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The Continuing Saga of Mary

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Burton Borrok Find out more about Burton Borrok
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  • Burton Borrok
    replied
    Re: The Continuing Saga of Mary

    Well Folks,
    Another shoe has fallen from the centipede that is Mary’s hospital visits. I got a call from her this evening, and she is back home again, feeling and sounding much better. She’s on Oxygen at night to give her hard working heart some relief, and she has a pain patch to help with that problem.

    Of course the discharging nurse and/or the doctor messed up her prescriptions, but she is seeing her PCP tomorrow and will get that straightened out. She wants to coast for the next few days and take life easy before again addressing all the things that have to be done.

    So, for all of you out there who care about our little Miss Mary, know that she will probably be posting herself in the next few days, and I think she just might be on the recovery trail, at last. Whenever I start to pity myself I think of what Mary has gone through – and I feel like a wimp. I think of Mary a lot. Am I getting a complex do you think?

    Anyway, I saw my local cardiologist today. We succeeded in getting most of the water out of my legs, only to have it move to my chest and lungs. I’m now on 120 mg of Lasix, 50 mg of Aldactone, and now 5 mg of Metolazone also. That’s the stuff that put me in the hospital in a week the last time I was on it – but this time I have also increased my Potassium from 20 to 30 mg / day.

    More about Mary as I know more – or she starts posting herself.
    Burt

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  • Pam Alexson
    replied
    Re: The Continuing Saga of Mary

    Burt,
    Thanks for keeping us informed. I am sorry to read of yet another huge setback for Mary. I hope the school is able to give her a medical LOA.
    My daughter had a very bad year last year with me and personally. Her school of nursing told her similar but did defer her loans ,preserve her scholarships and gave the LOA so she could restart this fall.
    I hope Mary's school does the same for her.
    She is in my thoughts and prayers.
    Pam

    Leave a comment:


  • Burton Borrok
    replied
    Re: The Continuing Saga of Mary

    Yes Cynthia,
    I forgot my audience – I fell asleep, I did not pass out, (no syncope) – sorry.

    Anyway, I talked to Mary this afternoon. She called me because she was very upset. While she was out having some testing done, she got a phone message.

    I don’t know if you all are aware, but she was in the first semester of a nursing program, using a scholarship. When she was hospitalized last time, she spoke to her professor and was assured that as long as she was able to make up any missed material and keep up with the class, she could stay in the program.

    Today the professor called and left a message that she was dropped from this semester’s courses. Not only does she lose the time for the semester, she does not know if the scholarship fund will now pay for this semester, or if she will have to pay for it herself. (Remember she only gets paid for hours worked – part time, - when she’s not hospitalized.)

    She is still in the hospital and they are still trying to figure out her diagnosis, so of course, she has no idea when they will release her. I tried calling her again tonight, but again could not get through. I will try during the day tomorrow.

    This kid just can’t catch a break. Hurricane Ivan is now supposed to reach Florida Sunday evening. I’d be willing to bet they release her very late Sunday afternoon or at the crack of dawn on Monday. I’ll try to keep you posted, but I won’t be home from Sunday through Wednesday afternoon – and then comes the Jewish holidays.
    Happy New Year everyone,
    Burt

    Leave a comment:


  • cynthiaG
    replied
    Re: The Continuing Saga of Mary

    Burt,
    what do you mean, "passed out"?? did you just fall asleep I hope??

    Leave a comment:


  • Burton Borrok
    replied
    Re: The Continuing Saga of Mary

    Hi all,
    Let me give you a small update – of sorts. Yesterday, Wednesday, I left a meeting at a local hospital to call Mary. I don’t know if it was the hospital equipment interfering or what, but I got a very bad connection and could only catch an occasional word or so. It did sound to me like Mary had her cell phone shut off and I was getting her cell message center, and I decided not to leave a message as I didn’t know if she would be able to understand me.

    Today was a different story. I was watching TV, waiting until six o’clock my time to call her and I totally passed out. It was around eight when I woke up – eleven o’clock her time, so I will have to wait until tomorrow.

