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Call from Mary..


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Lisa Salberg Find out more about Lisa Salberg
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  • Call from Mary..

    UFF DA!

    I got a call from our friend Mary (sharp - aka toogoofy) a little while ago. Some people just can not catch a break!
    Mary is in the hospital with 2 blood clots - one in her leg - the other in her lung. She expected to be in the hospital until at least Monday.

    She was in good spirits ...but missing the internet BIG TIME! I told her I would call her and read your messages to her.

    Burt - Mary said she hopes you are not worried about her!

    Lets all keep Mary in our thoughts and prayers!

    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: Call from Mary..

    Sorry to hear about Mary, I will pray for a speedy recovery for her, Take care.
    It's not what you gather, but what you scatter that tells what kind of life you have lived.

    Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.


    • #3
      Re: Call from Mary..


      Is this the Mary in Florida, oh my goodness if so she has gone through alot this year and my prayers and thoughts go out to her

      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


      • #4
        Re: Call from Mary..

        Oh Mary ! I can't believe it! When will the brighter side of the moon shine for you? You are in my thoughts and prayers. Keep your chin up we are all pulling for you. Get well real soon . Lots of hugs. Pam
        Dx @ 47 with HOCM & HF:11/00
        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
        Lead failure,replaced 12/06.
        SF lead recall:07,extracted leads and new device 2012
        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
        Genetic mutation 4/09, mother(d), brother, son, gene+
        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


        • #5
          Re: Call from Mary..

          Of course I’m worried about her. I’d have to be made of stone not to be. She is such a good kid, and a strong kid, and yet she goes from one stinking problem to another.

          If she has her cell phone with her – or the hospital phone, please PM me with the number, and tell her her “grandpa” loves her.

          Since this is National Prayer Day, why don’t we all send her our best. She deserves all the help she can get.


          • #6
            Re: Call from Mary..

            I wish you a speedy recovery and I'm sending prayers your way
            \"It is not length of life, but depth of life.\"

            Ralph Waldo Emerson


            • #7
              Re: Call from Mary..

              Golly, Mary! Can't you keep it together for a week?!? Just kidding. I hope that you're fixed up ~ again ~ and good to go next week. Was it the 12 hour days that got ya?



              Husband has HCM.
              3 kids - ages 23, 21, & 19. All presently clear of HCM.


              • #8
                Re: Call from Mary..

                I spoke with Mary a short while ago also. She was tired, obviously in need of a nap, but hanging in there. I know all the well wishes and prayers will cheer her. She is receiving great support from her work supervisor, and that will help her tremendously. Linda


                • #9
                  Re: Call from Mary..

                  Hey Mary,

                  I miss my Instant Messenger buddy! Get home and get back online! Hope you get better real soon

                  "Some days you're the dog... some days you're the hydrant."


                  • #10
                    Re: Call from Mary..

                    Mary - Get better soon. I am sorry to hear that you are having yet another bump on the road. I hope this passes quickly.

                    Daughter of Father with HCM
                    Diagnosed with HCM 1999.
                    Full term pregnancy - Son born 11/01
                    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
                    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


                    • #11
                      Re: Call from Mary..

                      Certainly had her problems over the last year or so.
                      Good luck Mary.
                      Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                      So if you are capable of thought then you are capable of great things
                      Good luck and stay well.


                      • #12
                        Re: Call from Mary..

                        Hi All,
                        Just got off the phone with Mary. Her spirits are still good, and she says she is being treated very well. She’s in the hospital where she works, and her co-workers have all been down to see her, plus she had some friends drop by yesterday. Believe it or not, even one of her patients dropped in to see her. Now that’s a likeable kid.

                        She said she was going to ask the nurse for something and take a nap, but after the nap if anybody would like to talk to her, she’d like the call. Her hospital phone number is (321) 841 – 0596 – (she asked me to post it.) She’s on complete bed rest and a restricted fluid intake, so no wild drinking orgies please – at least not for now.


                        • #13
                          Re: Call from Mary..

                          Mary, I know we have never met but unfortunately we are members of the same club (HCMA). Be tough, be strong and always have faith...

                          " Real Courage Is Being Scared To Death But Saddling-Up Anyway "


                          • #14
                            Re: Call from Mary..

                            Well Burt, I talked to Mary after you did. Your call did wonders for her, I could feel the glow thru the phone! She sounded much better today. All the prayers and well wishes are helping. She knows it's one more challenge, but with the help and support of all, she'll lick this one too. Linda


                            • #15
                              Re: Call from Mary..

                              Linda – You just made my whole day. Thanks, Burt


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