If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

ALL PLEASE READ THIS

Collapse

About the Author

Collapse

HCMA FORUM ARCHIVE Find out more about HCMA FORUM ARCHIVE
This topic is closed.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • ALL PLEASE READ THIS

    [ALL PLEASE READ THIS]

    Author: Lisa Salberg (---.dyn.optonline.net)

    Date: 05-26-02 13:33

    To all those who visit this message board and share their thoughts, feeling, experiences, fears, accomplishments, hints and lives... I thank you

    You each provide a piece of the puzzle; these pieces may have been hidden from others. The magic of the Internet allows us to communicate in a way never before available in society, and we have come to take it for granted already. Each who shares gives a gift to so many.

    I do ask something of each of you, words are very powerful; use caution in your postings remembering that we are all just a little bit different.

    A medical adviser does not review this message board formally. Therefore sometimes information can be slightly incorrect and requires confirmation through the HCMA directly or with your physician. By no means does this statement suggest this board is inaccurate, it is simply commonsense to be cautious.

    I have amazing pride for all those who share their feelings with others and those who hope to teach others from their own experiences, most of them have not been pleasant experiences mind you.

    This web site and message board is only the beginning of what the HCMA must do to improve the quality of lives for those with HCM into raise public awareness. So keep talking, keep sharing, and keep learning.

    In closing, thank you all for helping make my dream come true.

    Sincerely,

    Lisa Salberg

    President and Founder

    HCMA

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: ALL PLEASE READ THIS]

    Author: Midge (---.obmo.socket.net)

    Date: 05-27-02 21:36

    Lisa, that is such good advice as we all are in different stages of HCM. I have a question and a favor. I am unable to come to the meeting this week. I have just returned from Mayo and I do know that I am in the end stages of HCM as they are now talking transplant. The magic # is 10 and I am at 13 on the O 2 treadmill test. I am very much interested in the speaker that is talking about the end stage of HCM. Is there anyway you could send me a copy of his speech either by snail mail or email. Even though my news is not the greatest right now, I am remaining very up beat as the rest of my body is healthy and they say I will be a good candidate for a transplant when the time comes. I really do not feel too bad and am grateful for all the good days and try to rest on the bad ones. I know you are busy but I would love to have a copy of this if it is possible. Thanks a lot. Midge.

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: ALL PLEASE READ THIS]

    Author: sarah beckley -moderator (---.dsl.mindspring.com)

    Date: 05-28-02 01:57

    Dear Midge,

    We were trying to raise the money for videotaping, but I'm not sure if we got it or not. I'll forward your post to Lisa via e-mail, since it will reach her faster that way.

    I'm sorry about your situation. I will pray you get a new heart.

    Sarah

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: ALL PLEASE READ THIS]

    Author: lisa (208.47.172.---)

    Date: 05-28-02 14:08

    We will make the hand out packets available, which at the least will include my talk and I will attempt to provide a summary of the days events.

    This is going to take a week or two after the meeting to get together...UNLESS...someone comes up with funding in the next 24 hours...

    then... we will have a video...

    Lisa

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: ALL PLEASE READ THIS]

    Author: Patricia A Grall (---.dwave.org)

    Date: 06-11-02 13:59

    I had answered the Septal Ablation question just prior to this.Am i allowed to to this without being a member?

    Also you above note the those whom read this is very appropiate. Than you.

    Patricia Grall RN

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    [Re: ALL PLEASE READ THIS]

    Author: Board Moderator--Sarah Beckley (---.dsl.mindspring.com)

    Date: 06-11-02 14:37

    Dear Patricia

    Anyone is entitled to use the HCMA message board as long as it is used appropriately.

    Sarah
    NOTE: This is a post from the previous forum message board.

Today's Birthdays

Collapse

Working...
X