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Inclines, stairs and hills.

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  • Glen Beamish
    replied
    Re: Inclines, stairs and hills.

    Is the person taking Amiodarone?

    Leave a comment:


  • Brown Team
    replied
    Re: Inclines, stairs and hills.

    oh ya ~ is that Cookstown, NJ? familiar ~ all too familiar ...

    Leave a comment:


  • Brown Team
    replied
    Re: Inclines, stairs and hills.

    oh yuk!

    that's not good!!!

    thankfully Warren has Dr. Maron!!! we left a message for him and he has already called and talked with him ~ and thankfully Dr. Maron doesn't let things slide, nor does he take things for lightly ... and Dr. Maron is so very easy to talk to, and his listens so well ~ and thankfully my husband is really comfortable with Dr. Maron and really tells him what is happening (at least I think so anyway ) ... it was a huge step for my husband to tell me last night that he wasn't feeling good and that he thought we needed to let Dr. Maron know ...

    Warren has an appointment coming up with a new primary care physician for a full physical just around the corner ...

    We'll definitely keep an eye on this!

    Leave a comment:


  • Cynaburst
    replied
    Re: Inclines, stairs and hills.

    Yellowing of the whites of the eyes is NOT A GOOD SIGN. I don't think that it is affiliated with HCM either, but it does indicate a problem with the liver. This is something that needs attention from a physician immediately. I would get your husband to his primary care physician ASAP.

    Sorry to be alarmist, but this is not normal and can indicate liver failure.

    Leave a comment:


  • Brown Team
    replied
    Re: Inclines, stairs and hills.

    Greetings Everyone!

    Hope this finds everyone doing well !

    We've been trying to trace a lot with my husband, trying to figure out why his heart is worse than his dads, figuring out why he is so symptamatic now compared to even just 2 years ago when he had no noticeable symptoms, etc ...

    One thing that we noticed was missing was our daily walking ~ we used to walk our dog daily, now since she is gone and we don't have the responsibility of caring for her, we just can't seem to get out and walk every day ... we are hoping to change that within the next 2 weeks by adding a new family member and therefore start walking daily again ...

    Does anyone "exercise" daily? or on any sort of regular basis? and if so, was there any noticeable difference before and/or after?

    I am very excited and hopeful! Any feed back will be greatly appreciated!

    And the swelling ~ does anyone just go up and down with their swelling? My husband's swelling had gone down drastically ~ and then, he has had a few really rough days and last night he was really puffed up ... he got about 9+ hours of sleep last night and it was down a little bit this morning ...

    and oh ya, does anyone notice (maybe family members notice) yellowing of the whites of your eyes?

    Okey Dokey ... I've rambled enough ... have a fantastic day!

    Leave a comment:


  • Ronnie
    replied
    Re: Inclines, stairs and hills.

    Sorry to be late jumping into this topic. Stairs, hills, any type of incline, are things I avoid, due to the symptoms of SOB. I am not overweight, have had a Myectomy, and work out every day.
    A Myectomy, is a surgical proceedure where they crack open your chest & remove some of the muscle that is causing an obstruction. Simple response, it's really more difficult, but that's the short answer. The surgery is only done at a few hospitals-Cleveland, Mayo, NEMC. It's a "last hope" , it is not a CURE, but releaves many symtoms.

    Leave a comment:


  • shirleymahoney
    replied
    Re: Inclines, stairs and hills.

    I walk 200 to 300 ft on flat land and i'm done, forget about inclines, there are times i can just bend over like to trim back flowers from my barrel in the front yard and i can't breath this was yesterday i had to back up and sit on the steps for a while and it was not hot here in Virginia like in the lower 70's so it wasn't the heat


    Shirley

    Leave a comment:


  • MWong
    replied
    Re: Inclines, stairs and hills.

    Hi, it has been a while since I posted but I will read the board quite often.

    Walking up hills and stairs has always been a big issue with me. I remember about 4 years ago when I was in Phuket, Thailand and we were sight seeing. Finally at the end of the day, we were walking back to the hotel but needed to walk over this small mountain. I couldn't take it after 5 minutes and had to call for a cab.

