and that you have a good and fast recovery.
                    Donna B. HCM & ICD. 2 sons with HCM. Brother passed away from HCM at the age of 39. Mother has HCM.

                    Comment


                    • #11
                      Re: One step closer

                      Best wishes, Shirley.

                      Reenie
                      Reenie

                      ****************
                      Husband has HCM.
                      3 kids - ages 23, 21, & 19. All presently clear of HCM.

                      Comment


                      • #12
                        Re: One step closer

                        Ok people I'm back and it was not fun at all, I only made it maybe a minute and a half and my heart rate jumped to 148 and i couldn't breath and they turned it off and i started coughing too and when i do that my CHF is acting up and i think that was another reason, oh they didn't want to even do the test because i have heart failure she seen in my paperwork from my PCP doc that my BNP was 686 and they said we don't usually do a stress echo when someone is in heart failure

                        But i'm still alive so i guess it went as well as it could

                        Shirley
                        Diagnosed 2003
                        Myectomy 2-23-2004
                        Husband: Ken
                        Son: John diagnosed 2004
                        Daughter: Janet (free of HCM)

                        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                        Comment


                        • #13
                          Re: One step closer

                          Shirely, sorry to here that, whats the plan now, are they going to try again?
                          Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                          So if you are capable of thought then you are capable of great things
                          Good luck and stay well.
                          Glen

                          Comment


                          • #14
                            Re: One step closer

                            Shirley
                            You are in my thoughts, daily. Why is it, the Docs think they are scheduling you for "an easy" test & because of complications- it's not so easy & it takes you a couple of days, to recover from the "easy test"? This happens with me & I find it very frustrating!
                            My prayers are with you

                            RONNIE
                            RONNIE

                            Comment


                            • #15
                              Re: One step closer

                              Shirley, I remember those days. Taking tests to prove how sick you are. Must be a easier way. hang in there. I will keep you in my prayers. If you want to talk PM me and I will call you.
                              Midge

                              Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
                              ICD&Pacemaker 1996
                              Heart transplant March 19, 2004 @ Mayo Rochester
                              Mom of Kaye.

                              Comment

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