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  • High blood pressure

    [High blood pressure]

    Author: karla (---.proxy.aol.com)

    Date: 06-01-02 06:23

    Hi, All......

    Am I correct in assuming that high blood pressure is part of the 'package' of HCM? In the past, any time my husband went to the doctor (for other things besides HCM) his BP was always good. We don't know how LONG he has been living with HCM -(he was just diagnosed about 2 weeks ago) but because of his history of fatigue and other symptoms, we thought he had had it for some time; however, his BP was always right on the money. The high blood pressure is something that was discovered when he was in the hospital for heart cath and tests - and we thought it was just because of the stress of the situation. But, he checked it yesterday and it is still higher than his recordings of the past.

    Cardiologist put him on beta blocker meds for BP and his chest pains, which don't seem to be doing any good. He continues to have pain in his chest and down his arm almost constantly.

    We see the doctor on Tuesday for results of heart haltor. Seems to me they are working a little backwards....why would they do a heart haltor when he already had an EKG, Echo and Heart Cath and already made a diagnosis?

    Hate playing this 'waiting game' and all this unknowing.....Can't wait to get the name of a specialist from HCMA to get him in better hands!

    This site is my life-line in these trying days...give me your thoughts, please.

    Thanks!

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: High blood pressure]

    Author: mia (202.164.188.---)

    Date: 06-01-02 09:50

    hi karla,

    i was diagnosed with hcm 8 months ago. my blood pressure on the other hand has always been low. it was one of the reasons why i had to start at a low dose of beta blockers and why they had a hard time trying to increase my dose. my doctor was afraid i'd get hypotensive and have syncope. regarding your other question, i don't think that the doctor is working backwards. even after a diagnosis is made, holter monitoring may be neccessary to check for arrythmias. they may not be there at the time of diagnosis and these are usually fatal complications that we have to watch out for. it is important if you are going to be evaluated if you need to get an icd. it is a good idea though to see a specialist. goodluck!

    mia

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    [Re: High blood pressure]

    Author: Diane (63.162.246.---)

    Date: 06-02-02 11:00

    hello my name is diane i was told i have ihss about one year ago. i have had high blood pressure for several years i am 43 years old with high b/p since late teens. at least i now know what is going on. i have a queston? how do you know you are seeing a qualified dr. i see a cardio dr. but he seems less educated than his nurse practioner.

    your input would be helpful.

    i've seen different dr. because of insurance

    thanks diane

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    [Re: High blood pressure]

    Author: karla (---.proxy.aol.com)

    Date: 06-02-02 19:23

    Hi Diane...thanks for your response...this is all pretty new to us...my 49 year old husband was just diagnosed about 2 weeks ago. We don't know if our cardiologist has any expertise in dealing with HCM patients. I was advised by Lisa - the president of HCMA to call their office and get a name of a doctor in our area who specializes in HCM. If you peruse through the various e-mails, you'll find their number listed....also, I believe you can click on the membership topic at the top of your browser and find it there also.

    In regards to the high blood pressure...the reasn I was asking, is that in the past my husband's BP actualy bordered on being low, and that's why I was wondering if it went along with HCM.

    Good luck to you!

    Karla

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    [Re: High blood pressure]

    Author: sarah beckley -moderator (---.dsl.mindspring.com)

    Date: 06-02-02 19:54

    Dear Diane,

    The phone number is on the Membership page and here: 973-983-7429. Please call the office to get the name of an HCM specialist. You can also ask your doctor how many HCM patients he has and if he ever goes to conferences on HCM.

    Karla

    I don't think that high blood presure is linked to HCM however, everyone's experience is a little different.

    The Holter is a 24 hour test to see if there are any rhythms happening outside of the office. An ECG is only a two minute test, and not enough to get a good picture of the day to day activity of the heart.

    I highly recommend talking to Lisa about your situation.

    Sarah

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    [Re: High blood pressure]

    Author: karla (---.proxy.aol.com)

    Date: 06-03-02 07:36

    Sara,

    Thanks for your input...I am very interested in speaking to Lisa. I did call your office and the gal I spoke with told me to call her on Wednesday of this week. (because of the conference, she would not be available until then) If it is possible to call sooner, please let me know.

    I undertand now from further research (and reads on this board) why hubby did the heart halter test. It just seemed a little odd to me that they would go ahead and do that test when his initial EKG had an 'extraordinary read". (The EKG was why his MD immediatey put him in the hospital - dr. said he had never seen anything like it) I understand they will use the halter read to look for arrithymias...I was just assuming he already had one from the EKG. The MD described his heartbeat (in layman's terms) as...'beep...beep...KERPLUNK". Am I correct in understanding that certain types of arrithymias are more life-threatening than others?

    It's interesting to note that he had an unusual EKG two years ago. At that time, they did an Echo and Stress Test. They said they didn't find anything and we were told that his 'abnormal' EKG was 'normal' for him. That EKG record was the dr's. base line to go by for this time, and he noticed a change in it.

    Until a complete diagnosis is made and hubby gets the proper care/treatment, I feel like we are walking on egg shells! His escalating BP, and on-going pain in his chest and left arm (while he is at rest) truly concern me. He says the pain is uncomfortable- but not unbearble. He is on a beta-blocker for symptoms which don't seem to help.

    Sorry for my rattling on so...guess writing on this board is therapeutic for me!

    Karla

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: High blood pressure]

    Author: Lisa (---.dyn.optonline.net)

    Date: 06-03-02 09:35

    Karla..

    I wish I would be available sooner but the golf outing is today and tomorrow I need time to organize, please do call wed. at 6:30pm I will hold the time open for you.

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: High blood pressure]

    Author: sarah beckley -moderator (---.dsl.mindspring.com)

    Date: 06-03-02 12:23

    Dear Karla,

    Yes, some arrhythmias are definitely not friendly, to put it mildly.

    Ventricular fibrillation (vfib) is the most dangerous one and it requires cardioversion immediately. This is when the bottom half of the heart is beating randomly.

    Ventricular tachycardia (vtach) is bad and people who have a lot of vtach are usually encouraged to get an implanted defibrillator. Bottom half of heart is beating too fast.

    Supra-ventricular tachycardia (SVT) is simply a fancy name for atrial tachycardia and is when the top half of the heart is beating too fast. Medication can usually control this well.

    Atrial fibrillation (AF, afib) and atrial flutter are when the top half of the heart is beating irregularly and can increase your chances for a stroke and/or a heart attack. Medication usually controls these risks as well and sometimes a surgical procedure and pacemaker for the worst cases.

    Here is a good link that explains a lot of heart procedures and tests: http://www.advocatehealth.com/health...ex.html#common

    Hope this helps. keep us posted,

    Sarah
    NOTE: This is a post from the previous forum message board.
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