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Dr. appt

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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • Lisa Salberg
    replied
    Re: Dr. appt

    A second opinion is a great idea - Boston is great - but Mayo, Cleveland or Miinneapolis Heart would also be great -- just get the 2nd!!

    Lisa

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  • cynthiaG
    replied
    Re: Dr. appt

    Shirley,

    My thoughts and prayers are with you. I agree with Lisa...please get an opinion at NEMC in Boston...take care

    Leave a comment:


  • Ronnie
    replied
    Re: Dr. appt

    Shirley-

    I'm so very sorry your condition is heading to the "transplant" decision. Whatever decision you make & whenever you make it - it will be the right decision for you. I would defnitely agree with Lisa, regarding another opinion & evaluation.

    I pray you continue to have the strength & faith to continue marching. We are all here for you.

    Leave a comment:


  • Heartmans Wife
    replied
    Re: Dr. appt

    Shirley-

    Just wanted to let you know you're in my thoughts and prayers. Keep having that PMA!

    Ange

    Leave a comment:


  • shirleymahoney
    replied
    Re: Dr. appt

    Thanks for all the reply guys they mean a lot to me, Ester i have my good days and my bad days just like everyone else here, I have alot to think about , i know whatever decission is made it will be the right one for me...i'm trying to take care of myself so if i decide to have the heart transplant it will be much easier for me but thanks again everyone

    Shirley

    Leave a comment:


  • angall
    replied
    Re: Dr. appt

    Hi Shirley
    I have been reading your posts concerning your condition for quite some time. I've wanted to respond to them, but I didn't know how to put into words how I feel. First...I get angry when I think of all that you are going through. You are so very young. Second...I am so grateful that there are options for you to consider. Third..I am amazed as to how strong you are and how you can cope with all of the ups and downs you have been going through. I know some day I will have to make the same decision that you are right now. I hope I can be as strong as you.
    I keep you in my prayers.

    Leave a comment:


  • Glen Beamish
    replied
    Re: Dr. appt

    Shirley, I'm really sorry to here your news.
    You sound like your handling it as well as possible, you know you will be in all our thoughts, so stay positive and we'll all pray for a positive outcome.
    Good luck & Stay Well!

    Leave a comment:


  • Linda
    replied
    Re: Dr. appt

    Shirley, Thinking of you, sending prayers and best wishes your way. You've been such a strong force of encouragement to others and we're all here for you too. Linda

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  • Pam Alexson
    replied
    Re: Dr. appt

    Shirley , I am sorry you have to face this ,but Lisa is correct try to keep as positive and focused as possible , on the good things that will come your way. I agree an HCM Center would be a good thing at this time. . New England is only around the corner from you or up the coast anyway . You know I am thinking of you and lean on us all through these tough times . Pam

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  • Lisa Salberg
    replied
    Re: Dr. appt

    Stay positive and focus on the future my dear friend!!

    How about hitting an HCM center soon... please

    Big hugs!
    Lisa

    Leave a comment:


  • shirleymahoney
    started a topic Dr. appt

    Dr. appt

    Ok i have returned from my PCP doc and he feels i should be on the Transplant list also and i should get another opinion also he said when the time comes he will send me himself, and Dr. Gilligan's office called and wanted to know how much verapamil i was on and is thinking of increasing from the 240 mg to what ever they have not called back yet and i was also told to start wear my oxygen more then just at night, he said he thinks these headaches are from low oxygen being i'm white around my mouth and my nail brds are a little purple at times i will give more info i as i get it everyone have a great day

    Shirley

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