[Disappointed at doctor]

Author: Dora (---.proxy.aol.com)

Date: 05-15-02 12:50

Hi

Boy am I about feed up with my doctor. As I had wrote before I have been having a lot of problems and I had ask my doctor to refere me to a specialist. Two weeks ago I went to the emergancy room with terrible pain in my chest. They weren't able to find anything, but said to see my doctor. I seen her last week and all she said was she would make an appointment for me to see a doctor at the Universite of Maryland. I have been trying to get an appointment with the doctor she wanted me to see. I called the university several times last week, but they said they have to speak with the doctor first and he wouldn't be back till yesterday (Tuesday). Then she was suppose to get back with me. I waited until 12:00 today then I called her back. She said they can't see me till the 22nd of next month. I ask her if there was no way that they could work me in as I have been having a lot of problems. When I ask her what to expect when I get seen, she said something that made me realize that he wasn't actually a doctor but a surgeon. I had told my doctor that I would like to have a myectomy if at all possible, but I didn't expect them to set up an appointment with a surgeon until more test were done. She told me I needed a TEE and she was going to let them do it. Am I not understanding something or are they crazy. Well needless to say I ask for a number to the cardioglist there and made an appointment to see a doctor that deals with Hypertropic Cardiomyopathy next Wednesday. The doctor I am going to see is Dr. Shorofski, if anybody knows anything about him please let me know. I am scarred about these Dr. but my insurance only covers at the university of Maryland.

Dora

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[Re: Disappointed at doctor]

Author: s. beckley -moderator (---.dsl.mindspring.com)

Date: 05-16-02 10:29

Dear Dora,

Please call the HCMA office at 973-983-7429 right away to talk to Lisa about your situation. You need more advice than can be put in a message posting.

Also, please call your insurance company and ask for the name of a cardiac electrophysiologist. If you can't see an HCM sepcialist, you should at least be seeing an electrophysiologist and not this woman who's blowing you off.

keep us up to speed,

Sarah

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[Re: Disappointed at doctor]

Author: Dora (---.proxy.aol.com)

Date: 05-16-02 11:34

Hi Sarah,

I have already talked to Lisa about two weeks ago. After I wrote the posting I talked to my doctors nurse and they faxed my information to a cardiologist at Universary of Maryland where I had made an appointment for next Wednesday. I am going to go see him, then go from there. I talked to him yesterday on the phone and he said they work with Hypertrophic Cardiomyopathy patients all the time. Of course that doesn't mean they are up to date on things.

Thanks for responding.

Dora J.

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[Re: Disappointed at doctor]

Author: s. beckley -moderator (---.dsl.mindspring.com)

Date: 05-16-02 15:19

Dear Dora,

I'm glad you talked to Lisa. I'm sorry you are getting jerked around. If you are in a situation where your insurance comes up for open enrollment every year, I highly recommend that you move to a POS or PPO if you ever get the opportunity. While the monthly charge is higher, you would probably not have so much of this run around. I know that doesn't help you _now_ but it is something I just wanted to put out there.

You can always go to google.com and type the doctor's name in there and see what kind of journal articles turn up. That will tell you a lot about the doctor --what their specialty is, etc.

good luck

Sarah

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[Re: Disappointed at doctor]

Author: Dora (---.proxy.aol.com)

Date: 05-16-02 22:41

Thanks Sarah

I tried to look Dr. Shorofsky up on google.com but I was not able to find him because I misunderstood the spelling of his name. I then looked up University of Maryland and looked up the doctors there and thank God I found him there with the right spelling. He is a electrophysiology, so I am hoping I found what I need. Boy this sure has been tough. Thanks for all of the help you people have given me.

Dora

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[Re: Disappointed at doctor]

Author: s. beckley -moderator (---.dsl.mindspring.com)

Date: 05-17-02 17:53

Dear Dora

You are welcome. Thank god for the web.

keep us posted.

Sarah