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Inclines, stairs and hills.

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  • Inclines, stairs and hills.

    Hello, is it just me or is climbing something the hardest thing you have ever done. I was in NY City last week and could walk around all day, if my feet didn't hurt, but when you add stairs or a even the slightest incline look out. Does everybody have this problem? If I make it to the top I need some time to regain my breath. I feel like such an idiot, out of shape, overweight etc. In aruba on vacation we were driving around siteseeing and came to a area were you had to get out and hike, we'll there was a small hill you had to climb, and we'll lets just say I got left behind, had to stop a couple of times for a rest. How sad that was, my poor wife, she was so worrid about me making it. Any way how many people have this problem? Thank you.
    \"When I\'m gone and people think of me... I want them to smile and laugh.\" Jason Caldwell

  • #2
    Re: Inclines, stairs and hills.

    I'd say that there are a lot of people who feel that way, but are you seeing a specialist? You might need to have better care to help with this. The people who aren't obstructed have fewer episodes of the shortness of breath you're describing.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Re: Inclines, stairs and hills.

      Yes, inclines are the worst. I do have to say, however, that I find them to be better now that my beta blockers have been optimized, and I have lost a little weight.
      Daughter of Father with HCM
      Diagnosed with HCM 1999.
      Full term pregnancy - Son born 11/01
      ICD implanted 2/03; generator replaced 2/2005 and 2/2012
      Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

      Comment


      • #4
        Re: Inclines, stairs and hills.

        Howdy cooksnj,
        I read that as Mr. Cook from Southern New Jersey – am I close? Or are you a cook who lives in Southern New Jersey? I once lived in a small town outside New Brunswick, which I think of as Southern – having come from New York.

        About your question, I had slowly increasing symptoms for many years, but they were always brushed aside – until 1985. I had my first balloon angioplasty (Heart Cath.) and a few months later I was sent to Cardiac Rehab. When I got there I saw men who had been split open with bypasses running up mountains on the treadmills, and I became excited and was hoping they would do the same for me. Unfortunately, they ‘graduated’ me when I was stuck on 4mph / 2degrees or 2mph / 4 degrees. They told me then that above that stress my heart started to do ‘funny’ things.

        Today uphill (very low incline) is very difficult, stairs are just about imposable, and I have a scooter if the distance is overly long (short by everyone else’s standards.) Of course I picked up a number of other conditions along the way, but HCM seems to have the greatest consequences – along with degenerative arthritis. I am 72 now, and have had the time to pick up a total (so far) of 16 ailments – in fact, I’m a founding member of The Malady of the Month Club.

        Be happy you can still do the things you can.
        Burt

        Comment


        • #5
          Re: Inclines, stairs and hills.

          Up until 4 years ago I had a slight problem going up hills/stairs, but it has gotten worse. A little worse every year.

          When I think of how I use to shovel snow, walk steps, hold two jobs etc. I get more angry with this disease.

          I am attributing it to CHF which has hit me hard this year. Since I've been in the hospital 2 weeks ago, I only reached my dry weight once and that was almost 1 week after my discharge.

          I have gotten to the point that I feel if the doctors couldn't help me get back to my dry weight, they said it wasn't anything I was doing, they couldn't increase my diuretics because my bp would go down very low, so I have to live with it.

          I do work, but have to take some days off because I am short of breath or sooooo tired. I do have some good days and that's when I do as much as I can to get caught up with my housework.

          I hope you start feeling better soon. There are some people that get relieve from meds, etc... Maybe that will be you.

          Take care
          Esther

          Comment


          • #6
            Re: Inclines, stairs and hills.

            Yes, this is definitely a problem. It is very difficult here where steps are everywhere. I am just thankful to be in flat Beijing, but there are still steps to cross under or over streets, steps to my apartment, steps to class, etc. etc. etc. Even getting on and off the bus is sometimes a challenge.

            This past Thursday I had to carry my laptop computer and a fairly heavy backpack by bike several blocks across campus and then up two flights of stairs. By the time I got to the classroom, I had to sit down, but there was no chair at the front. So I gasped for someone to get a chair and then sat there for 5 or more minutes gasping loudly for breath. You should have seen their faces. I think they thought I was going to die right then and there. I don't know how to explain ICD here, so was unable to reassure them, even if I had been able to talk. Once I got past the gasping, I was able to teach for 4 hours straight, although I sat down every chance I got. By the time I finished, I was exhausted, however, but still had to teach two more hours in the evening. I wish I could figure out how much CHF has to do with all of this, but for me it all seems to be something of a black box.

            Got to get back to grading! I teach 6 hours tomorrow at our university and then have 2-3 hours of lectures at another university in the evening.

            Rhoda

            Comment


            • #7
              Re: Inclines, stairs and hills.

              Well I'm glad it's not just me. I know I'm a little, make that alot, overweight. I've been tring to loose weight for years. When I loose ten pounds I feel so great, I coluld walk so fast. But in time it starts to even out again, weird, allmost like the heart does not want you to feel good. I'm about 5'-7" and weigh about 230. I used to weigh alot less, but I put about 5 pounds on every year. I'm glad I dont have it to bad. It can allways be worse. I need to walk more, I guess we all do. Burt I live in central nj, near McGuire AFB. Glad to hear from you. Where do you live now?
              \"When I\'m gone and people think of me... I want them to smile and laugh.\" Jason Caldwell

              Comment


              • #8
                Re: Inclines, stairs and hills.

