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  • chest pain /shortness of breath

    Just an update on whats been going on. I,ve been to Boston a couple of times since my last posting. I,m now back on a small doase of isosorbide to help with the chest pain and shortness of breath,no results yet and we will more than likely increase it soon. I really get discouraged some time, especially with summer comming soon, and the HEAT. Every time I see the team at NEMC they never fail to mention heart transplant, I,m not so sure I,m ready for that any time soon. So for know my family and I we just keep on plowing through and hoping for results.
    THANKS FOR LISTENING
    dennis

  • #2
    Re: chest pain /shortness of breath

    dear dennis

    i understand how hard this all is and a transplant is a big step but the NEMC guys know their stuff and you may want to think about what support you would need in order to accept what they are saying and get on the list.

    good luck and read the posts by midge (you can search by auther here) as she just had a transplant --very successfully!

    take care,

    s

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    • #3
      Re: chest pain /shortness of breath

      Dennis,
      If you are being adviced by a specialist to think about transplant - I would suggest you give it some VERY serious thought. You can go through the process to get listed and make sure that you are all ready if you need it. However if you choose that it is not the right thing for you you can always decline should the call come that a heart is ready. On the other hand if you find yourself in urgent need and have not gone through the pretransplant process, you may find the choice is no longer yours to make.

      Please give it some thought, discuss it with your family and do what is best for you.

      Best Wishes,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Re: chest pain /shortness of breath

        Dennis, You have many difficult decisions to work through. I wish you all the best as you move through the weeks ahead of you. We are all here for you. It's good to know that you have a loving, supportive family right there with you and I'm sure the love and encouragement of friends will be a tremendous help. We'll be praying for you all. Linda

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