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Facial cancer surgery today

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Pam Alexson single mother of 3 wonderful young adults;a special ed teacher, an RN and a senior accountant. Find out more about Pam Alexson
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  • #16
    Re: Facial cancer surgery today

    The check-up went fine no changes to my settings and no events. The Ep said that doing cauterization and an AICD do not mix . The AICD needs to be turned off prior to using cauterization equipment. I think it is a good time for those of us with devises to check the manufacturers precautions on what we can and can not do or be exposed to . I know that I opened my eyes up when I saw I had been inadvertently exposing my devise to dangerous tools and such . I will now carry a list with me at all times. Thanks for all your support and all . Pam
    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

    Comment


    • #17
      Re: Facial cancer surgery today

      Dear Pam,

      I'm so glad that nothing bad happened to you while they were doing the cauterizing. I had no idea that the ICD woulnd't mix with it. My husband and I were talking just yesterday how proactive you have to be with your own health care. His mom had issues just yesterday with one doctor saying she couldn't have a particular med since she had severe stomach flu and was hospitalized while her specialist is saying that she shouldn't miss her dose under any circumstances, that they can put it in her IV. UGH.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

      Comment


      • #18
        Re: Facial cancer surgery today

        Pam,
        As I guess you know, I’m in Maryland at the moment and just got the opportunity to read the boards, so I’m a little late expressing myself.

        Lisa hit the nail right on the head – you are a beautiful person - and that is so much more then a pretty appearance. Your beauty you made yourself – and that does not come out of a make-up compact.

        If you are concerned about your physical appearance, a plastic surgeon can always fix that up. But inner beauty is what really counts in this world, and you sure look good to me.
        Burt

        PS I’m having a pre-cancerous lesion removed from my nose, but as luck would have it, it is not really noticeable on me.

        Comment


        • #19
          Re: Facial cancer surgery today

          Thank you all again for all your care. Today the swelling is down and it feels much better & I know I shouldn't say it but it looks gross. I hear what you are saying about being proactive ,it leaves you thinking ,"how many people have had tragic outcomes to their care because they were unaware of the things the doctors should be up to speed on?" The ep doctor just rolled his eyes in reference to the surgeon and said, " he should have known better or at least checked!" Now my family says," you should have known from all your experience in this rinky dink town that you should have gone to Boston ." You know it is not always that easy ,it is a trip of distance and inconvienience and who would think that in this day and age you have to get a degree in your own medical management for your own safety? They are right I always fall back into that trusting mode. When I looked up the quidant web site I could not believe all the precautions. Somehow a couple years ago I don't remember seeing that list. Especially for you guys out there and all your motorized equipment it is worth taking a look at the list. I know I have held my hedge trimmers closer then 12 inches before and the speakers my son put next to my chair on a shelf in the living room , I wondered what that beep was when the chair is too close or I am dusting them. I have been carefull to step back from those arches at stores where sometimes you stop and have your receipt checked and someone in front of you causes you to get delayed in the arch. Well be forewarned take heed in all your care and don't relax your vigilance , it could be life altering and life threatening. Be well . Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

          Comment


          • #20
            Re: Facial cancer surgery today

            Hey Pam,
            It looks gross because it’s still new and has a lot more healing to do. Give it some time. One way or another things will get better. (And you’ll always look good to us.)
            Burt

            Comment


            • #21
              Re: Facial cancer surgery today

              Thank you Burt I will try not to look til it heals better. A funny thing that made me think happened at a wake for my cousin on Wed. . Another cousin I had only met once in my life saw me, was reintroduced to me and after 15 minutes was back in front of me and loudly proclaimed so the whole room could hear, "What did you have on your face a malignant tumor?" I had to chuckle because I did not have to tell one more person in the room as they looked in caring wonderment at me, he did it all in one question. I felt worse for him because everyone was looking at him and saying quietly to each other , "What's wrong with him?" The sad thing is people were wispering about how he had fried his brain on drugs. There is always a sadder story out there . I hope you are having fun in Maryland . Have you had some crab cakes yet? Enjoy. Pam
              Dx @ 47 with HOCM & HF:11/00
              Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
              Lead failure,replaced 12/06.
              SF lead recall:07,extracted leads and new device 2012
              [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
              Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
              Genetic mutation 4/09, mother(d), brother, son, gene+
              Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

              Comment


              • #22
                Re: Facial cancer surgery today

                Pam,
                Now there you have one of those moments in life 15 yrs from now you will look back on and laugh... - I am sure he will too!

                Give yourself time to heal and remember "mederma" is great at helping fade scars (once healing is done) and good ole Vit. E helps a great deal.

                Take care,
                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment


                • #23
                  Re: Facial cancer surgery today

                  Hi Pam,
                  Passover is not over until Tuesday evening, but after that we will be heading to a good restaurant in the Chesapeake Bay area, and crab cakes are definitely on the agenda. My wife Shirley has been looking forward to it for months now, and reminiscing about the crab cakes we had the last time we were here. Thanks for asking.
                  Burt

                  Comment


                  • #24
                    Re: Facial cancer surgery today

                    Are you ready for this? When I went for stitch removal Mon. I told the surgeon about the precautions. He said the Ep docs don't know what we do in dermatology , we use a hyfercator. Well you know me , I looked it up. It is electrical thermal heat treatment. Called my PCP she says " I don't know for sure but think it can be as ill advised to use with an AICD patient. " So I e-mailed Guidant. Guess what? You guessed it , they advise that devise be turned off with cautery , bovee, and hyfercator use! They are going to send a letter to the dermatology Clinic and I faxed a copy of the response from Guidant to my PCP. We can never be too carefull can we . Pam
                    Dx @ 47 with HOCM & HF:11/00
                    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                    Lead failure,replaced 12/06.
                    SF lead recall:07,extracted leads and new device 2012
                    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                    Genetic mutation 4/09, mother(d), brother, son, gene+
                    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                    Comment


                    • #25
                      Re: Facial cancer surgery today

                      UFF DA!!!!!!!!! thats Norweigian for AHHHHHHHHH.

                      I love how often people are dead sure.... in this case this doc being dead sure could have resulted in death alright!

                      Sorry I am being a bit snide but these things frustrate me.

                      Lisa
                      Knowledge is power ... Stay informed!
                      YOU can make a difference - all you have to do is try!

                      Dx age 12 current age 46 and counting!
                      lost: 5 family members to HCM (SCD, Stroke, CHF)
                      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                      Therapy - ICD (implanted 97, 01, 04 and 11, medication
                      Currently not obstructed
                      Complications - unnecessary pacemaker and stroke (unrelated to each other)

                      Comment


                      • #26
                        Re: Facial cancer surgery today

                        Well thank G-d we still have Pam-y girl with us.
                        Burt

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