If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

The Continuing Saga of Mary

Collapse

About the Author

Collapse

Burton Borrok Find out more about Burton Borrok
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • The Continuing Saga of Mary

    As you will recall, in our last episode, Mary went to her PCP’s office and passed out for two hours. She came to in the hospital where they were running tests to try and discover what was wrong with her.

    This episode starts last Thursday when that hospital released her and she went home. She PM’d me Thursday night and said she was feeling lousy. She then said she was going to bed and signed off.

    Friday morning she went to work - and almost passed out. She was then readmitted to her hospital, (the one near her home), where she now is. They are now taking a crack at figuring out what her problem is. She is currently on Toradal and Percocet and feeling pretty good, except of course when she gets out of bed, as she gets dizzy again.

    She hopes to get out of this hospital soon, (she’s hoping for tomorrow), but until they release her, her new number is 321-841-0571

    Frankly, I hope they keep her until they figure out what the problem is.
    Burt

  • #2
    Re: The Continuing Saga of Mary

    They really do need to keep her, if she is still getting dizzy when she stands up, no answers yet huh

    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

    Comment


    • #3
      Re: The Continuing Saga of Mary

      Hi folks,
      Talked with Mary this morning. She’s still weak, and gets dizzy when she stands up. The doctor came in and we ended the call rather abruptly, but she did say she is again getting shots of Lovenox in the stomach for blood clots – they will again check her ICD – and she may have to return to Boston to get checked-over again, but that’s still in the maybe stage.

      Oh yeah, they increased her salt intake (salt pills) in the hopes of pushing up her blood pressure, which is running low at present. Personally, I suspect that is why she is so subject to passing out, but time will tell. I’ll try to keep you guys posted.
      Burt

      Comment


      • #4
        Re: The Continuing Saga of Mary

        Thanks Burt,

        I'll try to give her a call again today. I sure wish she could get some good medical treatment! The last hospital she was at had her on a low-salt cardiac diet while they scratched their asses and watched her blood pressure plummet to nothing, and now this hospital is shoving salt pills down her throat trying to get her pressure back up. WTF??

        Jim
        "Some days you're the dog... some days you're the hydrant."

        Comment


        • #5
          Re: The Continuing Saga of Mary

          Hi Jim,
          How are you doing buddy? Good to see you posting again.

          About Mary’s treatment – I think this hospital is doing a better job for her then the other. I would think getting the blood pressure up by the use of salt pills is a better approach then by keeping her saline level so low that she gets dizzy and passes out. They can address a water problem if and when it occurs. (I think she is on a diuretic already.) They are also addressing her possible blood clot problem, which I think is a plus.

          Anyway, if you talk to her and get any more information, please post it. Our conversation ended when the doctor came into her room.

          Hmm, just thought of something. You’re in Pennsylvania. Will you be exercising or hex-a-cizing?
          Burt

          Comment


          • #6
            Re: The Continuing Saga of Mary

            God save us all from Burton's humor...
            "Some days you're the dog... some days you're the hydrant."

            Comment


            • #7
              Re: The Continuing Saga of Mary

              Actually Burton...

              I'm doing great, thanks for asking. It turns out that my exhaustion lately is in large part due to a cold i picked up while visiting with my family. The darn thing's lingered for a couple weeks now, so just to be on the safe side i hiked up to the hospital the other night to get checked out. They said everything's fine... heart sounds good, lungs look good... just a common cold. The doc said it'll probably just take a little longer than normal to get rid of, since my body's pretty busy taking care of some other things right now. But all in all i'm still doing quite well.

              The only real problem i have is with all this blasted coughing and sneezing. LoL. Have you seen the movie Alien? I'm waiting for something to come exploding out of my chest at any moment! It's so indescribably painful when i sneeze, i've gotten in the habit of yelling out a very naughty little f-word each and every time. Needless to say when i sneezed at the grocery store the other day (and my little heart-pillow nowhere to be found), it did attract some attention

              The doc offered another refill on my percocet to help with the chest pain, but i refused. I may regret that later on, but to be honest... i was really getting quite attached to those little rays of sunshine in a bottle, and i decided it was time for that relationship to end, pain or no pain.

              Now, if we can just get Mary straightened out!

              Jim
              "Some days you're the dog... some days you're the hydrant."

              Comment


              • #8
                Re: The Continuing Saga of Mary

                Jim

                I know the feeling i have a cold too, and it's going on 5 months since surgery and it still hurts my chest when i cough or sneeze so i can imagine what you are going through you hang in there and i hope you start feeling better and keep little ears out of ear shot of you

                Shirley
                Diagnosed 2003
                Myectomy 2-23-2004
                Husband: Ken
                Son: John diagnosed 2004
                Daughter: Janet (free of HCM)

                Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                Comment


                • #9
                  Re: The Continuing Saga of Mary

                  Well, there’s a blessing. It is 105 degrees at the moment and the humidity is down to 10 percent – plenty of dry coughing, but not the hint of a cold anywhere.

