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HCM related back pain

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  • shirleymahoney
    replied
    Re: HCM related back pain

    Oh yes i have that a;so but for years i thought it was arthrits i do have it in my lower back and i just assumed it was the same thing in my upper back, i have started putting my tylenol by the bedside and take it even before i get up in the morning because i look like a 90 year old woman trying to walk in the morning and i'm only 46

    Shirley

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  • Janet
    replied
    Re: HCM related back pain

    I thought I was just a big baby complaining to my husband about this pain in my back directly behind my heart. I see I am not alone. I did mention to the cardiologist, but never got any answer because we changed the subject and I forget to mention it again. It is going on my list for the next visit. When it gets bad enough my husband will rub it mildly for me which seems to relieve a bit of the ache.

    Janet

    Believe in the goodness of mankind!

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  • Burton Borrok
    replied
    Re: HCM related back pain

    Hi Abbygirl Pam,
    That was the right dose of Amoxicillin. I have other heart problems also and have been pre-medicated with every dental appointment (including cleanings) since 1985.

    Years ago I used to take four 500mg capsules an hour before the appointment, and more after and the next day for a total of 12 capsules. A couple of years ago the requirements changed to just the four capsules an hour before.

    I would suggest getting the capsules by prescription from your PCP or cardiologist. They are very inexpensive and they protect you from a world of trouble. They should be taken one hour before your appointment – even if the dentist is just going to be poking around in your mouth. (You can read Jim’s post about how his myectomy was postponed because he had a cavity in a tooth.) Taint nothing to fool around with.

    You were absolutely right to seek pre-medication. I wouldn’t trust a dentist’s understanding of HCM. In fact the presence of a murmur alone should require the protection.

    I have spoke - - - Gee, I must be a wheel.
    Burt

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  • Abbygirl2
    replied
    Re: HCM related back pain

    I really can't remember if I told him specifically about the stabbing pain(in heart area). Usually there are so many other things to discuss and unless it bothers me at the time then usually I forget about it. I have had it for 10 yrs now.

    If woman can experience heart related pain/discomfort in their backs, upper arms, etc then how do we know what is heart related? For about 3 months now I have been getting this burning in my upper back(it feels like my skin burning) not like indigestion type burning. Could that be heart related as well? Ugh, I want a new heart...no, I want a new BODY!! Mine has grown old and withered before its time.

    Anyway, on a good note... I had to put my new dentist in his place the other day. He insisted that HCM did not need to be premedicated. I insisted it did. He finally agreed to premed. me.

    He said that the recommendations have changed, so he gave me four capsules to take before my appointment. 500mg Amoxicillan(total-2000mg). He said I didn't need to take any after.

    What are your thoughts on this? Is it enough? Too much? Should I take something afterwards?

    Ok, I am finally done moaning and groaning, I hear the pitter patter of little feet coming up the stairs....gotta go.

    Take care all
    Pam

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  • angall
    replied
    Re: HCM related back pain

    Hi Abby
    Have you ever mentioned this pain (especially in your heart) to your doctor? After reading the posts on this subject I do feel as though it is related. Did you read Pam's post? I really enjoy getting to know others with HCM and know that I am not abnormal (a fellow HCM'er).

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  • Abbygirl2
    replied
    Re: HCM related back pain

    I have so much back pain. I get that sharp pain in my upper back when I walk and an intense stiffening type pain in my mid/lower back when I sweep the floor/vacuum/dishes etc. However I get pain even when I am sitting there doing nothing. I also have a fair amount of chest pain(almost constantly- in one form or another). I get a really severe sharp stabbing type pain right where my heart is. It only lasts a second or two but I completely stop when it happens it is so painful.(I have had that pain since I was 19.)

    Anyway enough about my aches and pains. If back pain is indeed a symptom we should change the symptoms list to include it. I can't say for sure if any/all my pain is HCM related because I have had back problems since I was 16.


    Take care
    Pam

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  • angall
    replied
    Re: HCM related back pain

    At times I get pain in my right shoulder and under my arm. I attibute it to my ICD and wires. Geesh...maybe there is more to it! Oh well, we have gotten this far in life with much more pain/discomfort.

    Burt, yes we do sound like a bunch of old cronies, but who else to discuss our aches and pains with than other people that have HCM. I know I have learned a lot by reading posts from various people. Three cheers for HCM'ers!

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  • Burton Borrok
    replied
    Re: HCM related back pain

    You guys reminded me of three things. The first is when I bend over for a minute or two – specifically to tie off the plastic kitchen trash bags – my middle back kind of gets stuck and I have to lean on the kitchen counter to straighten up again. I don’t think this has anything to do with HCM but after hearing you guys, I’m no longer that certain.

    The second is my shoulders sometimes are very stiff and sore – particularly my left. There are times when I can’t really raise my arms without a good deal of discomfort, but at other times things are fine. I’ve been attributing this to bursitis, but my entire shoulder is involved – sometimes including my neck. Could this be a manifestation of HCM?

    And the third thing is the pain in my front left chest. If I were a woman it would be just under my left breast where the band at the bottom of the bra would go. This I have always attributed to HCM, but it seems to come and go of its own accord without regard to any activity or inactivity. Thankfully it usually doesn’t last that long.

    Don’t we sound like a bunch of old cronies sitting around the cracker barrel comparing aches and pains, and trying to one-up each other? By golly, we’re not that old yet.
    Burt

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  • Toogoofy317
    replied
    Re: HCM related back pain

    I have some of these same issues to. Mine is not really the back though it is mainly my left shoulder. It feels very heavy and it aches. Not a sharp pain just feels like my arm is dead weight. Then the pain migrates to my chest . It feels like an elephant has decided to sit on my chest.

