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Help clearing up some facts


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Abbygirl2 Find out more about Abbygirl2
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  • Help clearing up some facts

    I was researching HCM and came across this info, can anyone tell me how much truth there is to any of this.

    -A heart biopsy may be helpful to distinguish hypertrophic cardiomyopathy from other diseases.

    -A coronary angiography may be needed to confirm the diagnosis.

    -There may be progression into dilated cardiomyopathy.

    Particularily the last one...about progressing to dilated cardiomyopathy. Is this very common among HCMer's?

    Thanks all,
    It's not what you gather, but what you scatter that tells what kind of life you have lived.

    Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.

  • #2
    Re: Help clearing up some facts

    Biopsy MAY be able to show myocardial disarray - but is not a screening tool for HCM - it hold little value because you may take a biopsy from an area of the heart that does not have myocardial disarray.

    A coronary angiography may be needed to confirm the diagnosis.
    It it more likely this will be used to rule out co-exsisting CAD.

    There may be progression into dilated cardiomyopathy.
    About 5% of those with HCM will progess into "end stage" or "burnt out" HCM.

    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)