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  • New Research

    [New Research]

    Author: Darrin Bright (140.254.45.---)

    Date: 05-20-02 11:03

    My name is Darrin Bright. I'm an Assistant Professor in the Department of Family Medicine and Sports Medicine and serve as a team physician in the Department of Athletics for The Ohio State University. I have a special interest in Hypertrophic Cardiomyopathy.

    We are currently working on an assay that shows great promise in detecting the early ventricular remodeling that occurs in hypertrophic cardiomyopathy. I am trying to find patients with hypertrophic cardiomyopathy to use in our study population. Are there any patients in Ohio who would be interested in participating in a small study? Participation would require a small blood sample and providing the history regarding your diagnosis and how it was determined. As we get closer to developing the project I will be able to provide more details. Right now we are just trying to see if there are enough patients in the area to perform the study.

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    [Re: New Research]

    Author: Kate Hassen (206.104.53.---)

    Date: 05-21-02 12:41

    Darrin,

    My son was diganosed with Hypertrophic Obstructive Cardiomyopathy when he was 9 months old. He currently is 2.5 years old. He is being treated with Verapamil 5.0ml three x's a day. I am interested in helping out with the heart disorder study. However, I am a single parent and also have a 5 year old son. What information would be helpful.

    Kate

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    [Re: New Research]

    Author: Sue (---.wmnsmd.adelphia.net)

    Date: 05-21-02 15:02

    FYI - We all know how important research is and truly support it. Equally important or even more important is the need for participants to understand all aspects. An excellent website is available to explain the process of "informed consent" and even lists questions to ask of the researcher before participating. This site is from the Genetic Alliance, a national organization representing support and advocacy groups throughout the nation. The site is http://www.geneticalliance.org/genet...edconsent.html

    I'm sure this info will be helpful to any potential participants, and the understanding gained can only help the researchers too. Hope this helps.

    Sue
    NOTE: This is a post from the previous forum message board.

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