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cynthiaG Find out more about cynthiaG
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  • Counseling...

    I was just wondering if anyone talks to a professional (other than your doctor) about living with a chronic illness. I have times when I feel like I have to sort things out and cope
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson

  • #2
    Re: Counseling...


    Everyone needs to at one point, if you feel you need to talk to someone call your insurance co. they will point you in the right direction i have talked in the past and still do from time to time, if it will make you feel better go for it

    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


    • #3
      Re: Counseling...

      I think a lot of people with chronic illness feel that way from time to time. It's perfectly all right to consult a counselor when you feel that way.


      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.


      • #4
        Re: Counseling...

        It can be a wonderful option for you or others to look into. We need HELP sometimes to deal with the stress of living with a chronic illness.

        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


        • #5
          Re: Counseling...

          Hi Cynthia,

          I have too much expierence with chronic illness. Most drs. call me theiir medical nightmare. In fact since I have been dx with HCM their nightmare got worse. I also have chronic pain due to arthritis and other conditions. So they don't know how to treat my chronic pain. To make it worse I don't like to take narcotics. Now you know why they call me a nightmare.

          When it gets to tough to deal with get counseling. I learned to counsel myself by diverting my attention ie: reading meditation tapes. When it gets to tough I have no problem getting professional intervention.

          The good news is you are never alone. That is what helps me the most.
          Knowing help is just a phone call away.


          • #6
            Re: Counseling...

            Hey Cynthia,
            I agree with everyone else on this one , if you are having a difficult time then by all means what do you have to lose.

            Some advise from my experience , if you get someone and you just don't jive with them for whatever reason, don't be timid about finding a new one. They are people just like us but with experience in counseling. Their personalities vary and it is not uncommon to go through a few before finding one that fits. Hopefully you will have a good fit right away. Remember you are going there to help you feel better and come to terms with your chronic illness, There are some great facilitators to this process out in the communities where we live.

            I am a strong believer in utilization of such individuals so that we get objectivity and so that we do not burn our friends and family out. Our friends and families love us, support us and want to help us. However ,they do not always understand us on a daily basis as our symptoms often fluctuate and our moods with them. We can't fix us and for sure know they can't fix us .

            If it is right for you then go for it.
            Best Wishes.
            Dx @ 47 with HOCM & HF:11/00
            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
            Lead failure,replaced 12/06.
            SF lead recall:07,extracted leads and new device 2012
            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
            Genetic mutation 4/09, mother(d), brother, son, gene+
            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


            • #7
              Re: Counseling...

              I have been to a counselor. It has been helpful. My counselor is the one

              who recomended me to find a message board such as this one. My life

              has become a little chaotic since this all began. I dont know what I would

              of done if I hadnt gotten some counseling. Im currently taking meds for

              depression. Im learning coping skills. I dont always apply them. Most of

              the time I do.



              • #8
                Re: Counseling...

                Roses are Red,
                Violets are Blue
                I’m Schizophrenic - - -
                And so am I.

                I once went to a psychiatrist with a giant ego problem. He cured me - - - and now I’m the nicest guy you could ever meet.

                Ha-ha, ha-ha. OK, if we break a bone we go out and get a cast, if we cut ourselves we bandage it – why, if we bruise our minds, do we not run right out and get help for that too? It’s the logical thing to do. G-d gave us life, but it’s up to us to make that life worth living. You, who have sought help over a rough spot in the road – I salute your intelligence.


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