                  I guess one must take ones blessings where one finds them. Stay cool my friends, stay cool.
                  Burt

                  Comment


                  • #10
                    Re: The Continuing Saga of Mary

                    Hi Burton-

                    Hope Mary's treatment is continuing and she's doing better.

                    When Jim says he hiked up to the hospital, he really did take quite a hike!! Pretty impressive as Indiana, PA is a town of hills and the hospital is on a hill outside of town, even!!

                    As for being in Pennsylvania and hex-a-cizing - not all of us are Dutch, ya' know. We have a pretty large Amish population. You know you're from Central Pennsylvania when a building higher than three stories is a novelty, but a horse and buggy on the road isn't

                    Ange

                    Comment


                    • #11
                      Re: The Continuing Saga of Mary

                      Originally posted by Heartmans Wife

                      You know you're from Central Pennsylvania when a building higher than three stories is a novelty, but a horse and buggy on the road isn't
                      Too true, Ange! I love our road signs that have the picture of a horse and buggy on them. People from out-of-state look at those and go, huh? As for my hike up to the hospital... i didn't say how LONG it took me to get there. LoL. There were plenty of rest breaks along the way, and i was lucky enough to catch a ride back home

                      I can't wait to drive again!!!

                      Jim
                      "Some days you're the dog... some days you're the hydrant."

                      Comment


                      • #12
                        Re: The Continuing Saga of Mary

                        Hey you Pennsylvanians,
                        I married an Altoona girl, and been to plain and fancy land a number of times. In fact I bought a big eraser in a restaurant called Plain and Fancy in Intercourse, PA. Printed on the eraser was a picture of a Dutch boy and girl holding hands, and the caption “Plain and Fancy, Intercourse, PA” They are an earthy lot, and their farms and produce are things of beauty.

                        My wife was in the first graduating class of Penn State University, and her brother who was a year ahead of her was in the last graduating class of Penn State College. She shared a room with a Pennsylvania Dutch girl and picked up expressions like, “My hair needs wash,” and other similar colloquialisms. That “horse and buggy on the road isn’t” brought back a flood of memories, as I’ve been in horse and buggy traffic jams.

                        I wish you both “Get out of hex free” cards, and hope you enjoy your neighborhoods.
                        Burt

                        Comment


                        • #13
                          Re: The Continuing Saga of Mary

                          Another update on Mary,
                          I would have posted sooner, except I had problems with my computer. The time has come to replace this old beast of mine.

                          So let’s bring you up to date. When she was first in the hospital they tried unsuccessfully to contact her cardiologist, but he was out of town, so the hospital cardio treated her. When her cardio got back he was PO’d that he wasn’t consulted and notified Mary that he doesn’t want her as a patient any longer. The staff cardiologist had signed off on her, now that her own cardio had returned, and he won’t treat her. The manager of her old cardio’s office got very snippy (read that abrupt) with her, and when the hospital’s head of staff nurse called he got snippy with her also. The law says he has to continue to treat her for thirty days after the notice of quitting, but he will not return her calls, or the hospital calls about her. The hospital cardio has signed her back to her old doc, and is out of the picture, so at the moment at least, she has no cardiologist treating her.

                          They discovered that she also had another ruptured cyst on her ovary, just to complicate matters. The general doctor told her yesterday that they might release her today, after which she passed out again, - in the shower. The hospital called her old cardio for a consult, but he still won’t return their calls. After she passed out her blood pressure was 75 / 30, so they gave her a half liter of liquid to bring it up again, and this morning she woke up with a blotchy rash on her arms, and probably over the rest of her body too. We ended the call so she could call the nurse – and she still has hopes of getting out of the hospital today. As Jim would say – Yikes!

                          If you want to call her, her number at the hospital still is 321 – 841 – 0571
                          Burt

                          Comment


                          • #14
                            Re: The Continuing Saga of Mary

                            My God, that's horrible, I think Mary needs an extra dose prayer and a good lawyer.
                            How can they refuse to treat her with all that is happening to her???
                            Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                            So if you are capable of thought then you are capable of great things
                            Good luck and stay well.
                            Glen

                            Comment


                            • #15
                              Re: The Continuing Saga of Mary

                              this story gets more unbelievable! I have never heard of a doctor refusing to treat his/her patient!! This is unheard of!!. ( It's too bad we can't clone a couple of wonderful cardiologists from Boston and sent them down! ). Can her PCP hook her up with another cardiologist?? Her "former" one is obviously a real [email protected]@#$%e ! Also, her PCP would become involved with this rash and try to diagnose the cause,correct? And, her OBGYN for the cyst.
                              \"It is not length of life, but depth of life.\"

                              Ralph Waldo Emerson

                              Comment

                              Today's Birthdays

                              Collapse

                              Working...
                              X