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Symptoms of A-fib

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Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05 Find out more about Toogoofy317
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  • #16
    Re: Symptoms of A-fib

    dear abby

    your heart rate shouldn't go up and down like that. i highly recommend looking into a better medication plan and perhaps look into sleep problems?

    please talk to lisa about specialists.

    take care,

    S

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    • #17
      Re: Symptoms of A-fib

      I stopped using the CPAP about a year and a half ago. I could not get used to wearing that mask and tube,etc. When I had the sleep test in the hospital, they told me I had mild sleep apnea. It was intereting that you mentioned that "anxious" feeling in the chest when you start to fall asleep and then wake up suddenly...that happens sometimes when I fall asleep (sitting up with my head slightly back) on the sofa. I had briefly mentioned to the doctors in Boston that I used it but they didnt say anything. The weird thing is that for a long time I did not snore much and now I do! My husband said that the other night it was awful!!! I'm wondering if this can "trigger" any AFIB?? just a thought...wonder how many of us have sleep apnea??
      \"It is not length of life, but depth of life.\"

      Ralph Waldo Emerson

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      • #18
        Re: Symptoms of A-fib

        I know I have some sort of sleep problems and my Dr was supposed to set up an appointment for me at the sleep clinic but has yet to do so. It is so frustrating dealing with busy Dr's, and I can't get in to see her again for 2 more months. Unfortunately it doesn't matter who I see here, they are all busy(serious shortage of Dr's). My cardiologist never mentioned anything odd about my breathing and heart rate, I am seeing a new cardio, soon for a 2nd opinion, and hopefully eventually an HCM specialist, so maybe I will be able to figure this all out.
        Everything seems to be moving at a snails pace.

        Thanks
        Pam
        It's not what you gather, but what you scatter that tells what kind of life you have lived.

        Dx in Feb/99. Obstructed. No ICD, no surgeries, no family history. 2 sons ages 14 and 6.

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        • #19
          Re: Symptoms of A-fib

          Interesting, It seems that my pacer paces me at night only as seen on my last interogation. I think from what I know we can assume that breakthrough sleep apnea is occuring on some nights and this can be attributed to many factors as with the mask having a poor occlusion and restlessness knocking it off etc. As with most diseases and conditions there are variables. You might have mild sleep apnea on one night and another you could test a little worse. As I know that sleep apnea is not good for your heart mild or otherwise it might be a good idea to push for another test. If you are snoring that bad then it sounds like your airway is obstructing to a degree. I know it is very hard to adjust to the tubes and mask etc. and when the power goes out ,WOW! There are many different masks and they owe it to you to get the right one for your comfort. I wanted the least obtrusive so I went for the Phantom. It has a gell in the lining is very comfortable and lasts about 6 months. My equipment provider just has me order 2 times a year. I think it is possible as various things can trigger a-fib. Persist in getting to the bottom of this problem. I had to go to 2 separate labs to get the right results.Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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          • #20
            Re: Symptoms of A-fib

            thanks for the information, Pam. I wonder if any HCM specialists would say if sleep apnea has an adverse effect on our hearts. I'm mentioning this to my PCP. He knows a lot about HCM too so I'm very lucky..he's the best PCP I have ever had. He get things done fast. Talks with my doctor in Boston and is just plain wonderful. I'm sure he can answer questions I have about this.
            \"It is not length of life, but depth of life.\"

            Ralph Waldo Emerson

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