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Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05 Find out more about Toogoofy317
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  • Update

    First of all, I want to apologize for not keeping everyone updated on what is going on. I've been feeling really down lately and had pretty much shut everyone out.

    I did go to Boston and did not get the answers I was looking for. I wanted solid answers and all we came up with seemed to be more questions. We have exhausted the cardiac meds route because my blood pressure will not tolerate even the smallest of doses. They did find out that the episodes were not causing any long term damage at this point. So, we are just going to try and treat the pain. They are really going out on a limb and trying anything that could possibly work. We are going to try and get me set up at a pain clinic to see if we can find a way to keep the chest pain at bay.

    We did discuss heart transplant but my EF with my Pacer is at 55% so it is not an option. At least not right now anyways.

    We also agreed that my current position at the hospital was too hard for me. So I've been out of work for a while now. I am supposed to have a meeting on Monday to discuss this and what my options might be. Hopefully, we can find a secretary position for me. I got a call back from the cardiac floor with my hospital and I have an interview next week.

    I went to school to discuss getting reimbursed for my tuition because I didn't even make through the first week of school. The school bluntly told me that the only way I would get any reimbursement is if I were in the military or I had died. I thought that was pretty calloused but that is the school system for ya.

    I'm still fighting the effects of that darn flu vaccine. I just wonder how long it's going to last!

    Mary S.

  • #2
    Re: Update

    Mary, seems like the never ending story.
    Wish there was something we could do other than wish a better outcome for you.
    Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
    So if you are capable of thought then you are capable of great things
    Good luck and stay well.


    • #3
      Re: Update


      I wish I had lots of answers for you, but I don't. However, I do have a hint about the money from the school:

      Petition, petition, petition.

      Having taught at a large American university for nine years and at smaller ones for 13 years, I can tell you that they hate to give money back, but they sometimes do if you press the issue. Go in and ask politely what procedure they have for petitioning for a complete withdrawal with refund. They rarely mind giving retroactive withdrawals, but hate giving the money back, for obvious reasons. I should add that the vast majority of people who ask for refunds do not have a good case for asking, but some, such as you, do.

      What you will need is documentation. You will need records of the times you were hospitalized and a letter from a doctor that states that you are physically unable to attend. Armed with documentation and some patience, I think you have a decent chance to get a refund. At least this would have been the case at the previous university where I taught. I the time I was there, I never knew a student to get a refund on the first or second try, but there was a committee which responded to petitions of this nature which gave full refunds for legitimate excuses.

      They also might give you a prorated refund based on the date of withdrawal. For that reason, it might be helpful if you first attempt to get your withdrawal date set back to the actual date you stopped attending. This was also possible at my university by petitioning a different committee.



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