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  • Am I being unreasonable?

    [Am I being unreasonable?]

    Author: Robbyn (---.sympatico.ca)

    Date: 06-11-02 16:27

    Hello All,

    I REALLY need to vent. I am almost in tears as I am writing this - I am so frustrated. I have just come back from the cardiologist.

    If you don't mind I would like to give you some background. I was

    diagnosed 5 years ago with HOCM. I am now 46. Never had any

    symptons until March when I was getting short of breath and swollen

    ankles. I went emerg. I was told I was fine. My GP called me a week and

    half later and told me I have CHF. Gave me 20 mg. of Lasix and told me to

    take if I need it. Whatever that means - never taken it before in my life.

    Found out I also have MVP. Cardio wanted stress echo and holter. I did

    both but found the stress echo very difficult. Only did it about 4 minutes. I

    can't even sweep the floor without getting out of breath. He now wants a

    stress test done without exercise - July 17, with an appointment to see him

    September 7th.

    I have waited almost 4 months and thought I would get some answers

    today... I saw him for a total of 5 minutes - and 3 minutes of that he spoke into a tape recorder for his notes.I told him I have some questions he said wait for the stress test then walked out of the office.

    Am I being unreasonable? Or should I be abiding my time?

    Thanks,

    Robbyn

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Am I being unreasonable?]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 06-11-02 17:46

    Dear Robbyn,

    In my personal opinion, your doctor is an unspeakable body part.

    Please call the HCMA office right now at 973-983-7429 so we can hook you up with an HCM specialist who will listen to you and give you the answers you need and are so entitled to.

    I'm so sorry you had to go through that.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Am I being unreasonable?]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 06-11-02 19:00

    Dear Robbyn

    It does seem as though Canadians have to wait much longer than US citizens to get seen by their doctors. I think there is someone in Toronto people like, but I know a few Canadians that have come to one of the various HCM clinics in the US because of the wait at home.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Am I being unreasonable?]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 06-11-02 20:32

    Hello - you may always feel free to "vent" here!

    Well, sounds like you have had a difficult time with this doctor. The Canadian health care system does not allow for the same freedoms as the US system, it requires some additional "tact" and politics. First I would suggest you call the doctors office and explain how your feeling. Explain your concerns with the shortness of breath and CHF and ask to been seen sooner. If they can not or will not see you sooner, contact your general physician, explain the situation to him/her and ask for a referal to Dr. Doug Wigle at Toranto General - or someone at Toranto that works with the HCM patients.

    Please do not get yourself too worked up over the dates of the appointments, that is not going to do you any good. If you begin to feel poorly and are concerned go to the emergency room if the local doc will not see you.

    I would also suggest if you have a problem getting to the proper help in Canada...come south, it will cost you but it is really not that much when you consider the subject matter. We can help you get to doctors from Boston to Minneasota... and many points in between!

    I will leave you with this.... I know your upset...but keep smiling..some day that doctor may be a patient.....and what comes around goes around

    Best wishes,

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Am I being unreasonable?]

    Author: Robbyn (---.sympatico.ca)

    Date: 06-11-02 22:02

    Thanks for the information. I don't even mind waiting so much if I could only get some answers. Through all of this the only information I have been given is from my family doctor. That was to take Lasix when I need it??????? Oh and he also put me on Propranonol and this with my other meds had me just about passing out. Even the nephrologist sent him a letter questioning that one.

    If it wasn't for this website and other like minded sites I would know absolutely nothing about my health concerns. What a sad state of affairs when you cannot get answers from a health professional.

    I live about a 2 hour drive to Toronto and I believe I will ask my doctor for a referral to Dr. Wigle. That is what I should have done in the first place. Ranting over.

    Other question please! Both my daughters age 20 and 22 were checked 5 years ago. How often do you think they should be checked?

    Thanks for being there,

    Robbyn

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Am I being unreasonable?]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 06-11-02 22:25

    Dear Robbyn

    The propranolol is a very old beta-blocker. They are a very useful drug for HCM, but there are newer ones that have fewer side effects (toprol, nadolol).

    The standard guideline for kids in their twenties is every 2-3 years and every 5 years after that.

    Take care,

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Am I being unreasonable?]

    Author: Glen (---.com)

    Date: 06-12-02 08:22

    Robbyn, I live in Whitby and have been a patient of Dr. Wigle for over 30 years now. He is an HCM specialist at the Toronto General Hosp. and has been for 40 years and in his own words he is one of the old pioneers.

    You will require a reference from your GP and I have never had to wait any great time to get to see him, maybe it's because I am already a patient of his.

    There would be no need to go south once you get to see him, actually I do not believe our system would pay for it anyway.

    Dr. Wigle just took me off Propranolol for just the reason Sarah mentioned, it was one of the original beta blockers going back 30 years and there are better ones now.

    He put me on Atenolol and I actually feel better than being on the Propranolol, however people tolarate and react differently on different drugs, it's just a matter of finding right ones for you.

    For me each time I go, I have an ECG, Echo, Echo under stress (either by exercise or drug induced) and a 48 hour Holter Monitor Test and these are compared to my previous tests for any change.

    You may have to go thru additional testing because they need to establish a base line for future comparison.

    By the way I saw 4 cardiologists before seeing Dr. Wigle and they were very much like the one you are seeing now.

    Good Luck and Stay Well

    Glen

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Am I being unreasonable?]

    Author: Robbyn (---.sympatico.ca)

    Date: 06-12-02 13:25

    Hi Glen,

    I don't live very far from you. I live in Lindsay. I have aready called my GP for a referral to Dr. Wigle. It's not very far for me to go and it will give me peace of mind seeing a doctor of his reputation.

    Thanks again everyone,

    Robbyn

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Am I being unreasonable?]

    Author: Glen (---.com)

    Date: 06-12-02 13:33

    We sometimes drive thru Lindsay on the way up to Haliburton where I have a place.

    I'd be interested in how you make out, let me know.

    Good Luck

    Glen.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Am I being unreasonable?]

    Author: Robbyn (---.sympatico.ca)

    Date: 06-12-02 21:48

    Hi Glen,

    I will certainly let you know how I make out with Dr. Wigle. And I have been to Haliburton and Bancroft many times - that to me is paradise and I would love to live there.

    Thanks,

    Robbyn

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Am I being unreasonable?]

    Author: Lisa Salberg (208.47.172.---)

    Date: 06-13-02 14:08

    Hey... looks like its a small world, thanks again to the internet! Glen thanks for your input and Robbyn sounds like you are on the right track.

    Best to all,

    Lisa
    NOTE: This is a post from the previous forum message board.

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