Thanks to Lisa and many of you who shared their knowlege, experiences, and kind words on this board and in private messages I was finally able to make some sense (in my mind) on proceeding with my myectomy. I now have been able to move forward and with Lisa's help my surgery is scheduled for the 23rd of this month at the Mayo. I will fly out to start tests and ect the 20th. I am anxious to be feeling better and I thank you for your support and I'll update you soon! Richard Nelsen
Announcement
Collapse
No announcement yet.
Thanks for your help, I'm off to the Mayo.
Collapse
X
-
Re: Thanks for your help, I'm off to the Mayo.
You will be in my thoughts and prayers , will be watching to read your progress. Three cheers to feeling better! PamDx @ 47 with HOCM & HF:11/00
Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
Lead failure,replaced 12/06.
SF lead recall:07,extracted leads and new device 2012
[email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
Genetic mutation 4/09, mother(d), brother, son, gene+
Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin
Comment
-
Re: Thanks for your help, I'm off to the Mayo.
Richard
You and your family will in my prayer, keep us updated. It has now been 2 months since my myectomy and am glad i had mine and you will too just give yourself time
ShirleyDiagnosed 2003
Myectomy 2-23-2004
Husband: Ken
Son: John diagnosed 2004
Daughter: Janet (free of HCM)
Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9
Comment
-
Re: Thanks for your help, I'm off to the Mayo.
Richard,
I know you were struggling with the decision, so i am very glad you were able to work things out and start moving forward again. You made the right decision, buddy. (Because you took your time, sought out the advice of knowledgeable people, and made the decision that's exactly right for you.)
Woo hoo! I'm doing a little happy-dance... but you can't see it.
Keep us posted!
Jim"Some days you're the dog... some days you're the hydrant."
Comment
-
Re: Thanks for your help, I'm off to the Mayo.
Originally posted by mtliebWoo hoo! I'm doing a little happy-dance... but you can't see it.
Jim
ReenieReenie
****************
Husband has HCM.
3 kids - ages 23, 21, & 19. All presently clear of HCM.
Comment
-
Re: Thanks for your help, I'm off to the Mayo.
Richard,
Good luck, hope you have a quick recovery. My thoughts are with you.
PamIt's not what you gather, but what you scatter that tells what kind of life you have lived.
Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.
Comment
-
Re: Thanks for your help, I'm off to the Mayo.
Originally posted by ReenieWould we WANT to???
No more happy-dances for Reenie. You're cut off. LOL.
Jim"Some days you're the dog... some days you're the hydrant."
Comment
-
Re: Thanks for your help, I'm off to the Mayo.
Tell ya what.... If I get to go to the meeting in June, you HAVE to do the happy dance for all to see.Deal??
ReenieReenie
****************
Husband has HCM.
3 kids - ages 23, 21, & 19. All presently clear of HCM.
Comment
-
Re: Thanks for your help, I'm off to the Mayo.
Felix... I will hold you to that
Richard,
I am very happy that you have been able to get this moving so fast. I can tell you that I have nothing but good feelings about your procedure...in fact you are having it done on my dads birthday!
Give my best wishes to the team at Mayo - I know that they will take great care of you!
Best wishes,
LisaKnowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
Comment
Channels
Collapse
Comment