    Even today, walking up 2-3 flights of stairs is very difficult for me. Sometimes I take the elevator for 1 or 2 flights on mornings when I don't feel well and feel weird because no one takes the elevator at work since it only has 3 floors.

    Ming

    Leave a comment:


  • Burton Borrok
    replied
    Re: Inclines, stairs and hills.

    Hi again,
    I’ll bet you’re expecting me to say something like, “Good eats in Cookstown,” but I would never be that obvious – No, I would just comment on the two hour drive each way to and from work. I did that when I lived on Long Island and worked in Manhattan. It was thirty two miles to Hunters Point where I parked, then two stops on the IRT and I was at Grand Central Station. It was the traffic that made the trip so long. I used to take the Long Island Expressway (known as the Big LIE) past the Seaford – Oyster Bay Expressway (known as the S.O.B.) Ah yes, those were the days. (I’ll never know why the Palisades Parkway never got known as the P.P. runoff instead of the PIP.)

    I drove with my next door neighbor and the guy across the street. We took turns driving and sitting in the right passenger seat. The guy who sat in the back that day had the best of it because he could lie down across the seat and get an hour’s nap going and coming. It was rough though, because the four hour commute and the eight hour work day (including lunch) meant that I was out of the house 12 hours a day, and the kids were small then. Anyway, good luck on your travels. It’s kind of nice that Home Depot would switch you over and keep you employed that way. I hope after the training they can place you in a nearby store and save you that commute.

    About the dizziness, I get a touch of it from time to time, but it doesn’t usually last that long – mostly I get it when I get up out of a chair or climbing out of the car after I park. A week ago Sunday I got very dizzy about midnight at my computer. I had to hang onto the walls to make it to my bed. I woke up about four to go to the john and felt OK, but the moment I moved my head I got very dizzy again. I went to the ER thinking I either had a heart attack or another stroke, and my wife had to call them to get me out of the car with a wheelchair. As it turned out it wasn’t a stroke or a heart attack, but there is something showing up on the MRI, so now I have an appointment to see a neurologist. (Another specialty heard from – and maybe my seventeenth diagnosis. Time will tell.)

    I actually think the dizzy spells are brought on by the meds we take more then anything else. Of course without the meds our blood pressure would do loop-d-loops and make us dizzy anyway. I found the best thing to do for it is to remain still until the dizziness passes, and then move like you’re walking on eggs for a little while.

    Thanks for the stroll down memory lane,
    Burt

    Leave a comment:


  • Lisa Salberg
    replied
    Re: Inclines, stairs and hills.

    RE the walking issue - I can walk forever on a flat surface - give me the slightest incline and I am shot in minutes! This is a very common issue for those with HCM.

    Be well,
    Lisa

    Leave a comment:


  • cooksnj
    replied
    Re: Inclines, stairs and hills.

    Hello Burt, no I live in mall town just outside of burlington nj. Cookstown to be exact. Thats were I get the cooks from. I have a really bad memory and it was the only thing I could think of. I've been getting around all week for training. I work for home depot and there traing me to sell windows and doors since I cant really lift anymore. Tom. I'll be in allentown pa, nice little 2 hr drive one way for me. But hey its better than being at the store. Any way good to hear from you and I'll talk to you later. Oh yeah you ever have dizzy spells?

    Leave a comment:


  • Burton Borrok
    replied
    Re: Inclines, stairs and hills.

    Hello again,
    A couple of things.
    When asked why I huff and puff I just say I have a genetic heart condition. This almost always shuts down another recital of all the things I’m doing wrong to myself.

    If that doesn’t stop them I say I have sixteen known ailments - so far. At the moment I have a primary doctor, three cardiologists, a neurologist, a nephrologist, an endocrinologist, an ophthalmologist, a gastroenterologist, an audiologist, and I may have to get another pulmonologist. Now just exactly which of these specialists don’t know as much about their specialty as you do?

    Only once has somebody persisted beyond that second barrage. I looked at him, smiled and said, “You really are a piece of work aren’t you?” I then turned and began speaking with somebody else. I was half expecting to get grabbed from behind, and was ready to just fall down on the floor. (My most effective defense.)

