If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Now Whatís Burt Up To?

Collapse

About the Author

Collapse

Burton Borrok Find out more about Burton Borrok
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Now Whatís Burt Up To?

    Hi folks,
    This is going to be short because Iím really pooped. Got back from California this afternoon and have been playing catch-up the rest of the evening.

    I saw the specialist in LA yesterday, after having an echo. I have 14 other diagnoses, besides being diagnosed with HCM last New Years, so I tend to present a complex picture to the doctors. Back then I looked very much like I had HCM, but now I look more like I have Hypertensive Cardio Myopathy.

    Iím going back to LA next week to have a cardio pulmonary stress test on Wednesday to see how much my lungs are involved (if at all) and how much my heart is involved. Hopefully a clearer picture will be available then.

    I may in fact not have HCM Ė (How about that.) I now have a lot of research and reading about Hypertensive CM to see how well that glove fits me. Iíve made a lot of friends here, who I will miss a lot, if you guys feel it would not be cricket for me to continue posting - if in fact I do not have HCM. We donít have a definitive answer as yet, but I am hoping it is Hypertensive rather then Hypertrophic - and I would like to know how you guys feel about my continuing to post here - if thatís the way it turns out.

    Lisa, this website is your baby, so I specifically would like your input on this question along with the other people who have put up with me to date. I will be guided by your responses Ė along with the doctorís final diagnosis of course.
    Burt

  • #2
    Re: Now Whatís Burt Up To?

    Hi, Burt,

    The whole question of whether there really is a hypertension cardiomyopathy apart from HCM seems to me to be up for grabs as I read about it. Initially I think that is what they thought I had, but now they are saying not. So, I would make sure they don't go for the easy one (hypertension) and miss the far more common one (HCM). Perhaps the distinction is not so important for you, but could be quite important for your kids and grandkids, since it could give them a false sense of security.

    As far as whether you are welcome here or not, why what would we do without your sense of humor, your research, your statistics, and yourself?!?

    Rhoda

    Comment


    • #3
      Re: Now Whatís Burt Up To?

      Burt.
      You can't get away from us that easy. My vote is for you to stick around and bring whatever heart you have along.

      Peace,
      Leon
      God Squad co-moderator
      Nothing is as gentle as strength and nothing is as strong as gentleness

      Comment


      • #4
        Re: Now Whatís Burt Up To?

        Hello Burt:

        And I second that - whatever you have does not give you an excuse to dump us. We need to have you around - especially me - you would always say something that would bring a smile on my down days - we need you around.

        Have a great day!

        Shirls_6
        \"With God all things are possible - remember He is still in the miracle business - just trust Him and keep the Faith\"

        Comment


        • #5
          Re: Now Whatís Burt Up To?

          Shoot, stick around. We have a lot of people here who don't have HCM, me included.

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

          Comment


          • #6
            Re: Now Whatís Burt Up To?

            Burt, I don't care what you have, your insight, humour, stories and advice will always be welcome for me.
            You meet someone on the golf coarse, become very good friends because you have something in common, but then they cannot play golf anymore for one reason or another, you don't suddenly end the friendship.
            Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
            So if you are capable of thought then you are capable of great things
            Good luck and stay well.
            Glen

            Comment


            • #7
              Re: Now Whatís Burt Up To?

              Burt, I can just hear "grandaughter" Mary's teeth grinding at the thought of missing you. You've learned a lot about HCM and have so much to offer to those others who are looking for info. I hope you soon get some real good answers as to what's really going on with you. Linda

              Comment


              • #8
                Re: Now Whatís Burt Up To?

                Burton

                It is a cadiomyopathy, so what's the problem here....i have HCM but it looks like Restricted does that mean i don't have HCM


                Of course you are welcomed here, you have learned alot about this disease and you could help other people Take Care

                Shirley
                Diagnosed 2003
                Myectomy 2-23-2004
                Husband: Ken
                Son: John diagnosed 2004
                Daughter: Janet (free of HCM)

                Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                Comment


                • #9
                  Re: Now Whatís Burt Up To?

