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pvcs, blood pressure,black-outs??????????????????

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  • pvcs, blood pressure,black-outs??????????????????

    I have been feeling awful bad lately and I wondered if any of you would have any input on what I am feeling. Really I have been feeling rough for a while (more than a few months) and I have recently been diagnosed hyperthyriod and I am being treated and as of last blood draws I have shown that my hormone levels are leveling out unless of coarse I had a false reading, so anyways here we go... I have been having alot of pvcs and on last friday it was so bad the number of pvcs to normal heart beats in a hour was ungodly, I had alot of pressure on my chest, couldn't seem to breath, I felt like I couldn't get any air and those beats went on for a hour at least before they started slowing down, my husband saaid it felt like my pulse kept jumping and he said my skin was colder than normal and did feel light headed and after 30- 50 minutes I was so worn out and tired, I felt like I ran a marathon and it was 7 am and just had been up for a hour anyways. Also I am getting headaches following these beats. I asked my reg. family doc about that and he agreed that it sounded like my blood pressure is being thrown off and he even planned to put a halter on me on tuesday. My husband was so afraid he stayed home with me that day. Since then I am still feeling those beats often and on sat. I was in the car at a light feeling great and all the sudden I lost my eye sight, everything just dimmed out quickly and came back just the same, as it happened I felt like my heart was beating slow and I thought for sure I was gonna black out. thats twice in 2 weeks I have done that, but this time I completely lost eye sight. I have seen my local cardiologist a few weeks ago and he said that the halter I had worn then had shown I was having some pvcs, but go figure that day was a good day. When I have these massive pvcs I feel so sick and movement always makes me feel worse. Has anyone blacked out before or lost thier eye sight like this? and can having to many pvcs in comparison to normal beats be dangerous? Has any one felt these symtoms?
    Jen

  • #2
    Re: pvcs, blood pressure,black-outs??????????????????

    Jen,
    I am sorry to here you are not feeling well. I do not know how anyone can be absolutely sure what kind of beats they are having without being monitored by EKG. Some of the things you are describing sound pretty scary and anxiety provoking not to mention the dangerous side of it all with regards to driving.
    Even though we often feel that by the time we get to the hospital and get checked it will all stop and often times for strange reasons it does . I still believe personnally for complaints of this nature it is of immenent importance to get checked out medically.
    I do have what I feel are runs of PVC's as I have seen them on the monitor and felt them. Of even more disturbance I have had A-fib and the very symptoms that you describe here sound like what I experienced with that also. So see where the quessing and speculating and self diagnosis can be confusing?
    VERY important Jen, go get checked out and always get checked if an occurence such as this does not go away after a few seconds and persists as yours did.
    Good luck .
    Pam
    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

    Comment


    • #3
      Re: pvcs, blood pressure,black-outs??????????????????

      I do know how you feel - this sounds like your B/P is playing games with you. How is your hydration level? I would discuss this with Dr. Lever.

      Take care,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Re: pvcs, blood pressure,black-outs??????????????????

        Lisa, my hydration levels should be good I drink a lot of water and other fluids and I eat a very heart healthy diet. I think its my blood pressure too. I have made a appt. with my local cardiologist as of now, but have not yet called Dr. Lever, I will do so tomarrow. Being I have made an appt. with the local doctor should I still call him?
        Jen

        Comment


        • #5
          Re: pvcs, blood pressure,black-outs??????????????????

          Jen, Sounds like you're having significant symptoms. Yes, I'd call the doctor and update him. If the symptoms become prolonged or severe, don't hesitate to use 911. Hope you're feeling better by now. Linda

          Comment


          • #6
            Re: pvcs, blood pressure,black-outs??????????????????

