If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you
If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
Announcement
Collapse
No announcement yet.
Good News!!!!!!!
Collapse
About the Author
Collapse
Born In Tulsa Oklahoma and have a wonderful husband and 2 great children
Find out more about shirleymahoney
I was approved through the insurance company to go to Minn for consult and treatment, Dr. Gilligan did it, by calling them personally and talking to their board doctor, so keep your fingers crossed for me
Shirley
Diagnosed 2003
Myectomy 2-23-2004
Husband: Ken
Son: John diagnosed 2004
Daughter: Janet (free of HCM)
Shirley, I'm glad this didn't take any longer. I know it must seem like forever to you. Hang in there, hopefully, you'll soon have some answers and a definite plan. Linda
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
I am SOOO glad that Dr. Gilligan did this for you and that it worked. I will continue to pray that you get alternatives that really work to improve your life as well as prolonging it! Have a wonderful trip.
Hey Shirley,
We’ve talked about this a few times already, so you know how I feel about you and the trip. I hope you finally get a definitive answer and are able to move forward in your treatment.
I’m just yammering away until I can ask the question I really want to ask. Shirley, I live in the dessert where we get a light dusting of snow about once every six years, and it is gone in minutes. When you come back from Minnesota, do you think you can pick up some snowballs for me? I don’t want those machine made imitations – I want the authentic hand made kind. I’m not quite sure how you will be able to get it to me, but you’ve got almost four weeks to figure that one out.
Remember, you have to conserve your energy for the trip, so no more sweeping up the neighborhood. Stay well, and we’ll be talking - -
Burt
Burt
If you want some snow, I live in the right place...Minnesota. I am willing to donate it.
Depending on when you get here, believe it or not, we don't have snow YET, but it has been known to arrive around Halloween and spoil all the fun those little goblins have planned.
Shirley
Let me know when you'll be here. I don't drive to Rochester, but I'm sure I can find a reason to visit or maybe I can give you a ring. If you'd like my phone number just in case, pm me and I will give it to you.
Contact St. Mary's Hospital or the Mayo Clinic (depending where you will be) for knowledge of hotels, restaurants, etc. They have a nice selection of hotels right across from St. Mary's Hospital/Mayo Clinic. When I am in the hospital, my hubby finds something to eat with no problem and he is very fussy.
I hope everything falls into place for you. I'd say "you had enough".
Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
So if you are capable of thought then you are capable of great things
Good luck and stay well.
Glen
As far as I know it will be in minneapolis, but thanks for the offer i am leaving all that mess up to my hubby to take care of, it is going to be enough for me to just travel, hope you are doing well still
Shirley
Diagnosed 2003
Myectomy 2-23-2004
Husband: Ken
Son: John diagnosed 2004
Daughter: Janet (free of HCM)
Good luck Shirley. I will be pulling for you. You are headed to a good facility and they will surely be able to help you. I will keep you in my prayers.
Midge
Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
ICD&Pacemaker 1996
Heart transplant March 19, 2004 @ Mayo Rochester
Mom of Kaye.
Comment