If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

What would you do?


About the Author


bryan Find out more about bryan
  • Filter
  • Time
  • Show
Clear All
new posts

  • What would you do?

    Today while at my nephews football practice I was watching another one of the teams practice when all of the sudden a kid just collapsed. Well he apparently collapsed of dehydration. The thing that bothered me was it took the ambulance 10 minutes to arrive. If this was something worse, the outcome could have been worse. But I was thinking that maybe I should see if the league has ever thought of maybe an onsight defibrillator. Does that seem like a good idea? Should I just let them run things the way they have for the last 20+ years? And input would help greatly

  • #2
    Re: What would you do?

    It would be wonderful if you could spearhead a move to get an external defibrillator. Talk to Sharon Bates. She has lots of good ideas. Think of how wonderful you would feel if you could save one child's life! Think of how awful everyone will feel if they are not able to do so!


    • #3
      Re: What would you do?

      Illinois just passed a law requiring defibrillators at all schools and gyms and O'Hare airport has them every 500 feet or so.

      Visit padl.org for more info on defibs and also PM Sharon and search this site as others have fought to get defibs at their school.

      They should be there---not just for the kids but for fans at games, too.

      Talk to the principal--talk to the school board. They will be worried about cost and liability. All defibs fall under the Good Samaritan Act and you can't be sued for trying to save someone's life. They cost a few thousand dollars, but you could raise that through the community if need be.

      How much is a child's life worth?



      • #4
        Re: What would you do?

        SPEAK UP - have your voice heard! YOU MAY SAVE A LIFE!

        Yeh they may say no, not interested - or they may say = WOW great idea! You never know until you try!

        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


        • #5
          Re: What would you do?

          Today I went back to my old high school to talk to some of my old teachers. One of my good friends was the school nurse and now she teaches the health studies courses. What surprised me is that there is no longer a nurse at the school anymore! I do volunteer work at the closest station to my high school and even at full tilt it is a fifteen minute drive there!

          I expressed my concern to her. I also asked if they had any plans then for an AED she said "no" they are too expensive. Well, that got my gears spinning and I asked her to ask one of her senior students if they wanted to do it for their project she said absolutly. She even thought that maybe through the HOSA club might be able to do it.

          So, I gave her the names of the Anthony Bates Organization and this site.

          Lisa, I also gave her the HCMA number so they maybe contacting you in the near future.

          maybe with everyone pitching in when can maybe make a change!

          Mary S.


          • #6
            Re: What would you do?

            Bryan ...

            You can also contact the media up this way ... They recently (within the past year), put defib throughout the metro west area - the media covered the importance of it, on the commuter rail, the t, in the truck of all police cars in one local town ...

            The media covered it wonderfully, talking about the importance, and how time is of the essence, and how they were able to get them at resonable costs, etc ...

            Let me know how I can help, I work with some of the police, fire and emt units in the area (and am friends with others), we might be able to get something coming from them, the schools seem to listen to their suggestions!
            \"Find rest, O my sould, in God alone; my hope comes from him. He alone is my rock and my salvation; he is my fortress, I will not be shaken.\" Psalm 62:5-6