            I aplogize for the length, I got to the end and realized how long my story was. I hope a few of you have the time to read it and let me know your thoughts.
            I know how you feel. I have spent most of today in tears, because I feel like all of my symptoms must be in my head.
            I am 35 and female, I was diagnosed with HCMA in 1991. I did have problematic symptoms for the first year or two, but for some reason seemed to get much better. The only time I had problems was with exercise. Well, I had a gastric bypass in 2001 and lost 140 pounds and felt great for the first 1 1/2 years, then in March of 2003 I began to have heart trouble again. I went to the county hospital with severe chest pains and they could not keep my blood pressure up (it sat mostly around 63/38). They did all of the normal tests, stress tests, echo and EKG. After I convinced them that they could not give me Nitro, they put me on Toprol (I argued over the Toprol, I just couldn't understand why they would put me on a blood pressure lowering medication when my blood pressure was already so low, but what do I know, I am not a doctor) and refused to let me leave until my heart rate came above 60. On the 9th day it came up and they let me leave the next day.
            I went back to the hospital 5 days later and was sent home, being told that there was no explanation for my chest pains and there was nothing they could do for me.
            In July of last year, I saw the cardiologist from the county hospital for the first time and although he never touched me or listened to my heart, he suggested that I lessen the stress in my life. He also said that the heart had grown minimally in the last few years and should not be a cosideration in my symptoms.
            Oh, wait, it gets even better.
            In September of last year, I went to the emergency room when my left side began to weaken and my face had fallen and I had also began to limp. They fist said I must have had a mild heart attack, then they said it must have been a stroke and finally declared it must be Bells Palsey. I was kept for another 7 days, to be released and being told that I must have Bells Palsey, because the Echo, MRI and Cat Scan had come back clean. Of course, I knew they were wrong, Bells Palsey only affects the face. So, after a few more months of my left side being this way, my GP
            said it must be MS.
            So the left side took the focus off of my heart. Mind you, all of this time I am still having chest pains with physical and mental stress, am so easily tired I can not even vaccuum the floor. I had not been able to work since all of this started in March and I was miserable.
            So, off I went to the neurologist. He said he was almost positive I had MS. Well, you guess it, the MRI and Spinal tap showed no leisions and although the EMG showed significant muscle strenght loss on the left side, it couldn't possible be MS. He said he had done every blood test known to man and they all were negative. So, of course it must be nerve damage. Fine, what ever, but I still feel horrible.
            I finally got insurance and got a referral to a real cardiologist last week. I was thrilled, someone was finally going to help me. I began to have concerns immediately. He said things like, "I hear a slight murmur, but nothing I would be overly concerned about." "What do you feel is causing your low blood pressure, fatigue, dizziness, chest pains and blackouts?" I told him it was my understanding that my heart was causing all of this. I became immediately uncomfortable with him. I tried to talk to him about my left side, because it seemed to get worse when I had mental for physical stress, just like my heart. And that it couldn't possibly be Nerve Damage, because it got better and worse, but never completely left. Now, get this. He said "Why are you taking the Toprol?" Well, because I was told to take it. He said I didn't have to take anything I didn't want to and if I wanted to quit taking it I could and he thought I should. He kind of patted me on the head, gave me a holter monitor for the next day and scheduled another echo.
            Okay, here is where all of this is going. No one seems particulary worried about my blood pressure. I always assumed my blood pressure was due to my heart. Yesterday, while shopping, I became so tired and disoriented that my husband had to hold me up to get me to the car. While on the way home, he became very concerned, because he couldn't wake me up. When I finally answered him and confirmed that I was not dead, he asked if I wanted to go to the hospital. I said of course not, (after all what would they do for me?) take me home. I called my new GP today and he said to speak with the cardiologist, that he could not do anything for me. So, I called the cardiologist. I explained to him what had happened yesterday and that when I got home, my blood pressure was 71/47 and should I go to the hospital if it happens again. He said if you feel you need medical attention you should go to the hospital, but was not concerned one bit about my blood pressure being so low. My God, I couldn't walk, couldn't talk and was barely conscious...why didn't anyone care?
            So, here I sit, as I have so many times before...asking myself "is this all in my head, have I found a way to create these symptoms? and if not, why doesn't anyone care?" My left side is so obvious that there is something wrong, when I get so tired I fall down (not sure how I can be faking that), but maybe it all in my head as all of the doctors are making me feel.
            I just want to scream. I have talked to Laura several times and there does not seem to be a specialist in my area she can reccomend, so I feel I am stuck. I can't work, I have filed for disability, but with my court date coming up next month, I am scared they judge will say not, because my file must say I am crazy.

            Sorry for the long story, but I identified with you. Even though our stories are not the same, I have been struggling with feeling awful for the last 1 1/2 years, with no relief.

            Comment


            • #7
              Re: pvcs, blood pressure,black-outs??????????????????

              Jen,
              I had a defibrillator implant in July. On Aug. 6, I started getting tunnel vision (like losing my eyesight) and my heart was going crazy.That sent me to the emergency room. The ER doctor said the wire could be aggravating my heart and I was in A-Fib.

              Needless to say I am out of A-fib for the moment but I am having a tremendous amount of extra heartbeats. To the point my dr. called Medtronics to see what the heck he was seeing on the data from the defibrillator.

              The data said I had 57 v-tachs but luckidly the defib did not fire. That would have been a shocking expierence

              I know how you feel. I too have hyperthyroid, which contributes to the fatigue.

              If you feel uncomfortable go to the er, when it is happening. You see when I went to my cardiologist on Sept. 3, he finally said the wire might be aggravating my heart and in fact might have to come out. (wire for the pacemaker) Gee I was told that on August 6th by an er doctor.

              It is a very nerve racking and uncomfortable feeling. I get lightheaded and dizzy. So when they get really out of control I just sit quietly and tell everyone where to go that seems to help. (sitting quietly)

              The worse part is this has been daily and I too am getting headaches. The dr. thinks it is because they have increased my beta blocker. I don't agree. I think it is because I get very stressed when the beats go crazy and then my heart starts flip flopping. Then comes headache. The fatigue is unbelievable, but I have many conditions contributing to the fatigue.

              I hope you feel better. I know it is scary. I am afraid to drive and won't when this is going on.
              Hope you feel better.

              Comment


              • #8
                Re: pvcs, blood pressure,black-outs??????????????????