                  If you claim it is my party and I can choose who stays and goes.... BURT STAYS!! Hypertesive or hypertrophic you add a great deal to the discussion and you would be missed!!

                  STICK WITH US!!
                  Lisa
                  Knowledge is power ... Stay informed!
                  YOU can make a difference - all you have to do is try!

                  Dx age 12 current age 46 and counting!
                  lost: 5 family members to HCM (SCD, Stroke, CHF)
                  Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                  Therapy - ICD (implanted 97, 01, 04 and 11, medication
                  Currently not obstructed
                  Complications - unnecessary pacemaker and stroke (unrelated to each other)

                  Comment


                  • #10
                    Re: Now Whatís Burt Up To?

                    Wow! I am deeply touched. I said it before and Iíll say it again, I love you guys.

                    I really donít know which disease is better Ė easiest to control Ė and Iím not particularly thrilled with the choice, but Iím seeing an expert, so Iím hoping for a definitive answer one way or the other. Frankly, from what Iíve read so far, and I have just brushed the surface, they appear to have a lot in common. Not so much in the genetic or structural aspects of the disease, but in the consequences and/or effects on the owner.

                    I feel like an Eskimo whose house is on fire and itís forty below outside. Donít know which way to run. But itís nice to know I have a home with you guys.
                    Burt

                    Comment


                    • #11
                      Re: Now Whatís Burt Up To?

                      Dear Mr. Borrok,

                      Although your dedication and hard work have been greatly appreciated, it has recently come to our attention that you have been in our employ under false pretenses. At this time, we would ask that you please clean out your desk and turn in your keys to the security guard. Furthermore, regarding your membership in the cookie of the month club that you received as a Christmas bonus last year... forget about it.

                      Should you require them, references will be made available to the Online Forum of your choice.

                      Regards,

                      Harry C. Myopathy
                      V.P Personnel Relations
                      "Some days you're the dog... some days you're the hydrant."

                      Comment


                      • #12
                        Re: Now Whatís Burt Up To?

                        Jim

                        We are in a great mood today huh :P :P :P

                        Shirley
                        Diagnosed 2003
                        Myectomy 2-23-2004
                        Husband: Ken
                        Son: John diagnosed 2004
                        Daughter: Janet (free of HCM)

                        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                        Comment


                        • #13
                          Re: Now Whatís Burt Up To?

                          Burt, I can't imagine any place you've been, your presence not welcomed! You've been my "laugh a day", for some time - PLEASE PLEASE STAY!

                          A correct dx would be great, for you, if they can provide more relief & some added mobility.

                          Happy & Healthy New Year
                          RONNIE

                          Comment


                          • #14
                            Re: Now Whatís Burt Up To?

                            Burt,
                            It's the cow's tail here just to tell you , ya ain't gettin off that easy. Think ya gonna run out on us folk? I DON'T THINK SO MISTA. Just stop looking for a way out, if we wanted you to leave then we'd tell you. You are with us for life buddy no turning around on this commitment. So there I said it . So please stay Burt Besides who would be the oldest daily contributor if you left, huh ? LOL
                            Pam
                            Dx @ 47 with HOCM & HF:11/00
                            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                            Lead failure,replaced 12/06.
                            SF lead recall:07,extracted leads and new device 2012
                            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                            Genetic mutation 4/09, mother(d), brother, son, gene+
                            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                            Comment


                            • #15
                              Re: Now Whatís Burt Up To?

                              Burt, I am an ex-HCM'er and I still post no one said I can't. I too would miss your wit and humor. No matter what you have you better keep up your posts. Good luck on finding out what you do have.
                              Midge

                              Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
                              ICD&Pacemaker 1996
                              Heart transplant March 19, 2004 @ Mayo Rochester
                              Mom of Kaye.

                              Comment

                              Today's Birthdays

                              Collapse

                              Working...
                              X