    OK, OK. Steps two and three have never been used in real life, - but they are fun to contemplate. The recital of my current doctors is true enough though. My old pulmonologist packed up and left town, and I haven’t felt the need to get another. After all, we all know the cause of our SOB. Besides I just had a pulmonological test to go along with my stress test just a couple of weeks ago, and I was fine.

    By the way, one of those sixteen conditions I have IS blocked arteries in my heart – and the rest of my body too. (Some days you just can’t win.)

    I don’t know why, but I keep getting vibes when I read your postings that you live in Somerset, NJ. I know you said you are in central NJ, which narrows down the field quite a bit – and by all means do not answer if you don’t feel like it (I really don’t want to pry) – I’m just a nosey nut. I like to picture where my friends are, and try to get them to post a picture in their Avatar so we can all see who we are talking to. Also, is your name or occupation cook? – and what’s your first name. (I am nosey – right?)

    The week-end is over, so have another great week.
    Burt

    Leave a comment:


  • Burton Borrok
    replied
    Re: Inclines, stairs and hills.

    Hello again,
    A couple of things.
    When asked why I huff and puff I just say I have a genetic heart condition. This almost always shuts down another recital of all the things I’m doing wrong to myself.

    If that doesn’t stop them I say I have sixteen known ailments - so far. At the moment I have a primary doctor, three cardiologists, a neurologist, a nephrologist, an endocrinologist, an ophthalmologist, a gastroenterologist, an audiologist, and I may have to get another pulmonologist. Now just exactly which of these specialists don’t know as much about their specialty as you do?

    Only once has somebody persisted beyond that second barrage. I looked at him, smiled and said, “You really are a piece of work aren’t you?” I then turned and began speaking with somebody else. I was half expecting to get grabbed from behind, and was ready to just fall down on the floor. (My most effective defense.)

    OK, OK. Steps two and three have never been used in real life, - but they are fun to contemplate. The recital of my current doctors is true enough though. My old pulmonologist packed up and left town, and I haven’t felt the need to get another. After all, we all know the cause of our SOB. Besides I just had a pulmonological test to go along with my stress test just a couple of weeks ago, and I was fine.

    By the way, one of those sixteen conditions I have IS blocked arteries in my heart – and the rest of my body too. (Some days you just can’t win.)

    I don’t know why, but I keep getting vibes when I read your postings that you live in Somerset, NJ. I know you said you are in central NJ, which narrows down the field quite a bit – and by all means do not answer if you don’t feel like it (I really don’t want to pry) – I’m just a nosey nut. I like to picture where my friends are, and try to get them to post a picture in their Avatar so we can all see who we are talking to. Also, is your name or occupation cook? – and what’s your first name. (I am nosey – right?)

    The week-end is over, so have another great week.
    Burt

    Leave a comment:


  • cooksnj
    replied
    Re: Inclines, stairs and hills.

    Thank you all for responding. It is nice to feel normal here. Sorry it took me so long to get back, life gets in the way some times. I dont worry about what other people think of me. I know they say I'm overweight and need to exercise. I have done all kinds of things and nothing fixs SOB. The only thing that bothers me is when I'm asked about it people seem to say well high colestrol and being overweight is bad for you, NO $%^&! They allways figure you have blocked artteries cause your overweight and you say you have a heart condition. That bothers me. I'ts like profiling. I allways tell people who ask that I have a heart defect, this sounds better to them, they dont start with the high blood pressure and colestrol thing. I went to gnc recently and bought the "Healthy Heart" vitamins package, and guy who helped me started asking me why I needed them, and it was like here we go. But hey you know the old term, healthy people dont understand. Anyway... What is a myectomy?

    Leave a comment:


  • Eileen2345
    replied
    Re: Inclines, stairs and hills.

    Oh yes -- stairs and hills are very difficult for me. And so is walking long distances, pushing a shopping cart, rolling up a hose, picking things up off the floor, lifting, folding laundry, vacumming, even getting things off a top shelf. The list can go on for me.

    At this point I am seriously looking into getting a myectomy. I need to find out some more information first though.

    Eileen

    Leave a comment:

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