If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

miracle at Tufts


About the Author


Shy Heart
Find out more about isabellakp
  • Filter
  • Time
  • Show
Clear All
new posts

  • miracle at Tufts

    dear friends, through the kind efforts of lisa and all those with the HCMA i was seen at New England Medical Center Tufts. Dr. Marty Maron, and staff were the kindest and most helpful doctors i have met in all of my life ( and i have met MANY doctors.) Dr. Carey Kimmelstein performed alcohol ablation. After nearly a year of not being able to walk further than 50 feet and many OTHER symptoms....the day AFTER surgery, i was roaming the halls of the hospital...the nurses practially chasing after me to put me on a heart monitor!!!! This is no exaggeration. I am experiencing a NEW LIFE!!! I didn't even KNOW that i could feel this much better!! And this is only 1 week after surgery. So many great things to share...but i just wanted everyone to feel uplifted my the remarkable blessings of this website...and of those people who devote their lives to helping others. How can one possibly say THANK you...for such a momentous gift? May everyone be so blessed with the continued support and success of HCMA...and may it inspire those with other medical problems to also have such support and genuine care. My greatest thanks to all....Safely Home in San Francisco...i send my love and gratitude....

  • #2
    Re: miracle at Tufts

    Isabella, How wonderfull for you I have been watching and wondering how you were. I agree with all you said we are trully blessed to have such fine human beings helping us . I love all them at NEMC also. May you continue to do well . Knowing how bad you felt it truly appears to be miracculous . Keep us posted . Pam
    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


    • #3
      Re: miracle at Tufts

      WOW! Great!



      • #4
        Re: miracle at Tufts

        I am so happy for you! I hope you continue to feel well. Yet again proof that getting to the right center can make ALL the difference!

        Be well,
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


        • #5
          Re: miracle at Tufts

          Isabella, what a feel good story, as I read it, I could feel your excitement.
          Thanks for sharing.
          Imagine what you'll feel like when all the healing is done.
          Good Luck & Stay well
          Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
          So if you are capable of thought then you are capable of great things
          Good luck and stay well.


          • #6
            Re: miracle at Tufts

            aren't they the BEST at NEMC?! I literally just got home 15 min. ago. I was hospitalized since Tuesday. I had to be monitored as they started me on Sotolol (an anti-arrythmic). I responded well to it....keeping my fingers crossed that it helps my afib episodes. The doctors and nurses are just wonderful there. It was almost sad in a weird way, to leave. Sounds like you are feeling great....best of luck to you
            \"It is not length of life, but depth of life.\"

            Ralph Waldo Emerson


            Today's Birthdays