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cynthiaG Find out more about cynthiaG
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  • in AFIB

    for those of you who go into AFIB, what do you do? any suggestions ? just sit down and put your feet up? I hate this..sorry, it just gets to me
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson

  • #2
    Re: in AFIB

    This is very specific to the individual - some people like the feet up approach - others like to sit uprite in a chair. Some people do not really feel any difference no matter what they do.

    Good luck - BIG HUG.

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Re: in AFIB

      Me again Cynthia,

      Been in and out of A-Fib since August 6. It stinks. First time being in A-Fib too.

      That is why I am learning to not do anything. Rest is all I could do. I am just totally exhausted all the time. It is like someone just zaps my energy.

      Resting just aggravates my arthritis so I can't win for losing. Oh well the cross life has given me to bear. I just try to do it with a smile and a joke.

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      • #4
        Re: in AFIB

        Cynthia,

        I'm sorry to hear that you continue to wrestle with those A-Fib issues. I wish i had some advice for you. Hang in there and i'll be thinking about ya.

        Virginia, you have a great attitude!

        Jim
        "Some days you're the dog... some days you're the hydrant."

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        • #5
          Re: in AFIB

          Cynthia ,
          Sorry too for you having to deal with a-fib ( the non stop dancin marathoner- I named it that ). I had such a hard time with it also and found I had to rest like you said , feet up and read or watch TV to distract myself. It was so exhausting. I know it varies with everyone. When I had it I had that Catherine Hepburn head shake back and forth and I felt like people could see it. I was glad it was only a short duration.
          Please feel better and I am thinking of you.
          Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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          • #6
            Re: in AFIB

            Thanks Jim for the compliment because attitude is all I am good at lately.......

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            • #7
              Re: in AFIB

              Virginia - DO NOT UNDER ESTIMATE YOURSELF! and dont you be fooled Virginia is one special lady!



              Good night all!
              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment


              • #8
                Re: in AFIB

                Hi Lisa,

                You too, thanks for the compliment. Boy I am going to have a swollen head hanging here.

                Going in Monday (20th) to have a moment with God ..... you know to test the unit. Dr. M. said to do it so I am. Hopefully all will go well then I can plan my next trip to HCM center.

                Going crazy going in and out of A-Fib but nothing to do but deal with it. It really is giving me an attitude though. Thank goodness I am from THE BRONX.....

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