If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • Just diagnosed with this

    [Just diagnosed with this]

    Author: Martha (---.eonet.net)

    Date: 06-06-02 20:03

    A nurse friend sent me this website after I finally got back to my home after ending up in the hospital while visiting my daughter in Dallas. What a total

    shock. I've always thought I was perfectly healthy. The past few months I have

    had a problem sleeping at night with my heart racing so, then along with that, I thought I was developing asthma. Guess that sounds awfully dumb to you that

    know what this condition really is, but my doctor said I was just denying my true symptoms. I can't believe there's a group of people out there who have joined together to help each other cope with this. THANK YOU! I've been reading what everyone has said and it's so good, SO GOOD to know someone else who is

    looking through the world now, with the same outlook I have! This is a totally new thing to me so I'm going to be reading everyone's messages and listening to what you have to say. Depression was one of my first reactions. I've got to get that under control. Again, I'm so glad to have found this group. THANK YOU!

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Just diagnosed with this]

    Author: bill flanagan (204.164.62.---)

    Date: 06-06-02 20:55

    what you state is so true and from the heart. Hopefully this site will be able to assist your while you travel on the new health path. For years the medicial community was treating me for sports induced asthma. Well we have found out something else was at play. You will find not only sound advice within these screens but also comfort that others have traveled and are willing to share.

    bill

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Just diagnosed with this]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 06-06-02 21:06

    Dear Martha,

    I'm glad you found us! Please explore the rest of this web site as it has great information. There is also a patient's guide to HCM that you can order through the office.

    Lisa likes to speak with each new HCM patient in person so we can hook you up with an HCM specialist if you don't already have one. The number to call is 973-983-7429.

    Definitely read as much of the message board as you can as there is some great info here, but always feel free to post any questions here. I'm the official moderator and I check the board several times a day. If it is urgent, please call the office.

    It is normal to be depressed at first, especially since many doctors think this is a very rare and bad disease when, in fact, it is not. Most HCM patients live a full life span. all the more reason to see a specialist. The knowledge about HCM is growing every day.

    take care,

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: Just diagnosed with this]

    Author: Lisa (---.dyn.optonline.net)

    Date: 06-07-02 08:59

    WELCOME!

    I am very happy you found us and that you know you are far from alone! Take your time to get well educated and feel free to call the office any time.

    We are all here to help you learn, cope and laugh sometimes..people forget how import that it is!

    My best wishes to you!

    Lisa Salberg

    President

    HCMA

    973-983-7429
    NOTE: This is a post from the previous forum message board.

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