    Sorry I could pass on no further information.
    Burt

    Leave a comment:


  • Rene' Koenig
    replied
    Re: The Continuing Saga of Mary

    Mary,

    I hope you feel much better soon! I wondered if everything was ok since I hadn't seen any posts from you recently. Take care of yourself.

    Rene'

    Leave a comment:


  • shirleymahoney
    replied
    Re: The Continuing Saga of Mary

    My dear Mary

    You have just been too sick this year, you really need a good intestinal man to get this under control, the stress alone has to be bad on your heart let alone your intestines please take care

    Shirley

    Leave a comment:


  • Heartmans Wife
    replied
    Re: The Continuing Saga of Mary

    Mary-

    My thoughts and prayers are with you - thought about you all during the "storm" and hoped you made it through that okay. So sorry to herar your back in for stay #12. Hope all goes well and that you're back posting soon.

    Ange

    Leave a comment:


  • Pam Alexson
    replied
    Re: The Continuing Saga of Mary

    Poor Mary, Sending her lots of prayers , strength and hope that there will soon be an end to the bad health she has had. You are in my thoughts Mary.
    Pam

    Leave a comment:


  • Burton Borrok
    replied
    Re: The Continuing Saga of Mary

    Well, it’s now officially Wednesday, but I spoke with Mary Tuesday – and yes, she’s back in the hospital again. Visit number twelve this year so far.

    She was throwing-up all day Monday, and her stomach is still out of whack, and she is yet once again in congestive heart failure. I have an exceptionally busy day scheduled for tomorrow, but I will try to call her – and if I’m successful, I will post about it.

    This time she is in the hospital near her friends house (where she stayed during the storm) and does not yet know the phone number in her room. Her cell phone is working for those who wish to call, 407-361-5723 – and she asks if you would please call after nine o’clock eastern time, as that is when her cell phone goes onto free time.
    Burt

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  • Laoshur
    replied
    Re: The Continuing Saga of Mary

    Mary,
    We are all supporting and praying for you!
    Rhoda

    Leave a comment:


  • Burton Borrok
    replied
    Re: The Continuing Saga of Mary

    I’m sorry guys,
    I spoke to Mary yesterday, and just too many things got in the way, and I didn’t get a chance to post anything until just now.

    This is her eleventh trip to the hospital this year so far, and at least two of the visits lasted for three weeks. With this trip she had been throwing up into her fourth day, and is getting her sustenance through the IV. Actually, I spoke to her right after she ate a small cup of ice cream, and it looked like she was going to be able to hold it down. She is starting to become interested in food again, and is re-trying a liquid diet. Before this she couldn’t even hold down jello.

    Her cell phone is free only on the week-ends, so she asked if anyone who calls her would please use the hospital phone. The number is 407-351-8500 ex 3 room 510. (They may take the extension as 3510 – but I haven’t called her yet, so I don’t know. I’m sure you will be able to get through one way or another.

    It’s nine o’clock her time now, so I’ll probably try to call after I finish at the Books for the Blind work I do tomorrow morning. I will post again if I get any more news.
    Burt

    Leave a comment:


  • Pam Alexson
    replied
    Re: The Continuing Saga of Mary

    Mary , I echo jim's sentment , hang in there girl all your HCM family is hoping that something will work for you.
    Chin up, Pam

    Leave a comment:


  • mtlieb
    replied
    Re: The Continuing Saga of Mary

    Originally posted by Pam Alexson
    It must be very , very hard to keep repeating this scenario of bad events...
    Pam... i couldn't agree with you more. Mary's trips to the hospital have become so routine for us now, that in many ways i'm afraid it's become simply a matter of 'Oh well, Mary is back in the hospital again.' But ya know, each and every time the poor girl gets admitted to the hospital... is just one more event to wear her down more and more, and she just has to be wondering when this is all going to end. It doesn't get any easier with each trip to the hospital... it just keeps getting harder and more depressing, and i pray to God that Dr. Maron has some real answers for her when she sees him in September.

    We all love ya Mary, and hope you get better real soon!

    Jim

    Leave a comment:


  • cynthiaG
    replied
    Re: The Continuing Saga of Mary

    Mary,
    Get well soon!!

    Leave a comment:

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