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Symptoms of A-fib

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Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05 Find out more about Toogoofy317
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  • cynthiaG
    replied
    Re: Symptoms of A-fib

    thanks for the information, Pam. I wonder if any HCM specialists would say if sleep apnea has an adverse effect on our hearts. I'm mentioning this to my PCP. He knows a lot about HCM too so I'm very lucky..he's the best PCP I have ever had. He get things done fast. Talks with my doctor in Boston and is just plain wonderful. I'm sure he can answer questions I have about this.

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  • Pam Alexson
    replied
    Re: Symptoms of A-fib

    Interesting, It seems that my pacer paces me at night only as seen on my last interogation. I think from what I know we can assume that breakthrough sleep apnea is occuring on some nights and this can be attributed to many factors as with the mask having a poor occlusion and restlessness knocking it off etc. As with most diseases and conditions there are variables. You might have mild sleep apnea on one night and another you could test a little worse. As I know that sleep apnea is not good for your heart mild or otherwise it might be a good idea to push for another test. If you are snoring that bad then it sounds like your airway is obstructing to a degree. I know it is very hard to adjust to the tubes and mask etc. and when the power goes out ,WOW! There are many different masks and they owe it to you to get the right one for your comfort. I wanted the least obtrusive so I went for the Phantom. It has a gell in the lining is very comfortable and lasts about 6 months. My equipment provider just has me order 2 times a year. I think it is possible as various things can trigger a-fib. Persist in getting to the bottom of this problem. I had to go to 2 separate labs to get the right results.Pam

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  • Abbygirl2
    replied
    Re: Symptoms of A-fib

    I know I have some sort of sleep problems and my Dr was supposed to set up an appointment for me at the sleep clinic but has yet to do so. It is so frustrating dealing with busy Dr's, and I can't get in to see her again for 2 more months. Unfortunately it doesn't matter who I see here, they are all busy(serious shortage of Dr's). My cardiologist never mentioned anything odd about my breathing and heart rate, I am seeing a new cardio, soon for a 2nd opinion, and hopefully eventually an HCM specialist, so maybe I will be able to figure this all out.
    Everything seems to be moving at a snails pace.

    Thanks
    Pam

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  • cynthiaG
    replied
    Re: Symptoms of A-fib

    I stopped using the CPAP about a year and a half ago. I could not get used to wearing that mask and tube,etc. When I had the sleep test in the hospital, they told me I had mild sleep apnea. It was intereting that you mentioned that "anxious" feeling in the chest when you start to fall asleep and then wake up suddenly...that happens sometimes when I fall asleep (sitting up with my head slightly back) on the sofa. I had briefly mentioned to the doctors in Boston that I used it but they didnt say anything. The weird thing is that for a long time I did not snore much and now I do! My husband said that the other night it was awful!!! I'm wondering if this can "trigger" any AFIB?? just a thought...wonder how many of us have sleep apnea??

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  • Sarah
    replied
    Re: Symptoms of A-fib

    dear abby

    your heart rate shouldn't go up and down like that. i highly recommend looking into a better medication plan and perhaps look into sleep problems?

    please talk to lisa about specialists.

    take care,

    S

    Leave a comment:


  • Pam Alexson
    replied
    Re: Symptoms of A-fib

    Yes Cynthia, I also tested severe sleep apnea in 2000 the year I was diagnosed with HCM. I started with a C-Pap ; which is continuous positive air pressure. I was switched in 2001 to a Bi-Pap; intermittent positive air pressure. This gives me a pause to exhale against. Both times I was kept over night for the sleep test. It is a fact that untreated sleep apnea results in many ill effects one of the biggies being very adverse effects on the heart. One of the other big problems is people falling asleep at the wheel due to sleep deprivation. I can not even take a short nap without using my machine. When I was in the ICU post myectomy I had to have them hook it up after they extubated me as I was not able to sleep. Without it there is an extreme sense of anxiety like a thrill in the chest as you fall asleep only to be awakened as your brain has you gasping for air. I know there are many varying degrees of these sensations and depending on how severe the chemical changes are as the individual falls asleep. For me I stop breathing 70 times a minute and for as long as 30 seconds. My O 2 sat was as low as 69/100. You probably feel so much better with the C-Pap. The only time it seems to be a little more difficult is when I have extra fluid on and am short of breath , it takes extra time to get the right elevation in bed and to be able to adjust to the air flow. I hold the mask out away from my face on those times until my breathing makes the assimilation. Otherwise I get too anxious. Ah the joys of all these added complications huh? Best Wishes . Pam

