If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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  • bundle branch block

    [bundle branch block]

    Author: mia (202.164.188.---)

    Date: 05-18-02 14:54

    i have been diagnosed with HCM 8 months ago. i'm 22 and i'm from the philippines. i don't know of anyone else with the same thing though i am sure there are probably others. i just recently found out about HCMA. i have been brought to the ER 6 times since last year and i've been admitted twice. i just got out of the hospital and my doctor says i should live a normal life just on medications. what do you think? i'm maintained on metoprolol (beta-blocker). the thing is i'm a clinical clerk and hospital duties aren't exactly "normal". my ecg upon admission showed right and left bundle branch block. my last ecg did not show a block. why is that so? am i getting worse? i am symptomatic almost everyday. are calcium channel blockers any better? they just recently increased my dosage but they're afraid i might get hypotensive. my baseline BP is only 90/60. would i need a pacemaker or a fib?

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    [Re: bundle branch block]

    Author: sarah beckley -moderator (---.dsl.mindspring.com)

    Date: 05-18-02 21:38

    Dear Mia,

    I'm very glad you found the HCMA. However, it just isn't possible to answer all of your questions over the Internet. Not having a block is better than having one, but I can't tell you if you are getting worse. It does sound like you need more medical care than you are currently receiving.

    Every single person's experience with HCM is different. Beta-blockers are the drug of choice. However, if the dose or type of medication you are taking is not controlling your symptoms, then it is not a bad idea to try other medications or procedures. There are other medications that are neither calcium-channel or beta-blockers. Potassium channel blockers (Norpace, Tikosyn) and Cordarone are a few. You may be a candidate for an ablation or a myectomy, but only an HCM specialist can evaluate you for that.

    The only way to know if you need an ICD/pacemaker is to be evaluated for any risk of sudden death by an HCM specialist. Most HCM patients DON'T need one.

    Everyone in your family should have an echocardiogram to determine if they have HCM or not.

    Please call the HCMA at 973-983-7429 to get the names of doctors near you. It is imperative that you see someone who understands HCM.

    take care,

    Sarah

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    [Re: bundle branch block]

    Author: mia (202.164.166.---)

    Date: 05-23-02 10:28

    hi. i was wondering if you could give me an email address. i'm from the philippines and an overseas call would be expensive. recently got out of the hospital and have tons of bills to pay. thanks so much. this HCMA really helps. finally people who actually "feel" whati feel.

    mia

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    [Re: bundle branch block]

    Author: Shayne (192.76.86.---)

    Date: 05-23-02 13:20

    Thanks for replying to my post Mia. Here's my experience.

    My pacemaker was a God send when I got it. Before I got it, when I ate, I'd have to lie down and wait for my food to digest. I felt exhausted just from eating. After the pacer, I've never had that. I worked well for me. Then I got worse and had to have the myectomy. I had mine done in Indianapolis. I felt good for about a year then started having symptoms again. I've been pretty much the same for about two years now. I was on Calcium Channel blockers for a while, but they gave me really bad migranes. I don't take them anymore.

    I'm getting married next year and since my fiancee' has come along, I've actually felt a lot better. I think the lack of stress and just being happy has made a ton of difference in my life. Keep a positive attitude and everything will be ok. I've had this disease for almost 10 years, I know how a positive influence can help!

    Keep your chin up. You can e-mail me if you have any other questions. I can only give you advice from my experience. This site is pretty cool isn't it!

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    [Re: bundle branch block]

    Author: sarah beckley -moderator (---.dsl.mindspring.com)

    Date: 05-23-02 13:59

    Dear Mia

    There is an e-mail link to the HCMA office at the top of this page.

    S
    NOTE: This is a post from the previous forum message board.

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