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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • #1

    Good News!!!!!!!

    I was approved through the insurance company to go to Minn for consult and treatment, Dr. Gilligan did it, by calling them personally and talking to their board doctor, so keep your fingers crossed for me

    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9
    Tags: None
  • #2
    Re: Good News!!!!!!!

    Shirley, I'm glad this didn't take any longer. I know it must seem like forever to you. Hang in there, hopefully, you'll soon have some answers and a definite plan. Linda

    Comment

    • #3
      Re: Good News!!!!!!!





      YEH SHIRLEY!

      PACK THOSE BAGS AND HEAD WEST!

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment

      • #4
        Re: Good News!!!!!!!

        THAT'S GREAT!!!!

        Let me.........WELCOME YOU TO MINNESOTA! .......I'm here too

        It's about time you get positive news. I am so happy for you.
        Esther

        Comment

        • #5
          Re: Good News!!!!!!!

          Shirley,

          I am SOOO glad that Dr. Gilligan did this for you and that it worked. I will continue to pray that you get alternatives that really work to improve your life as well as prolonging it! Have a wonderful trip.

          Rhoda

          Comment

          • #6
            Re: Good News!!!!!!!

            Hey Shirley,
            We’ve talked about this a few times already, so you know how I feel about you and the trip. I hope you finally get a definitive answer and are able to move forward in your treatment.

            I’m just yammering away until I can ask the question I really want to ask. Shirley, I live in the dessert where we get a light dusting of snow about once every six years, and it is gone in minutes. When you come back from Minnesota, do you think you can pick up some snowballs for me? I don’t want those machine made imitations – I want the authentic hand made kind. I’m not quite sure how you will be able to get it to me, but you’ve got almost four weeks to figure that one out.

            Remember, you have to conserve your energy for the trip, so no more sweeping up the neighborhood. Stay well, and we’ll be talking - -
            Burt

            Comment

            • #7
              Re: Good News!!!!!!!

              Burt
              If you want some snow, I live in the right place...Minnesota. I am willing to donate it.
              Depending on when you get here, believe it or not, we don't have snow YET, but it has been known to arrive around Halloween and spoil all the fun those little goblins have planned.

              Shirley
              Let me know when you'll be here. I don't drive to Rochester, but I'm sure I can find a reason to visit or maybe I can give you a ring. If you'd like my phone number just in case, pm me and I will give it to you.

              Contact St. Mary's Hospital or the Mayo Clinic (depending where you will be) for knowledge of hotels, restaurants, etc. They have a nice selection of hotels right across from St. Mary's Hospital/Mayo Clinic. When I am in the hospital, my hubby finds something to eat with no problem and he is very fussy.

              I hope everything falls into place for you. I'd say "you had enough".
              Esther

              Comment

              • #8
                Re: Good News!!!!!!!

                Great news Shirley. Keep the ball rolling. Good luck...


                Tigger1
                " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

                Comment

                • #9
                  Re: Good News!!!!!!!

                  Good luck Shirley - I am very happy for you and with God's guidance and blessings you will get positive results.

                  Shirls
                  \"With God all things are possible - remember He is still in the miracle business - just trust Him and keep the Faith\"

                  Comment

                  • #10
                    Re: Good News!!!!!!!

                    This is great news for you Shirley and ready in a timely fashion. Step one completed. Now the wait. Hang in there girl.

                    Pam
                    Dx @ 47 with HOCM & HF:11/00
                    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                    Lead failure,replaced 12/06.
                    SF lead recall:07,extracted leads and new device 2012
                    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                    Genetic mutation 4/09, mother(d), brother, son, gene+
                    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                    Comment

                    • #11
                      Re: Good News!!!!!!!

                      Great news Shirley, Good Luck.
                      Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                      So if you are capable of thought then you are capable of great things
                      Good luck and stay well.
                      Glen

                      Comment

                      • #12
                        Re: Good News!!!!!!!

                        Shirley
                        I'm happy for you, that you can move in the direction of great treatment!

                        If you're going to Rochester, I've been there twice this year & will be happy to provide input on hotels, transportation, restaurants etc.

                        Let me know if I can help, in any way.

                        RONNIE
                        RONNIE

                        Comment

                        • #13
                          Re: Good News!!!!!!!

                          Ronnie

                          As far as I know it will be in minneapolis, but thanks for the offer i am leaving all that mess up to my hubby to take care of, it is going to be enough for me to just travel, hope you are doing well still

                          Shirley
                          Diagnosed 2003
                          Myectomy 2-23-2004
                          Husband: Ken
                          Son: John diagnosed 2004
                          Daughter: Janet (free of HCM)

                          Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                          Comment

                          • #14
                            Re: Good News!!!!!!!

                            Good luck Shirley. I will be pulling for you. You are headed to a good facility and they will surely be able to help you. I will keep you in my prayers.
                            Midge

                            Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
                            ICD&Pacemaker 1996
                            Heart transplant March 19, 2004 @ Mayo Rochester
                            Mom of Kaye.

                            Comment

                            • #15
                              Re: Good News!!!!!!!

                              Shirley I am sooooo happy for you. At least one of us has gotten some good news.

                              Also, thank you so very much for calling me in the hospital it meant the world to me. Same for you Grandpa Burt.

                              Mary S.

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