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Last week, just two weeks shy of the 6 month anniversary of my Myectomy, I was re-evaluated at NEMC.
I’m doing (and feeling) great.
There seems to be a lot of gloom and doom on the boards these days, so I thought I would throw in some selfish good news.
Jessica, the beautiful and talented Echo tech, says that you can’t even tell that I had the surgery, at least not through her machine. Gradiant = 0.
Dr. Maron (Marty) says to cut the Toprol in half (to 50MG’s), and said I could begin to do ‘some’ jogging and/or bike riding.
I met a new member of these boards in the waiting room and we had a good discussion of the perils of HCM.
NEMC is an excellent clinic to be evaluated and if needed, have procedures done. I have noticed in the last few months that many people are opting to go to Cleveland or the Mayo, even when those hospitals are farther away. The most obvious reason seems to be experience level. NEMC’s HCM clinic is barely a year old.
I want to dispel this notion. Dr’s Maron and Udelson are extremely knowledgeable about our condition. Dr. Rastegar is a highly skilled Cardiac-Thoracic surgeon who can do a Myectomy with the best of them.
One of the goals of our organization is to have HCM clinics open in every major city in the USA. Personally, I would settle for all of the major regions. There is definitely a need for 1 or 2 clinics on the west coast, perhaps 1 in the Rockies, 1 each in both the southwest and southeast.
Any hospital entertaining opening an HCM clinic is going to look long and hard at what is happening at NEMC.
We need to support NEMC’s efforts.
It no longer is brave to give them a try. With one year under their belts, it’s actually a smart move.
So the next time a newbie is asking where they should go, tell them to head to New England.
I’m doing (and feeling) great.
There seems to be a lot of gloom and doom on the boards these days, so I thought I would throw in some selfish good news.
Jessica, the beautiful and talented Echo tech, says that you can’t even tell that I had the surgery, at least not through her machine. Gradiant = 0.
Dr. Maron (Marty) says to cut the Toprol in half (to 50MG’s), and said I could begin to do ‘some’ jogging and/or bike riding.
I met a new member of these boards in the waiting room and we had a good discussion of the perils of HCM.
NEMC is an excellent clinic to be evaluated and if needed, have procedures done. I have noticed in the last few months that many people are opting to go to Cleveland or the Mayo, even when those hospitals are farther away. The most obvious reason seems to be experience level. NEMC’s HCM clinic is barely a year old.
I want to dispel this notion. Dr’s Maron and Udelson are extremely knowledgeable about our condition. Dr. Rastegar is a highly skilled Cardiac-Thoracic surgeon who can do a Myectomy with the best of them.
One of the goals of our organization is to have HCM clinics open in every major city in the USA. Personally, I would settle for all of the major regions. There is definitely a need for 1 or 2 clinics on the west coast, perhaps 1 in the Rockies, 1 each in both the southwest and southeast.
Any hospital entertaining opening an HCM clinic is going to look long and hard at what is happening at NEMC.
We need to support NEMC’s efforts.
It no longer is brave to give them a try. With one year under their belts, it’s actually a smart move.
So the next time a newbie is asking where they should go, tell them to head to New England.
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