If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Echo help

Collapse

About the Author

Collapse

Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05
Toogoofy317
Member of 1000 Post Club!
Find out more about Toogoofy317
X
 
  • Filter
  • Time
  • Show
Clear All
new posts
    Burton Borrok
    Dearly Departed

  • Burton Borrok
    replied
    Re: Echo help

    Mary,
    Listen to your old grandpa. Go to wherever you had the echo done and ask for the raw data. If it’s still available you’ll be able to get it from them – hopefully a hospital and not the doctor’s office.

    Remember my clown cardiologist? The one before this one? Well, I had an echo done in the hospital in March and this guy (who wasn’t even my doctor at the time) wrote up his impressions of the results (worth nothing), then he destroyed all copies of the data. I could not even get it from the hospital. A total loss, and I couldn’t kill him – he wasn’t in season.

    Good luck with your quest. I hope you get the details. (I wonder how good the echocardiographer was with HCM patients.)
    Burt

    Leave a comment:

  • Lisa Salberg
    HCMA CEO and Founder

  • Lisa Salberg
    replied
    Re: Echo help

    But anyhow It said "the left ventricular ejection fraction appeared to be within normal limits with a somewhat reduced thickening of the interventricular septum. " Then it goes on to say " the interventricular septum was markedly and disproportionately hypertrophied to the other wall segments."
    Yeh that sounds fine - sounds like how many non HCM docs write about HCM - however how silly of these people to NOT post the numbers!!!
    UFFDA!


    Lisa

    Leave a comment:

  • Toogoofy317
    Member of 1000 Post Club!

  • Toogoofy317
    started a topic Echo help

    Echo help

    As per the norm here in Florida you can't get good medical detail to save your life!

    I got some of my medical records today to bring to my new/old cardiologist and to take up to Boston next month. I was going over my echo report and as per the norm their were absolutly no numbers on the report. How do you know these things without refrence points is beyond me!

    But anyhow It said "the left ventricular ejection fraction appeared to be within normal limits with a somewhat reduced thickening of the interventricular septum. " Then it goes on to say " the interventricular septum was markedly and disproportionately hypertrophied to the other wall segments." does this sound right? I just hope this isn't progressing!

    it also said there were trace mitral insufficiency and trace tricuspid insufficiency with an estimated right ventricular systolic pressure of 36mmhg.

    I would know if only they actually gave numbers. I'm a fact girl I suppose!

    Any help with this would be greatly appreciated.

    Mary S.

Today's Birthdays

Collapse

Working...
X