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Where is Burt?

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Shirls_6 Find out more about Shirls_6
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  • #16
    Re: Where is Burt?

    Burt, I hope they get you all straightened out soon and you can go home to your own bed!

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #17
      Re: Where is Burt?

      Burt!!!! We all miss you dearly and can't wait for your return. Best wishes to you and your family. Prayers for a speedy recovery.

      Pam
      It's not what you gather, but what you scatter that tells what kind of life you have lived.

      Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.

      Comment


      • #18
        Re: Where is Burt?

        Burt.....as you can see we all miss you. Hurry and get back on line with your wisdom and humor.
        You are in my prayers.
        Esther

        Comment


        • #19
          Re: Where is Burt?

          Burt,
          You are really missed when you arent here. I have never gotten to meet you in person but I look forward to reading your posts. I will be praying for you.
          You will be back and making us all laugh again soon I know .
          2.6 Septal Measurement
          ICD Aug 2010 (pushed into it over 6 abnormal beats...hate it!!!)
          "I would rather have thirty minutes of wonderful than a lifetime of nothing special"
          ~Steel Magnolia's~

          Comment


          • #20
            Re: Where is Burt?

            Burt-
            Someone as Loved as you are, needs to be back on his Feet (based on your leg cramps, I do mean "on your feet")
            I seem to be the exception, in that I don't enjoy peoiple calling me in the Hospital, so I won't join the group in making a phone call.
            Please feel better - we need our daily laughs from you.
            I will say an extra Prayer for you .
            BE WELL
            RONNIE

            Comment


            • #21
              Re: Where is Burt?

              Get well soon, Burt and Mary!! We're all pulling for you !!
              \"It is not length of life, but depth of life.\"

              Ralph Waldo Emerson

              Comment


              • #22
                Re: Where is Burt?

                Burt, Best wishes, hoping to hear from you soon! Linda

                Comment


                • #23
                  Re: Where is Burt?

                  OK all you wonderful people, I’m free again, and almost as good a shape as when I went in. I don’t think this post will be particularly funny, unless you have the same whimsical mind as I do, but I would like to report it all and get it off my chest.

                  About two weeks ago I saw my new cardiologist who told me I had many good signs, and set up another appointment for three months. He did order chest x-rays and blood tests. I got home Friday after five o’clock and found a phone message from his nurse. I had to wait until Monday to talk with her, and by late afternoon we connected. She relayed the doctors request to take my lasix, and start taking my metolazone every day instead of every third day, and if it didn’t help to check into the ER on Wednesday. I told her I wouldn’t be able to start the regimen until Tuesday, so I would check into the ER on Monday if it didn’t work – saving my birthday week-end to spend with the family.

                  Monday we had some running around to do, pick up the x-ray results for both me and my wife, and spend four and a half hours at the dentist getting x-rays, exams and cleanings. Knowing the functioning of an ER we went out to dinner first, I packed a few things, and checked into the ER at eight o’clock. After futzing around for a relatively short time, one of their rooms became available and I was moved in. They took blood tests, a chest x-ray, and an EKG. Every shift tried to slap a nitro patch on me, and I kept telling them it was contra-indicated. The first ER doc must have been overqualified because he said – “Oh yeah, that’s right.” The second shift doc made no comment.

                  By early morning they needed the room so I was wheeled into the cast-1 room. They brought me breakfast but said the doctor had not ordered my morning pills or my insulin. After gazing longingly at breakfast, and being told they would reheat it for me, after a little over an hour they took it away, saying no more food or water because the doctor might want to order a stress test.

                  By lunch time they had gotten the order for my insulin, and had ordered my morning drugs. I took the insulin shot and had lunch. At two-thirty they moved me into my room, and at three-forty-five I finally took the pills I usually take at six AM. My dinner pills were then delayed until about eight – but the flow of meds was finally set-up.
                  Tuesday they stopped the Metolazone completely, and then they stopped the lasix. They were taking blood tests about every four hours. (After over eighteen hours flat on my back the excess water drained from my legs.) In the morning they were taking another EKG and my left calf got a sever cramp. A little later in the day they did an echocardiogram of the veins in my legs looking for clots. They found none but during the procedure I got a severe cramp in my right leg. For the rest of the day I was basically unable to walk. I did make it to the john in the late afternoon, and I almost fell on the nurse who was helping me back to the bed. (I would have crushed her.)

                  Back before I started taking both diuretics daily my blood test showed my potassium was a tad low, so I switched from ten to twenty milligrams per day. I have to be careful about that stuff, because my kidneys are damaged and can’t tolerate it. On Tuesday I got 40 MG for breakfast, and another forty for lunch. It obviously wasn’t enough, so they hung a potassium drip with a saline solution, and that dripped until after dinner when my veins could not stand any more, and I gave them the option of taking it out – or I would. I actually had to start removing it myself before they stepped in and removed it. Boy that stuff burns. The immediate area was red and I was sore from almost to my elbow down to my pinky knuckle. It took about two hours for it to subside. They rounded it out by giving me another 20 MG tablet. That’s over a hundred milligrams in one day – I wonder how my kidneys will tolerate it. Bet my creatinin level shoots up. I asked about it in the hospital but all I got was, “Your potassium is very low – and that’s more important than your kidneys right now.” If my kidneys fail, then which becomes more important?