    I used to ignore these symptoms because I thought it was residual pain from being hit by a car on my bike but it only happens when I'm feeling really tired.

    Makes a lot of sense now!

    Mary S.

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  • Laoshur
    replied
    Re: HCM related back pain

    Just out of curiosity last night I decided to test what we have been saying on this topic. I really knew the outcome, but wanted to try it anyway. Ed and I went out for a very late (9 pm) dinner due to working late on some writing we needed to finish. It had been a very hot humid day (over 104) but when we came out it was still hot but there was a nice breeze and it was spitting a few drops of rain. We had our umbrellas so I suggested walking home. Ed was reluctant because he was afraid we would get away from the bus line and if I had problems, it would be hard to get back. But we decided we could find a taxi if that happened. It was a long walk, but we took it very slowly, and I did not start having trouble until we were maybe 3 or 4 western style blocks from home. At that time I started to get that back pain. For me it is pretty much in the middle and then spreads to the front left right above my heart. Usually I stop as soon as I feel that pain. since Dr. Gilligan said that I could develop "potentially fatal arrhythmias" if I push my heart to beat faster. But just out of curiousity I kept going last night. (I don't think that is quite as dangerous as it sounds because I have pushed myself past that point my whole life without dying, so actually I did not even think of dying and obviously I did not.) Anyway, the pain spread to the front but did not get bad, but a few minutes later, I had to stop and sit for awhile because my knees were starting to tremble and buckle and I knew I was pushing to the point of foolishness. So, what's the point? I guess, once again I confirmed that for me that back pain is a warning I must heed. Maybe some of the rest of you can relate to this and figure out how to stop before problems get too bad.

    Rhoda

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  • angall
    replied
    Re: HCM related back pain

    Pam
    Yes, it does make sense. I know when I get pain when I am driving, I press my back to the back of the seat, this helps. If my husband is around, he rubs my back which relaxes me, therefore I am able to breath better and my backache is not as bad. I do wear support knee high stockings (I was fitted for them while I was in the Mayo hospital) and it is difficult to know if my ankles are swelling. There are times I notice the area above my stockings, at the knee, is swelling and my abdomin is swelling because my pants are tighter around my waist. I am on 3 different types of diuretics daily. My doctor can't seem to find out why I am still retain fluids. I do watch what I eat....no canned foods, I don't use salt when I cook or add salt at the table, occassionally I'll have a hot dog when we have a cook out, but not often. Oh well, another mystery

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  • Pam Alexson
    replied
    Re: HCM related back pain

    When I get it and in the past when i got it and I had a large gradient it would last a lot longer then it does nowadays. It is in the back mid right side. I usually seem to note that I am more filled with fluid and short of breath like as if I had asthma ; sort of tight and wheezy. I do not have asthma and have had pulmonary funtion tests with and without methyl choline. They did say I had a degree of pulmonaary obstructive disease. Knowing what I observed with patients and hearing their complaints it does sound like that could be a contributer. I feel it has to be majorilly related to the HCM as these symptoms seem to be enhanced when the heart is working with force for tasks and such . It stands to reason as we can visualize the heart working hard and the demand for Oxygen and nutrients increasing and the lungs sucking hard to meet their needs for supply to the body. It is like everything starts to back up and work less efficient as with airation and perfusion. Make sense? The pain also seems to move forward to the front right when things are real bad and I am pushing like a freight train. The pain is sharp to dull comes and goes if I back off , better if I lie down. I find myself unable to stop rubbing it when it is at it's worst. My back I press against a hard surface and it makes me feel better. If you are experiencing similar, a good tool is to try to measure your girth and compare it to other days. Along with your daily weights and even measurements of feet ankle and calf. I know , a lot of work. Mine is very measurable and different from day to day when I am having a problem. Follow the belly button line for accuracy. These are data that the docs can work with. From the beginning this has been a problem for me ;it is ascites. The liver becomes engoraged as the systemic fluid goes up . The only thing that works for me is diligent management of my diuretics and getting the feet up for frequent periods. And actually making sure I am well hydrated and not too salty. I know it sounds backwards but it works for me. I hope this has helped . It is good to share. We find our common ground amongst a diverse disease. . Pam

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  • angall
    replied
    Re: HCM related back pain

    Hi Pam
    I know the pain doesn't last very long, but sometimes it comes back in a few hours. I wonder what is causing it? I know it related to HCM, but how? Do you get pain any where else when you get the pain in your back? I don't. Like I said before, it's great being able to compare notes with people with the same heart disease. This is something I was never able to do before. Thank you, Lisa, for creating such a wonderful, informative site.

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  • Pam Alexson
    replied
    Re: HCM related back pain

    Esther I get exactly the pain you describe and seems to be provoked like you explained. Pam

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  • Ronnie
    replied
    Re: HCM related back pain

    Over the years, my response to "aches & pain", has been "oh, it's nothing-work thru it" - but I was wrong, to just blame myself for being a wimp. Now, a Myectomy, a By Pass & Monthly (improved from weekly) Cardiologist visits, I now recognize "It's Something" My Cardiologist told me for years that Women respond differently from Men, but I always blamed myself for not being strong enough. This Board has helped me seee "I'm not (so) weird & other eople struggle with some of the same things I do! This has made a Major Impact on My Life!
    THANK YOU - ALL OF YOU!

    ps - I too have that middle back pain

    Leave a comment:

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