dear and kind HCM friends......after the miracle of getting to Boston, having the BEST care i have EVER received, and a most successful Alcohol ablation, i have been up and walking around....even up hills (pretty steep ones, too here in san fran....) I am still waiting for cardio rehab to happen. I can't speak highly enough or with enough gratitude to Lisa and to all the folks at Tufts NEMC for their super-human compassion; expertise and LOVE...i think it is the LOVE and support that got me through....( i had no family or other support....and all of this love and support from lisa and the docs in Boston just made my 'new heart' weep with gratitude. I am FEELING like i have a new heart....which is very amazing, in itself...I never knew i was feeling soooo badly until i started feeling so much better. The SHOCK of having to return to the land of dialyis and kidney disease has been really hard...they don't recognize or do any looking into the heart thing, and it is NOT at all like the HCM group....so bizarre. Question #1 i am meant to have a re-evaluation etc in a couple of months....it was suggested that i return to Boston....but have financial troubles....should i just have the post follow up done here at local san fran hospital or better to go to boston?
question #2....due to kidney disease and LIMITED income (disability etc) I had to borrow quite a bit of money to get to boston etc....I know there are grants available through the kidney foundation, when i have been in trouble, they sometimes have small grants for patients. Is their such an organization with a heart association. Normally, i wouldn't want such funds to go to me, but only to further research for MORE things like HCM, but am rather in diffficulty here, and was wondering if their is assitance . Although i am feeling so much better, and pray i can actually WORK again one day...am still in the disabiltity phase.....and at the moment am homeless and need to get back into LIFE. Should i try to contact the case worker at the hospital? Any info on assistance financial and psychological would be so helpful.....have been having anxiety attacks recently, and don't want to continue to stress my 'new heart' since they went to such lengths and HELP to fix my HCM...and i do believe it is soooo much better..
Thank you again....just for being here....Sorry to bother the group with these kinds of things....
question #2....due to kidney disease and LIMITED income (disability etc) I had to borrow quite a bit of money to get to boston etc....I know there are grants available through the kidney foundation, when i have been in trouble, they sometimes have small grants for patients. Is their such an organization with a heart association. Normally, i wouldn't want such funds to go to me, but only to further research for MORE things like HCM, but am rather in diffficulty here, and was wondering if their is assitance . Although i am feeling so much better, and pray i can actually WORK again one day...am still in the disabiltity phase.....and at the moment am homeless and need to get back into LIFE. Should i try to contact the case worker at the hospital? Any info on assistance financial and psychological would be so helpful.....have been having anxiety attacks recently, and don't want to continue to stress my 'new heart' since they went to such lengths and HELP to fix my HCM...and i do believe it is soooo much better..
Thank you again....just for being here....Sorry to bother the group with these kinds of things....
Comment