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LVhcm on ER show


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Laura Hcm patient I have a great husband thank God, I wish i had NEVER heard of chest pain!!!! Find out more about Laura
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  • LVhcm on ER show

    Er showed an obese teenager w/hypertension and hcm.
    Did anyone else catch this?
    One of the Dr's mentioned finding info about HCM
    on the internet.

    Laura Johnson

  • #2
    Re: LVhcm on ER show

    YES - septal measurement was 2.1 and LV Wall was 1.7 and they were calling it primary hypertension????

    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3
      Re: LVhcm on ER show

      I saw this episode but since I was doing something else while watching the television, I wasn't paying close attention to it. How was it?

      Mom of Keanu
      4 years old (will be in March)
      Dx at 2 days old with Biventricular hypertrophy
      Dx at 6 weeks with HOCM
      Dx at 5 months with V-tach
      Dx at 3 with Noonan Syndrome


      • #4
        Re: LVhcm on ER show

        I taped it on Thursday night so I could attend my neice's dance recital. Then I watched that episode a few days later, I think it was Saturday. I was excited to see the piece about HCM, but disturbed that they sent the young 17 year old male home with a misdiagnosis. At the end of the show he came back in the ER in Congestive Heart Failure (CF). At least he didn't die on the show...it was tough enough to watch with the death of the unborn infant in that episode. Can't shed enough tears for the loss of a child no matter how old.

        Great to see more exposure of HCM on national TV shows. I hope that with more education and awareness people will start recognizing our need for more help.

        Lisa is right, we need more ways to support the many many families that are currently a part of HCMA'S growing support system. Be creative and someday we will be on the Oprah Show!

        See you all soon at the HCMA Annual meeting and/or in San Francisco!


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