well, I ended up in the hospital again yesterday..was at work when I started to feel funky (almost faint). My boss (who is a nurse) took my pulse and it was 40. My husband took me to the e.r. in Worcester and stayed for tests/observation overnight. I'm not taking well to the Sotolol. I think the doctors are going in the direction of a pacer put in.
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Re: back in the hospital again
Hi Cynthia,
I'm sorry to hear the news, and hope that things get straightened out for you very quickly. Try not to get discouraged. I anticipate being back in the hospital very soon to try and get this CHF under control, but I promise to hang in there if you do the same. Deal?
Take care,
Jim"Some days you're the dog... some days you're the hydrant."
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Re: back in the hospital again
Cynthia - I have a ICD/pacemaker partly because I was bradycardic on a very small amount of beta blockers and my blood pressure was very low. Ever since I got the device, it has been much better, and I now tolerate a high dose of beta blockers very well.
This might help alot, and the surgery is really no big deal.Daughter of Father with HCM
Diagnosed with HCM 1999.
Full term pregnancy - Son born 11/01
ICD implanted 2/03; generator replaced 2/2005 and 2/2012
Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.
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Re: back in the hospital again
thanks, Cynthia and I'm glad it is working good for you. I haven't actually met and spoken with the Boston doctors but will have an appointment very soon to discuss the action plan here. I think they are in agreement with the pacer. They tried the sotolol starting last Tuesday, but I was in extra low gear and yesterday had a heart rate of 40. I'm not a good candidate for this more potent beta blocker. I believe they will keep me on verapamil if I get a pacer\"It is not length of life, but depth of life.\"
Ralph Waldo Emerson
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Re: back in the hospital again
Hang in there Cynthia, things will get better and ICD isn't that bad i've had mine now for 2 years and it has never went off, but anyway good luck and i will continue to have you in my prayers
ShirleyDiagnosed 2003
Myectomy 2-23-2004
Husband: Ken
Son: John diagnosed 2004
Daughter: Janet (free of HCM)
Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9
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