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miracle at Tufts

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isabellakp Find out more about isabellakp
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  • miracle at Tufts

    dear friends, through the kind efforts of lisa and all those with the HCMA i was seen at New England Medical Center Tufts. Dr. Marty Maron, and staff were the kindest and most helpful doctors i have met in all of my life ( and i have met MANY doctors.) Dr. Carey Kimmelstein performed alcohol ablation. After nearly a year of not being able to walk further than 50 feet and many OTHER symptoms....the day AFTER surgery, i was roaming the halls of the hospital...the nurses practially chasing after me to put me on a heart monitor!!!! This is no exaggeration. I am experiencing a NEW LIFE!!! I didn't even KNOW that i could feel this much better!! And this is only 1 week after surgery. So many great things to share...but i just wanted everyone to feel uplifted my the remarkable blessings of this website...and of those people who devote their lives to helping others. How can one possibly say THANK you...for such a momentous gift? May everyone be so blessed with the continued support and success of HCMA...and may it inspire those with other medical problems to also have such support and genuine care. My greatest thanks to all....Safely Home in San Francisco...i send my love and gratitude....

  • #2
    Re: miracle at Tufts

    Isabella, How wonderfull for you I have been watching and wondering how you were. I agree with all you said we are trully blessed to have such fine human beings helping us . I love all them at NEMC also. May you continue to do well . Knowing how bad you felt it truly appears to be miracculous . Keep us posted . Pam
    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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    • #3
      Re: miracle at Tufts

      WOW! Great!

      Rhoda

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      • #4
        Re: miracle at Tufts

        I am so happy for you! I hope you continue to feel well. Yet again proof that getting to the right center can make ALL the difference!

        Be well,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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        • #5
          Re: miracle at Tufts

          Isabella, what a feel good story, as I read it, I could feel your excitement.
          Thanks for sharing.
          Imagine what you'll feel like when all the healing is done.
          Good Luck & Stay well
          Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
          So if you are capable of thought then you are capable of great things
          Good luck and stay well.
          Glen

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          • #6
            Re: miracle at Tufts

            Isabella,
            aren't they the BEST at NEMC?! I literally just got home 15 min. ago. I was hospitalized since Tuesday. I had to be monitored as they started me on Sotolol (an anti-arrythmic). I responded well to it....keeping my fingers crossed that it helps my afib episodes. The doctors and nurses are just wonderful there. It was almost sad in a weird way, to leave. Sounds like you are feeling great....best of luck to you
            \"It is not length of life, but depth of life.\"

            Ralph Waldo Emerson

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