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shirleymahoney Born In Tulsa Oklahoma and have a wonderful husband and 2 great children Find out more about shirleymahoney
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  • Sleep study results

    Ok i got my results from my sleep study and it is official i have sleep apnea a mild case but never the less sleep apnea. I go back on the 21st to sleep over night with the mask and see how i sleep hopefully better, they said i wake up 9 times in an hour and i have alot of leg thrashing in my sleep and my 02 is at 85 when i sleep and that concerns them you know i have a problem with that because i was wearing oxygen when i went to sleep that night, i wonder if it really goes down that low with oxygen on me, well we will find out , and my CHF has gotten worse he thought it had that is why he doubled my spironolactone Monday, so i guess i'm at the moderate to severe level now

    Shirley
    Diagnosed 2003
    Myectomy 2-23-2004
    Husband: Ken
    Son: John diagnosed 2004
    Daughter: Janet (free of HCM)

    Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

  • #2
    Re: Sleep study results

    Hi Shirley,
    I went for a sleep apnea test a little over a year ago. Turned out that was one malady I missed, but I have a number of relatives who do have the condition and sleep with masks, one with oxygen attached. After the first ‘get acquainted’ period, they all appreciate the device and say it gives them a lot more comfort at night.

    I wish you the same luck with it.
    Burt

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    • #3
      Re: Sleep study results

      Shirley,

      You sure have had your share of bad news lately my friend, but hopefully if you can get your sleep apnea under control, some other things might fall in line for you as well? It's amazing how many things that trouble us, are related to simply not getting a good restful sleep. Let us know how things turn out. By the way, when is your appointment at the CHF clinic?

      Take care,

      Jim
      "Some days you're the dog... some days you're the hydrant."

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      • #4
        Re: Sleep study results

        Jim

        My insurance company wants my cardio doc to refer me to the CHF clinic, i know i'm tired of waiting on people now my cardio doc is on vacation and won't be in until next Tuesday, i can't believe how slow things are going for me i know i'm really tired today , i guess i didn't sleep well last night at all, hope you are feeling better now that you have rested a bit


        And Dear Burt

        I'm very glad you didn't have sleep apnea, you really don't need any thing else to add to your many other illnesses, i really hope this fixes my breathing problems Take Care Friend

        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

        Comment


        • #5
          Re: Sleep study results

          felix had sleep apnea as well and this was the first thing that his
          cardio addressed when he was symtomatic a few years ago. for him
          having the UPPP was the best choice (versus CPAP). It did take the
          tireness away for a while, but then things got bad again and he
          had the myectomy.

          good luck getting all these dr's and referrals straightened out

          sandy

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          • #6
            Re: Sleep study results

            Shirley,

            What made you suspect sleep apnea? What are the symptoms (besides being fatigued during the day).

            -Darren

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            • #7
              Re: Sleep study results

              Celtic

              the doctor was just ruling it out since i've had to be on oxygen at night when i sleep and they said at the sleep study my 02 drops to 85 when i sleep which she said is not good, i know when i was in the hospital i had to have forced air along with the oxygen, my husband has sleep apnea worse than i do and he has high blood pressure because of it and frequent urination at night, and sexual problems there is a long list you can go to web md and type in sleep apnea and it will give you everything you need to know, it can aggrevate heart failure also

              Shirley
              Diagnosed 2003
              Myectomy 2-23-2004
              Husband: Ken
              Son: John diagnosed 2004
              Daughter: Janet (free of HCM)

              Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

              Comment


              • #8
                Re: Sleep study results

                I found out I have mild sleep apnea a few years ago. I wore the CPAP thing and could NOT get used to it. It was bugging the heck out of me. I have mentioned this to my HCM specialist and they didnt make an issue out of it. I'm not in CHF but wonder if this is affecting me in other ways
                \"It is not length of life, but depth of life.\"

                Ralph Waldo Emerson

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                • #9
                  Re: Sleep study results

                  Hi again Cynthia,
                  As I said in a previous post in this thread, I was tested and do not have sleep apnea. What I didn’t mention is that ever since I was a fairly young child – possibly even a pre-schooler – doctor’s have been advising me and my parents to get me a nose job. The passageways through the bridge of my nose are too small. They also threatened dire consequences if I ever needed glasses, as they sit on the bridge of my nose and would cause possibly disastrous results.

                  I never had a nose job, and have been wearing glasses now for about thirty years, give or take. In the report on the sleep apnea test they again said that I really needed a nose job, although I did not demonstrate an urgent condition at this time.

                  Basically in sleep apnea you just stop breathing either because the signal from the brain stops, or because there is an obstruction. (Hello?) It is most often demonstrated to the person with the condition by being jerked awake, realizing you have not been breathing, and gasping for air. This condition, if left untreated, can have quite serious ramifications. One would probably say the first line of defense would be the unit and mask that supplies air under pressure, making you breath properly. There are also options which involve surgery to correct any mechanical problems.

                  I’ve heard that good oxygenation is 92% and above. In Shirley’s case, where her oxygen level falls to 85% - while on oxygen – seems to indicate to me that she could benefit from a mask supplying pressurized oxygenated air – and of course ridding her lungs of the excess water would go a long way to alleviating the problem. Shirley, we thought it over and decided that you’ll just have to get better – and the quicker the better.

                  Cynthia, you don’t seem to be much inconvenienced at this time, and I hear you about being uncomfortable with the mask you had, but of course some acclimation is required. Did your doctor make you aware that there are a number of styles of mask, and if some are uncomfortable, others might just suit you fine? It’s true you know. Maybe you should give it another go-around. See what your doctor says.
                  Get and Stay - Well?
                  Burt

                  Comment


                  • #10
                    Re: Sleep study results

                    Shirley---
                    Have your doctors also check you for alveolar hypoventilation (Ondine's curse) due to your low oxygen levels at night, it's a rare disorder, but it couldn't hurt. It can be done during the regular sleep study without any additional testing, most doctors don't know about the condition. I went for a sleep study and they found that my levels dropped to 70%. Once they got me on a bi-pap machine while I sleep, my oxygen levels went to the normal level and it made a world of difference in my sleep habits. Good luck!
                    Scott Stanley


                    Heart Transplant June 14th 2005

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