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Autoimmune disorders and hcm

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Abbygirl2 Find out more about Abbygirl2
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  • Autoimmune disorders and hcm

    My other post is novel length so I'll keep this short and sweet.

    I found some info the other day that claimed a possible link between 'some' cases of HCM and 'some' systemic autoimmune disorders.

    Has anyone else ever heard of this?

    Thanks

    Pam
    It's not what you gather, but what you scatter that tells what kind of life you have lived.

    Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.

  • #2
    Re: Autoimmune disorders and hcm

    I have heard this before, yet have yet to see proof that this is the case. If I see anything new - you can be sure i will let you all know.

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Re: Autoimmune disorders and hcm

      Is this similar or referring to such things as amylodosis or sarcoidosis or even Lupus, there may be others. I may be wrong but are you asking if they could be the route of HCM or that they are in conjunction with HCM. There are those who have these diseases and have also found out they have one of these. It is rare but it can occur as I believe. When I was first diagnosed or thought to have HCM these diseases as well as prolonged untreated hypertension, heavy metal deposits and high hematocrit levels and even elevated growth hormone levels were discussed with me as possible precursors to HCM or that it would be a genetic based disease. I'm not sure this is what you are referring to , if not , just disregard. Pam
      Dx @ 47 with HOCM & HF:11/00
      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
      Lead failure,replaced 12/06.
      SF lead recall:07,extracted leads and new device 2012
      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
      Genetic mutation 4/09, mother(d), brother, son, gene+
      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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