                Hi my friend,
                Now I live in Henderson, Nevada. It’s about ten miles south east of the Las Vegas Strip.

                About the weight – I was once told by a doctor I thought was right on the money that your body tries to maintain the weight it feels most comfortable with. If you diet your body just becomes more efficient in processing the food it gets. That’s why after most people loose a few pounds they hit a plateau and stabilize at that weight. Beyond that they are actually starving themselves and the moment they fall off the wagon – for just one meal – pounds pop back on. That also accounts for the fact that about 97% of dieters find themselves weighing more then when they started within five years.

                And yet, on the other hand, it is common knowledge that Americans as a group are overweight – and that is why jogging and athletic clubs have become so popular. (For most of US I guess that would mean more walking.) But that is only part of the answer. I think the bigger part of the problem lies in what we eat. We should all be eating lots more vegetables and fruit, with a greater part of them in the raw state. (An apple is good - apple pie is bad.) We can satisfy our hunger completely, and still keep the calories down and our bodies in good shape.

                This message has been brought to you by a person who is also overweight. I am 5’ 9” and weigh in the two forties - except for now when I am packing ten pounds of water. (I never said it was easy – it’s just a complete change of life style.)
                Burt

                Comment


                • #9
                  Re: Inclines, stairs and hills.

                  Inclines, hills and steps are what told me I had HCM. I could go on flat ground all day without a problem. My ex-family doctor told me I was just out of shape.

                  Since my myectomy hills are now my strong point. I leave my wife in a cloud of dust when we are walking and we come to a hill. Now I tell her she's just out of shape. I usually wait for her at the top...


                  Tigger1
                  " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

                  Comment


                  • #10
                    Re: Inclines, stairs and hills.

                    I live in the south with all the fried chicken, hot apple pie covered in ice cream and yes, you guessed it, I'm overweight. My daughter & I had a weigh in 1 week ago & we are trying to eat better & less. Tonight we have another weigh in, we'll see how we did. In regards to the shortness of breath, I definitely have SOB. I get so embarassed because I get so SOB, of course my weight does not help matters. My husband & I are going on a bus trip in a couple of weeks to St.Louis with a church group. It is really embarrassing when the other folks are in their 60's & 70's and I give out before them, I'm ONLY 47.
                    I'm so glad to have found this site, I feel normal here!!!!
                    Sheryl
                    HOCM

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                    • #11
                      Re: Inclines, stairs and hills.

                      Many of us seem to have a similar feelings, "we are embarrassed to be SOB and symptomatic." Isn't it something how it is repeated time and time again. We seem to be appologizing for something that is truly out of our control. Some of us even go to great lengths to avoid social interactions partly because of the presentation we believe others see.

                      I am although still much improved since my surgery, still dealing with those very same symptoms. I have come to much personal reconcilliation regarding the ongoing problems and try to live quietly but with great enthusiasm and positive mind set. I have found that my being comfortable with the powerlessness of having a chonic disease gives me the power on how I face it and the control of how I respond if the occassion arises. I no longer feel it is my neccesity to justify , defend , explain it feel embarrassed or to diminish myself because I have these symptoms.

                      I have tried and still do struggle from time to time but for the most part have learned to make lemonade with the lemons that arrive at my door step. They don't always come in busshell baskets anymore on a daily basis as this disease and the symptoms fluctuate.

                      We need to come up with some clever tools to help enhance the process of dealing coping and empowering ourselves in the midst of stumbling blocks.

                      Before I was diagnosed I had to be creative . In order for me to show up at my clinic not drenched in sweat and huffing and puffing , I found an easier low graded entrance to the facility , I planned my arrival earlier, took a luggage carrier for my brief case and products and I planned multiple, mindless stops that I would pretend to be shuffling papers and talking on the cell phone or looking at my beeper so that I would not have to explain to the staff why I looked like I had just stepped from the shower fully dressed and why I was stuggling to breath. I still remember those days of self flatulation and feeling alone and that I was responsible for being not quite fit enough not quite well enough and that I had done this to myself as everyone back then was quick to assume.

                      I have found that people who are insensitive and offer the wrong advise don't need or want a lecture from me. I simply state ,"I have a genetic heart disease." They say ,"oh," turn away and don't for the most part say any more.

                      Let's all be empowered stand up tall and take the controlls back let's be proud of who we are and not for a moment let this disease discount us . T

                      We are survivors all.

                      Pam
                      Dx @ 47 with HOCM & HF:11/00
                      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                      Lead failure,replaced 12/06.
                      SF lead recall:07,extracted leads and new device 2012
                      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                      Genetic mutation 4/09, mother(d), brother, son, gene+
                      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                      Comment


                      • #12
                        Re: Inclines, stairs and hills.