                  You remember my good cardiologist quit the group ‘abruptly’ and I was transferred to a clown who said you can get HCM from high blood pressure? I then switched to the current doctor who was supposed to be ‘up’ on HCM, and he told me that he sees patients in this hospital. In the ER they only could reach the doctor that did my fourth heart cath (six hours on the table over two days), before my good doctor diagnosed HOCM. He told them to admit me. Who walks in to see me late Tuesday afternoon? You got it – the clown. I said I wanted to see my doctor, who said he would treat me at this hospital, and was told he would convey the message and he might see me tomorrow.

                  Wednesday morning I found with great care I could hobble slowly to the john. I could bring my toes down, but when I try to bring them up I get one load of pain from my calves. By taking short steps, slowly, I am able to bring my feet back - but only forward to directly below my hips. (Remember Tim Conway’s Old Man, on the Carol Burnett Show?) It was like a slow motion take on that.

                  The Primary Care doctor came in, listened to my heart for about thirty seconds and asked if I was ready to go home. The clown concurred and by around quarter to four I was discharged. It is the function of the Primary Care Doctor assigned to a hospital by the insurance company to get the patients out of the hospital as soon as possible. (That’s why I was released too soon from the heart cath last year – twice – resulting in a stroke.)

                  They gave me a thirty day prescription for the new diuretic, which I am obviously to take, but left no instructions as to whether or not I am to restart the lasix with it. They also left no word on how much potassium I should take daily. None of them were available in the hospital to get any answers. I just went to the kitchen for a drink and my calves are tightening up again, and I am barely able to walk. I really must have damaged them quite a bit.

                  My other symptoms – tight chest, cough, pains in the heart radiating down to my elbow on occasion, SOB, sore shoulders, etc – the hospital primary doc has put down to stomach problems, and wrote a recommendation to MY PCP that I aught to have a GI series run.

                  Well guys, you wanted me back. This is a horrendously long post, but you asked how I was. Well, after spilling my guts, I feel so much better. Time to hobble off to bed while I can still make it. Love to all,
                  Burt

                  Comment


                  • #24
                    Re: Where is Burt?

                    Burt my dear dear friend can we please get you to an HCM specialist? I am concerned about your fluid levels and your pot. levels. There is a good guy in the southern California area that should be about to see you - while I know that is not close it is also not that far.
                    What do you think?

                    Be well!
                    Lisa
                    Knowledge is power ... Stay informed!
                    YOU can make a difference - all you have to do is try!

                    Dx age 12 current age 46 and counting!
                    lost: 5 family members to HCM (SCD, Stroke, CHF)
                    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                    Therapy - ICD (implanted 97, 01, 04 and 11, medication
                    Currently not obstructed
                    Complications - unnecessary pacemaker and stroke (unrelated to each other)

                    Comment


                    • #25
                      Re: Where is Burt?

                      Burt, Welcome back and I am very sorry to hear that you are going through so much - I do hope that you take Lisa's advice and see a HCM specialist as soon as possible. In the meantime I would continue to lift you up in my prayers - We need to have you around for a long, long time.

                      God's blessings be on you!


                      Shirls
                      \"With God all things are possible - remember He is still in the miracle business - just trust Him and keep the Faith\"

                      Comment


                      • #26
                        Re: Where is Burt?

                        Burt

                        Welcome home I think, I'm not sure you were ready to come home from what you wrote, i think it is time to call Lisa and try to get in to see this other doctor, you really do worry me, i don't want something to happen to you....so please call Lisa and get the doctors name please

                        Shirley
                        Diagnosed 2003
                        Myectomy 2-23-2004
                        Husband: Ken
                        Son: John diagnosed 2004
                        Daughter: Janet (free of HCM)

                        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                        Comment


                        • #27
                          Re: Where is Burt?

                          Burt, glad you're out of that hospital but wish you felt better. Please go to SoCal. It'll help a lot.

                          Reenie
                          Reenie

                          ****************
                          Husband has HCM.
                          3 kids - ages 23, 21, & 19. All presently clear of HCM.

                          Comment


                          • #28
                            Re: Where is Burt?

                            Burt, so glad to hear you are feeling better , and that you are back home. Please take Lisa up on her advise. Please , Please.

                            Pam
                            Dx @ 47 with HOCM & HF:11/00
                            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                            Lead failure,replaced 12/06.
                            SF lead recall:07,extracted leads and new device 2012
                            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                            Genetic mutation 4/09, mother(d), brother, son, gene+
                            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                            Comment


                            • #29
                              Re: Where is Burt?

                              Hi Burt,

                              Glad to see you back and posting!

                              You are always one of the first to tell the newbies how important it is to be treated by an HCM specialist, aren't you? Now how about taking some of your own advice? For the love of God, man... just do it.

                              Jim
                              "Some days you're the dog... some days you're the hydrant."

                              Comment


                              • #30
                                Re: Where is Burt?

                                Amen Jim. Burt see someone who will take good care of you.
                                Leon
                                God Squad co-moderator
                                Nothing is as gentle as strength and nothing is as strong as gentleness

                                Comment

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