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AAGHHH! I think my local cardiologist has lost it!

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Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05 Find out more about Toogoofy317
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  • #1

    AAGHHH! I think my local cardiologist has lost it!

    I'm at a loss right now. I went to see my local cardiologist for a follow up on my hospital stay and renew scripts. He seemed quite distressed about my shortcomings. Our goal has been to be hospital free for a month not be in the hospital for a month. So he took me off ALL of my heart meds. I'm not sure what to do.

    I just hope they haven't given up on me. I know I'm a hard case but there has to be hope somewhere.

    OH, well thanks for listening!

    Mary S.
    Tags: None
  • #2
    Re: AAGHHH! I think my local cardiologist has lost it!

    Mary,
    Did he speak with Dr M and Dr u and they all agreed to this?

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    • #3
      Re: AAGHHH! I think my local cardiologist has lost it!

      NO, he hasn't. I've been trying to desperatly get a hold of them since it happened. Normally they are quick to return messages but seems like an eternity to me right now.

      Mary S.

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      • #4
        Re: AAGHHH! I think my local cardiologist has lost it!

        Mary

        Please keep on top of everything those docs don't sound like good docs to me just up and taking you off your meds like that after you beng in the hospital for a blood clot have they lost there minds but then again we are talking about Florida, but i thought it was the florida insurance companies that didn't know what they were doing. Mary please let us know what you find out please

        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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        • #5
          Re: AAGHHH! I think my local cardiologist has lost it!

          Mary, Have Dr. Maron or Dr. Udelson paged right away. This does not sound right!. Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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          • #6
            Re: AAGHHH! I think my local cardiologist has lost it!

            Mary,
            do what Pam said! That's ridiculous! get rid of that bozo down there!
            \"It is not length of life, but depth of life.\"

            Ralph Waldo Emerson

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            • #7
              Re: AAGHHH! I think my local cardiologist has lost it!

              Just talked to Mary. She spoke with Dr. Maron who has a call in to her cardiologist. Looking at the clock, they will probably not talk until tomorrow, and Mary will hopefully post the outcome. She was in another doctor’s office and the doctor came in cutting our conversation short. She’s working three days this week, and has doctors appointments on the other days. I’ve done that dance myself, but I think there are better ways to keep busy.
              Burt

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              • #8
                Re: AAGHHH! I think my local cardiologist has lost it!

                Hang in there, Mary!

                Reenie
                Reenie

                ****************
                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.

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