                Dear Rene,
                Don't appologize for the length of your posts; take a look at some of mine You have a story to tell and we will all read it.
                First of all welcome to the HCMA where you will find lots of information ,emotional support and understanding, and help to guide you through the maze of often confusing data.
                A call to Lisa Salberg; number at the bottom of the page is a beginning step .You said you talked to Laura , do you mean Lisa? Has it been awhile since you talked to her? Things change on a regular basis so maybe another call to her is in order. Meds change and treatment options also. I do not know where you live is it Ok for you to share this general info with us?
                Don't worry, I hardly think all these very founded appearing symptoms could have been created in your head.
                You are correct we are all different but have a certain amount of overlay of signs , symptoms, meds, treatments and conditions. However you do appear to have a few things that need to be sorted out. Having specialists who evaluate us with care , consideration, respect and validation can and does make all the difference . This fact is absolutely true. Athough it sadly occurs too often , we should never have medical information and evaluation that leaves us with unanswered questions and feeling like we have an active imagination.
                Please take some time to read as much as you can here , ask all the questions you want and know we are here to help.
                If you are satisfied and have all the info from Lisa then I ask you to consider that a trip to a specialist will be money well spent.
                Best wishes and I hope to hear more from you.
                Pam
                Dx @ 47 with HOCM & HF:11/00
                Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                Lead failure,replaced 12/06.
                SF lead recall:07,extracted leads and new device 2012
                [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                Genetic mutation 4/09, mother(d), brother, son, gene+
                Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                Comment


                • #9
                  Re: pvcs, blood pressure,black-outs??????????????????

                  Rene
                  You have certainly had a rough time! A lot of misdiagnosis. Have you been diagnosed with HCM? 'A firm dx would certainly move you in the right direction for proper treatment & some needed "peace of mind". I would call Lisa for a referral & then use it. Very few of us are fortunate enough to live within even a few hours of a major HCM Center, but that is proably your only solution. Most of us, even after proper dx & treatment, eventually end up having to fly/drive to see a specialist. That may be your only option. Where do you live?
                  Please call Lisa again & follow thru - what do you have to loose? You will win, win & get your life back
                  GOOD LUCK
                  RONNIE

                  Comment


                  • #10
                    Re: pvcs, blood pressure,black-outs??????????????????

                    Hi all, I went to my local cardiologist today and I had my ICD interagated and just then I went into atrail fib. and found out that's what has been causing my blood pressure to fall and he said that he is shocked that I haven't fell or collapsed by now from the atrial fib/lbp. and thats what caused me to lose my eye sight for a minute. the doctor did make some changes to my meds. he is putting me back on the pacerone along with a lower dose of sotolol and holding my lasix and potassium for a few days just to be careful that I don't dehydrate. and He said I will have to deal with thses heart beats for the next week, I think I can do that and I hope I feel better soon.
                    Jen

                    Comment


                    • #11
                      Re: pvcs, blood pressure,black-outs??????????????????

                      Jen, I'm glad you got some solid answers today, now let's hope the meds get things under control quickly. Rene, please call Lisa and find a specialist - you need to feel better. Linda

                      Comment


                      • #12
                        Re: pvcs, blood pressure,black-outs??????????????????

                        for those who were so helpful and replied to my post...thank you very much. I did say I spoke with Laura when I meant Lisa, and I guess it has been a while. I am in Texas. After much consideration, I spoke with my husband and he is going to take some of his vacation time in October to take me up to the Mayo clinic. That is if I can get my GP to refer me, haven't quite figured out how to do that, but I hope he will refer me.

                        Thank you all again, and I will call Lisa tomorrow so that she can give me the information again.

                        Comment


                        • #13
                          Re: pvcs, blood pressure,black-outs??????????????????

                          Jen,

                          So sorry you're having such a rough time of it. I can now say that I know that a-fib is not fun.

                          Keep your chin up. I hope your Dr. helps you get stabilized.

                          Debbie

                          Comment


                          • #14
                            Re: pvcs, blood pressure,black-outs??????????????????

                            Hey Jen,
                            Did I say it sounded very familiar to the a-fib I have had. There was too much familiarity to what I have felt when i was in it. When you described it all i could think of is that dance marathoner that came to town and wouldn't leave me alone . He wanted to dance and dance and dance. .When they booted him out with the cardioversion , I told him," Don't you ever come knocking at my door again." I had a very high rate of a-fib and I HATED IT.
                            Hope all continues to improve.
                            Pam
                            Dx @ 47 with HOCM & HF:11/00
                            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                            Lead failure,replaced 12/06.
                            SF lead recall:07,extracted leads and new device 2012
                            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                            Genetic mutation 4/09, mother(d), brother, son, gene+
                            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                            Comment


                            • #15
                              Re: pvcs, blood pressure,black-outs??????????????????

                              Rene,
                              So glad you will call Lisa and that will be a very necessary and beneficial vacation for you.
                              If you have questions about the process of referral and such ,just ask away. Many have input ready for you.
                              Keep us posted.
                              Pam
                              Dx @ 47 with HOCM & HF:11/00
                              Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                              Lead failure,replaced 12/06.
                              SF lead recall:07,extracted leads and new device 2012
                              [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                              Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                              Genetic mutation 4/09, mother(d), brother, son, gene+
                              Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                              Comment

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