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Lisa Salberg Find out more about Lisa Salberg
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  • #1

    New Glossary

    http://www.4hcm.org/glossary/index.php

    Have you ever wondered what some of these long medical words mean?? Well we know know it can be hard to follow sometimes so we have added a glossary page to help you!

    A big thanks to Tim Stewart for his help in pulling this together!

    Sincerely,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)
    Tags: None
  • #2
    Re: New Glossary

    Great! However, note typo on "atria"--says they are the two "killing" chambers of the heart. Not the best typo to have with new HCM patients.

    Sue

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    • #3
      Re: New Glossary

      Sue now that was funny, but i would know what it was meant to say, i never noticed it but i wasn't looking either

      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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      • #4
        Re: New Glossary

        I think the Glossary is a great idea and extremely helpful. I couldent help but notice though, there was do definition for the Alcohol Septal Ablation. Will this be added?

        Connie
        The BEST is yet to come !!

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        • #5
          Re: New Glossary

          Good Grief!!!

          I'd edit that but I don't have that capability. Tim, Lisa??

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

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