                        Oh yes -- stairs and hills are very difficult for me. And so is walking long distances, pushing a shopping cart, rolling up a hose, picking things up off the floor, lifting, folding laundry, vacumming, even getting things off a top shelf. The list can go on for me.

                        At this point I am seriously looking into getting a myectomy. I need to find out some more information first though.

                        Eileen
                        49 yrs. old
                        Diagnosed at 31.
                        Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                        First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                        Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                        Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                        My brother passed away suddenly at 34 yrs old from HCM.
                        2 teenage children, ages 17 and 15.

                        Comment


                        • #13
                          Re: Inclines, stairs and hills.

                          Thank you all for responding. It is nice to feel normal here. Sorry it took me so long to get back, life gets in the way some times. I dont worry about what other people think of me. I know they say I'm overweight and need to exercise. I have done all kinds of things and nothing fixs SOB. The only thing that bothers me is when I'm asked about it people seem to say well high colestrol and being overweight is bad for you, NO $%^&! They allways figure you have blocked artteries cause your overweight and you say you have a heart condition. That bothers me. I'ts like profiling. I allways tell people who ask that I have a heart defect, this sounds better to them, they dont start with the high blood pressure and colestrol thing. I went to gnc recently and bought the "Healthy Heart" vitamins package, and guy who helped me started asking me why I needed them, and it was like here we go. But hey you know the old term, healthy people dont understand. Anyway... What is a myectomy?
                          \"When I\'m gone and people think of me... I want them to smile and laugh.\" Jason Caldwell

                          Comment


                          • #14
                            Re: Inclines, stairs and hills.

                            Hello again,
                            A couple of things.
                            When asked why I huff and puff I just say I have a genetic heart condition. This almost always shuts down another recital of all the things I’m doing wrong to myself.

                            If that doesn’t stop them I say I have sixteen known ailments - so far. At the moment I have a primary doctor, three cardiologists, a neurologist, a nephrologist, an endocrinologist, an ophthalmologist, a gastroenterologist, an audiologist, and I may have to get another pulmonologist. Now just exactly which of these specialists don’t know as much about their specialty as you do?

                            Only once has somebody persisted beyond that second barrage. I looked at him, smiled and said, “You really are a piece of work aren’t you?” I then turned and began speaking with somebody else. I was half expecting to get grabbed from behind, and was ready to just fall down on the floor. (My most effective defense.)

                            OK, OK. Steps two and three have never been used in real life, - but they are fun to contemplate. The recital of my current doctors is true enough though. My old pulmonologist packed up and left town, and I haven’t felt the need to get another. After all, we all know the cause of our SOB. Besides I just had a pulmonological test to go along with my stress test just a couple of weeks ago, and I was fine.

                            By the way, one of those sixteen conditions I have IS blocked arteries in my heart – and the rest of my body too. (Some days you just can’t win.)

                            I don’t know why, but I keep getting vibes when I read your postings that you live in Somerset, NJ. I know you said you are in central NJ, which narrows down the field quite a bit – and by all means do not answer if you don’t feel like it (I really don’t want to pry) – I’m just a nosey nut. I like to picture where my friends are, and try to get them to post a picture in their Avatar so we can all see who we are talking to. Also, is your name or occupation cook? – and what’s your first name. (I am nosey – right?)

                            The week-end is over, so have another great week.
                            Burt

                            Comment


                            • #15
                              Re: Inclines, stairs and hills.

                              Hello again,
                              A couple of things.
                              When asked why I huff and puff I just say I have a genetic heart condition. This almost always shuts down another recital of all the things I’m doing wrong to myself.

                              If that doesn’t stop them I say I have sixteen known ailments - so far. At the moment I have a primary doctor, three cardiologists, a neurologist, a nephrologist, an endocrinologist, an ophthalmologist, a gastroenterologist, an audiologist, and I may have to get another pulmonologist. Now just exactly which of these specialists don’t know as much about their specialty as you do?

                              Only once has somebody persisted beyond that second barrage. I looked at him, smiled and said, “You really are a piece of work aren’t you?” I then turned and began speaking with somebody else. I was half expecting to get grabbed from behind, and was ready to just fall down on the floor. (My most effective defense.)

                              OK, OK. Steps two and three have never been used in real life, - but they are fun to contemplate. The recital of my current doctors is true enough though. My old pulmonologist packed up and left town, and I haven’t felt the need to get another. After all, we all know the cause of our SOB. Besides I just had a pulmonological test to go along with my stress test just a couple of weeks ago, and I was fine.

                              By the way, one of those sixteen conditions I have IS blocked arteries in my heart – and the rest of my body too. (Some days you just can’t win.)

                              I don’t know why, but I keep getting vibes when I read your postings that you live in Somerset, NJ. I know you said you are in central NJ, which narrows down the field quite a bit – and by all means do not answer if you don’t feel like it (I really don’t want to pry) – I’m just a nosey nut. I like to picture where my friends are, and try to get them to post a picture in their Avatar so we can all see who we are talking to. Also, is your name or occupation cook? – and what’s your first name. (I am nosey – right?)

                              The week-end is over, so have another great week.
                              Burt

                              Comment

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