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  • cynthiaG
    replied
    Re: Symptoms of A-fib

    Something Pam just mentioned made me think. I had a sleep test done overnight in the hospital the summer before last. I was tested as I was feeling tired and my husband said my snoring was getting unbearable!! I found out that I have sleep apnea. they put me on a CPAP machine where you put a mask like thing over your nose and it pumps air to open up your passageway. My doctor at the time (my PCP whom I no longer have) never mentioned if this had any negative effects on my heart. Has anyone had this machine?

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  • Abbygirl2
    replied
    Re: Symptoms of A-fib

    I only take 50mg of Atenolol. My heart rate has always gone up and down when I breath, my cardio never made an issue of it. However, my Dr(GP) mentioned the other day that during my sleep/oxygen test my heart spiked upto 130 or so every now and then. She is forwarding it to another cardiologist for a second opinion. I don't think one has to do with the other, just thought I would mention it.
    My GP said she was surprised to see my heart spike like that because usually with people taking Atenolol, the heart stays at a nice even pace. Maybe Atenolol isn't the drug for me.

    Pam

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  • Sarah
    replied
    Re: Symptoms of A-fib

    what are you taking? you should be on something that is going to even out your tachycardia.

    Leave a comment:


  • Abbygirl2
    replied
    Re: Symptoms of A-fib

    Thanks Sarah, my heart rate increases when I inhale and slows down when I exhale so I find it very difficult to judge whether my hearts thumping properly. I had a 'cheap' monitor that wouldn't even record my heartrate because its up and down so much.
    I really hate the 'weird feelings' in my chest.

    Pam

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  • Sarah
    replied
    Re: Symptoms of A-fib

    you can have palpitations, even runs of palpitations, that are not afib. afib is a very particular arrhythmia and it is more than likely someone would have mentioned it if they saw it in your ecg or event monitors as it can cause a heart attack or a stroke.

    when you are having your episodes, take your pulse and see what it feels like. if none of your beats are steady, and i mean not a one, it may well be afib and you should get it checked out.

    s

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  • Abbygirl2
    replied
    Re: Symptoms of A-fib

    How do you know for sure that you are in AFib? Is it one of those things that you WOULD know if you had been THERE? My heart does weird things, sometimes foran hour or more, sometimes less. If its not AFib then what is it? It has been caught on a holter-but nobody has mentioned AFib.

    Pam

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  • cynthiaG
    replied
    Re: Symptoms of A-fib

    Mary,
    I have had about half dozen Afib episodes.
    I always get them when I'm lying on my side sleeping. I can feel it, like Sarah, almost like it "kicks in"...I feel a thump thump and then it beats VERY IRREGULAR (i.e. fast beats, skipped beats...just all over the place). It continues for at least a couple of hours. One time I had to be cardioverted. It makes me really SOB and weak.

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  • Toogoofy317
    replied
    Re: Symptoms of A-fib

    Thanks for all of the replys! The only way I can describe my episodes is that I just feel funky. Not bad or pain just weird.

    I tried relaying Dr. Maron's request to my local. I think he was having a bad day when I could hear him from the back of the office yelling at the nurse that he didn't have time to see me! Of course, I wasn't asking him to see me I was just trying to relay the message. I had been trying since Friday but they were busy. When I finally got a hold of the office it was the answering service. Then, when I called on Monday the nurse told me to call on Tuesday so I could talk to the Dr. . Being that I work less than a block away I thought it would just be easier to stop in! So I just wrote the message down and left.

    Hopefully he will be in a better mood when he calls me back!

    Mary S.

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  • jujemendoza2002
    replied
    Re: Symptoms of A-fib

    I've been told that some people are more aware of their heart beats than others, like when I have my aicd checked I feel everthing when they pace the upper and lower chambers of my heart and I have heard some people say they don't feel a thing. But I also have spells of rapid atrail and even before my heart raced with atrail the first time I thought I had a heart attach, I didn't know what happened to me, don't worry this doesn't mean you'll feel that way, atrail fib feels like my heart is flip flopping every which way, like as if some had their hand in your chest playing with my heart, but it doesn't really hurt, it just feels weird.
    It's important to remeber it is treatable and you can live with it.
    This is just the way it feels to me.

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