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A note from Midge

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Midge Rollins Heart transplant March 04. Prior to that I had Hypertrophic Cardiomyopathy. I am an independent Norwex consultant. Visit my web site www.midgerollins.norwex.biz Find out more about Midge Rollins
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  • A note from Midge

    I just read some posts after not checking for a while and saw Shirley's inquiry about me. Thank you for caring. I am doing well. I have about 4 1/2 weeks left to stay here at the transplant house. It is an awesome place with 47 rooms, you are required to have a caregiver with you. We prepare our own meals, go to our appts at the clinic or hospital. I am now in cardiac rehab 3 x a week. Plus workout here at the house the other days. My exercise tolerance is higher than it has been for 5 years. The anti-rejection drugs are very difficult to get just the right level. They do biopsies every week for 4 weeks and then every 2. I had one episode of rejection but they turned it right around with high doses of steroids IV. The side effects of these drugs are I shake a lot but they say it will get better. I have never taken so many meds. Right now in the house are 6 heart transplant pts. The most ever at one time. We age from 20-60. Lots of stem cell transplant people here, a few liver and kidney. It is truly a house of miracles. I have met some life long friends. We laugh together and cry together. I have become a Grandma again while I have been here and hope to see the little guy soon. Even though I no longer have HCM I will continue to be part of this board. I did get to see my old heart. It is in a bag cut in sections and looks nothing like a heart anymore but they did point out the thickened walls. I hope to be home by June 18. I certainly do see why they keep us here 3 months though. I must close and head off to exercise. Stay healthy and stay positive.
    Midge

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.

  • #2
    Re: A note from Midge

    Dear Midge,

    Wonderful to hear from you!! I am truly thankful that you are doing so well.

    Rhoda

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    • #3
      Re: A note from Midge

      It is so good to hear from you! I am thrilled to hear you are feeling so well. I knew you would do well...ATTITUDE is so KEY and you have been a wonderful example of the good that can come from a good ATTITUDE~!!

      Best wishes,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Re: A note from Midge

        Midge it is nice to hear from you and that you are doing so good i hope the very best for you , it is scarey not to hear from you, but bad news travels fast so you take care and hope you go home soon to see that little guy as you called him

        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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        • #5
          Re: A note from Midge

          Dear Midge,
          Or should I say Mrs. Newheart. I was very glad to hear your doing so well. Congratulations on acquiring another grandchild to visit, spoil, and hand back. I love grandparenting, even though my twins will soon be sixteen and are learning to drive – no more shiny quarters, now they want to fold their presents. - - - In time you’ll see too.
          Burt

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          • #6
            Re: A note from Midge

            Midge -
            What a wonderful transplant gift ...a new family member. I forgot to congratulate you on your grandchild!
            ENJOY!!
            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #7
              Re: A note from Midge

              Midge,
              I'm so happy you are feeling good and congratulations on your new grandchild!
              \"It is not length of life, but depth of life.\"

              Ralph Waldo Emerson

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              Today's Birthdays

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